Mapping the role of patient and public involvement during the different stages of healthcare innovation: A scoping review.
healthcare innovation
patient and public involvement
scoping review
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
06 2022
06 2022
Historique:
revised:
05
01
2022
received:
15
07
2021
accepted:
06
01
2022
pubmed:
18
2
2022
medline:
25
5
2022
entrez:
17
2
2022
Statut:
ppublish
Résumé
Patient and public involvement (PPI) has become increasingly important in the development, delivery and improvement of healthcare. PPI is used in healthcare innovation; yet, how it is used has been under-reported. The aim of this scoping review is to identify and map the current available empirical evidence on the role of PPI during different stages of healthcare innovation. The scoping review was conducted in accordance with PRISMAScR and included any study published in a peer-reviewed journal between 2004 and 2021 that reported on PPI in healthcare innovation within any healthcare setting or context in any country. The following databases were searched: Medline, EMBASE, CINAHL, PsycInfo, HMIC and Google Scholar. We included any study type, including quantitative, qualitative and mixed-method studies. We excluded theoretical frameworks, conceptual, scientific or grey literature as well as discussion and opinion papers. Of the 87 included studies, 81 (93%) focused on or were conducted by authors in developed countries. A wide range of conditions were considered, with more studies focusing on mental health (n = 18, 21%) and cancer care (n = 8, 9%). The vast majority of the studies focused on process and service innovations (n = 62, 71%). Seven studies focused on technological and clinical innovations (8%), while 12 looked at both technological and service innovations (14%). Only five studies examined systems innovation (5%) and one study looked across all types of innovations (1%). PPI is more common in the earlier stages of innovation, particularly problem identification and invention, in comparison to adoption and diffusion. Healthcare innovation tends to be a lengthy process. Yet, our study highlights that PPI is more common across earlier stages of innovation and focuses mostly on service innovation. Stronger PPI in later stages could support the adoption and diffusion of innovation. One of the coauthors of the paper (S. S.) is a service user with extensive experience in PPI research. S. S. supported the analysis and writing up of the paper.
Sections du résumé
BACKGROUND
Patient and public involvement (PPI) has become increasingly important in the development, delivery and improvement of healthcare. PPI is used in healthcare innovation; yet, how it is used has been under-reported. The aim of this scoping review is to identify and map the current available empirical evidence on the role of PPI during different stages of healthcare innovation.
METHODS
The scoping review was conducted in accordance with PRISMAScR and included any study published in a peer-reviewed journal between 2004 and 2021 that reported on PPI in healthcare innovation within any healthcare setting or context in any country. The following databases were searched: Medline, EMBASE, CINAHL, PsycInfo, HMIC and Google Scholar. We included any study type, including quantitative, qualitative and mixed-method studies. We excluded theoretical frameworks, conceptual, scientific or grey literature as well as discussion and opinion papers.
RESULTS
Of the 87 included studies, 81 (93%) focused on or were conducted by authors in developed countries. A wide range of conditions were considered, with more studies focusing on mental health (n = 18, 21%) and cancer care (n = 8, 9%). The vast majority of the studies focused on process and service innovations (n = 62, 71%). Seven studies focused on technological and clinical innovations (8%), while 12 looked at both technological and service innovations (14%). Only five studies examined systems innovation (5%) and one study looked across all types of innovations (1%). PPI is more common in the earlier stages of innovation, particularly problem identification and invention, in comparison to adoption and diffusion.
CONCLUSION
Healthcare innovation tends to be a lengthy process. Yet, our study highlights that PPI is more common across earlier stages of innovation and focuses mostly on service innovation. Stronger PPI in later stages could support the adoption and diffusion of innovation.
PATIENT OR PUBLIC CONTRIBUTION
One of the coauthors of the paper (S. S.) is a service user with extensive experience in PPI research. S. S. supported the analysis and writing up of the paper.
Identifiants
pubmed: 35174585
doi: 10.1111/hex.13437
pmc: PMC9122470
doi:
Types de publication
Journal Article
Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
840-855Informations de copyright
© 2022 The Authors. Health Expectations published by John Wiley & Sons Ltd.
