Oral cavity squamous cell carcinomas in patients with no identified risk factors: Feeling like an outsider.
head and neck cancer
non-smoker
oral cavity cancer
qualitative study
risk factors
stigmatisation
Journal
European journal of cancer care
ISSN: 1365-2354
Titre abrégé: Eur J Cancer Care (Engl)
Pays: England
ID NLM: 9301979
Informations de publication
Date de publication:
Mar 2022
Mar 2022
Historique:
revised:
03
01
2022
received:
22
06
2021
accepted:
26
01
2022
pubmed:
17
2
2022
medline:
11
3
2022
entrez:
16
2
2022
Statut:
ppublish
Résumé
Head and neck squamous cell carcinomas (HNSCCs) mainly affect smokers and drinkers. However, oral cavity squamous cell cancers (OCSCCs) are increasingly affecting patients with no identified risk factors (NIRFs). This study aimed at characterising their experience of the disease. Qualitative study based on semi-structured interviews of 20 survivors of OCSCC with NIRF. Methods used in grounded theory approach were applied. Patients with NIRF had a similar experience to that of patients with risk factors regarding treatments. The absence of identified causes led to stigma and led the patients to distance themselves, both from the stereotypic HNSCC cancer patient and the identity as a cancer patient. Furthermore, having no identified risk factors seemed to reinforce the fear of recurrence. This study is the first to address key gaps in knowledge regarding patients with NIRF having survived OCSCC. Their experience is similar to that of patients with orphan diseases. Owing to confrontation with other patients and the repeated questions of caregivers about tobacco/alcohol consumption, these patients felt stigmatised during their treatment. OCSCC patients with NIRF may benefit from guidance and support on how to engage in prevention.
Types de publication
Journal Article
Langues
eng
Pagination
e13558Subventions
Organisme : PIA Institut Convergence François Rabelais PLAsCAN
ID : PLAsCAN, 17-CONV-0002
Informations de copyright
© 2022 John Wiley & Sons Ltd.
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