Références
Aging Ment Health. 2021 Mar;25(3):445-452
pubmed: 31799880
Int J Qual Health Care. 2012 Feb;24(1):28-38
pubmed: 22109631
Int J Technol Assess Health Care. 2011 Jan;27(1):43-9
pubmed: 21262071
BMJ. 2019 May 10;365:l2068
pubmed: 31076440
BMJ Open. 2019 May 9;9(5):e026514
pubmed: 31076471
Health Expect. 2018 Feb;21(1):327-335
pubmed: 28929554
N Z Med J. 2012 Jun 29;125(1357):76-87
pubmed: 22854362
Health Expect. 2019 Oct;22(5):1132-1143
pubmed: 31373754
Med Care. 2019 May;57 Suppl 5 Suppl 1:S92-S99
pubmed: 30985602
Res Synth Methods. 2021 Mar;12(2):239-247
pubmed: 32985074
Int J Technol Assess Health Care. 2021 Feb 05;37:e36
pubmed: 33541449
Psychiatr Serv. 2005 Aug;56(8):967-75
pubmed: 16088014
BMJ Open. 2014 Jan 10;4(1):e004217
pubmed: 24413356
Fam Pract. 2006 Dec;23(6):644-50
pubmed: 16837479
Health Expect. 2019 Aug;22(4):785-801
pubmed: 31012259
Qual Prim Care. 2014;22(4):189-99
pubmed: 25695530
BMC Geriatr. 2019 Oct 21;19(1):275
pubmed: 31638902
Health Inf Manag. 2015;44(1):12-20
pubmed: 27092465
Soc Sci Med. 2017 Jun;183:62-69
pubmed: 28463721
Health Expect. 2019 Aug;22(4):721-730
pubmed: 30927334
Health Expect. 2017 Jun;20(3):519-528
pubmed: 27338242
BMC Psychiatry. 2017 Feb 23;17(1):79
pubmed: 28231791
Med Decis Making. 2019 Nov;39(8):1019-1031
pubmed: 31722623
Patient. 2014;7(3):261-70
pubmed: 24862378
Qual Health Res. 2016 Jun;26(7):979-93
pubmed: 26658233
BMJ. 2021 Mar 29;372:n71
pubmed: 33782057
Behav Res Ther. 2013 May;51(4-5):197-206
pubmed: 23419888
Healthc Manage Forum. 2018 Mar;31(2):57-61
pubmed: 29488408
BMC Geriatr. 2019 Dec 31;20(1):1
pubmed: 31892317
Int J Equity Health. 2020 Nov 2;19(1):145
pubmed: 33131498
J Clin Nurs. 2012 Dec;21(23-24):3590-3
pubmed: 23145522
BMJ Open. 2020 Sep 3;10(9):e038001
pubmed: 32883735
Int J Technol Assess Health Care. 2011 Oct;27(4):343-7
pubmed: 22004775
J Med Internet Res. 2021 Apr 22;23(4):e25773
pubmed: 33885374
Soc Sci Med. 2014 Aug;115:56-63
pubmed: 24949981
Health Expect. 2019 Feb;22(1):102-113
pubmed: 30345726
Prev Chronic Dis. 2011 Mar;8(2):A47
pubmed: 21324261
Res Involv Engagem. 2018 May 01;4:14
pubmed: 29744131
Health Expect. 2017 Jun;20(3):508-518
pubmed: 27345769
Ann N Y Acad Sci. 2007 Oct;1114:362-8
pubmed: 17934059
Best Pract Res Clin Rheumatol. 2016 Jun;30(3):420-444
pubmed: 27886940
Stud Health Technol Inform. 2017;233:78-92
pubmed: 28125415
BMC Med Res Methodol. 2018 Nov 19;18(1):143
pubmed: 30453902
Patient. 2014;7(4):387-95
pubmed: 25034612
BMJ Open. 2020 Dec 16;10(12):e039473
pubmed: 33328257
Health Aff (Millwood). 2014 Sep;33(9):1627-34
pubmed: 25201668
Int J Evid Based Healthc. 2015 Sep;13(3):141-6
pubmed: 26134548
Health Care Manag (Frederick). 2016 Oct/Dec;35(4):284-293
pubmed: 27676370
Res Involv Engagem. 2020 Oct 27;6:63
pubmed: 33133636
Front Neurol. 2021 Mar 23;12:637000
pubmed: 33833728
Nurs Stand. 2016 Sep 7;31(2):45-53
pubmed: 27794699
Health Expect. 2018 Feb;21(1):3-22
pubmed: 28812330
AIDS Care. 2008 Jan;20(1):72-9
pubmed: 18278617
Behav Res Ther. 2020 Jul;130:103533
pubmed: 31870496
Haemophilia. 2020 Nov;26(6):e254-e261
pubmed: 32892485
Qual Life Res. 2015 May;24(5):1077-85
pubmed: 25577498
BMC Health Serv Res. 2020 Sep 21;20(1):888
pubmed: 32957958
J Consult Clin Psychol. 2020 May;88(5):481-494
pubmed: 32091226
J Affect Disord. 2014 Oct;168:452-8
pubmed: 25113958
Clin Interv Aging. 2012;7:509-16
pubmed: 23204843
J Cardiovasc Nurs. 2020 May/Jun;35(3):268-272
pubmed: 32221147
Health Expect. 2019 Feb;22(1):3-20
pubmed: 30378234
Sports Med. 2019 Jul;49(7):1117-1131
pubmed: 31119717
Int J Qual Stud Health Well-being. 2021 Dec;16(1):1954744
pubmed: 34308802
Soc Sci Med. 2010 May;70(10):1518-26
pubmed: 20207061
Healthc Q. 2009;13 Spec No:61-8
pubmed: 20057252
Int J Qual Health Care. 2015 Aug;27(4):284-90
pubmed: 26082461
BMC Health Serv Res. 2018 Jan 31;18(1):68
pubmed: 29386012
Behav Med. 2019 Apr-Jun;45(2):177-187
pubmed: 31343967
Healthc Manage Forum. 2016 Sep;29(5):176-82
pubmed: 27576853
Health Expect. 2017 Apr;20(2):288-297
pubmed: 27086728
J Clin Nurs. 2009 Sep;18(18):2547-54
pubmed: 19207798
BMJ. 2002 Nov 30;325(7375):1263
pubmed: 12458240
Sociol Health Illn. 2019 Jan;41(1):128-142
pubmed: 30084113
Med Care. 2009 Aug;47(8):908-15
pubmed: 19543120
BMJ Open. 2018 Aug 5;8(8):e022285
pubmed: 30082361
Health Res Policy Syst. 2021 Jan 20;19(1):8
pubmed: 33472647
Spinal Cord. 2020 Jul;58(7):778-786
pubmed: 31969687
Qual Health Res. 2015 Sep;25(9):1241-50
pubmed: 25576480
Early Interv Psychiatry. 2018 Aug;12(4):740-746
pubmed: 28776920
Health Aff (Millwood). 2020 Oct;39(10):1776-1782
pubmed: 33017230
Z Arztl Fortbild Qualitatssich. 2007;101(2):109-16
pubmed: 17458356
Milbank Q. 2004;82(4):581-629
pubmed: 15595944
J Med Internet Res. 2021 Feb 10;23(2):e23502
pubmed: 33565985
Health Expect. 2014 Oct;17(5):637-50
pubmed: 22809132
BMC Med Res Methodol. 2016 Feb 09;16:15
pubmed: 26857112
Nurs Stand. 2013 Mar 27-Apr 2;27(30):35-40
pubmed: 23617061
Int J Health Care Qual Assur. 2014;27(5):427-38
pubmed: 25087340
Health Expect. 2017 Dec;20(6):1428-1436
pubmed: 28660732
J Community Health. 2019 Oct;44(5):912-920
pubmed: 30825097
Aust J Rural Health. 2020 Apr;28(2):190-194
pubmed: 32281183
Patient Educ Couns. 2006 Apr;61(1):65-71
pubmed: 16533678
Health Expect. 2004 Jun;7(2):157-64
pubmed: 15117390
J Clin Nurs. 2016 Mar;25(5-6):742-51
pubmed: 26510719
Qual Health Res. 2014 Jan;24(1):46-54
pubmed: 24277776
Health Expect. 2022 Jun;25(3):840-855
pubmed: 35174585
Health Expect. 2015 Apr;18(2):153-65
pubmed: 23252574
Health Expect. 2018 Dec;21(6):1013-1023
pubmed: 29707865
Res Involv Engagem. 2016 Jan 14;2:1
pubmed: 29062502
Health Expect. 2019 Feb;22(1):93-101
pubmed: 30289592
J Assoc Nurses AIDS Care. 2015 Nov-Dec;26(6):732-42
pubmed: 26255897
Health Expect. 2018 Jun;21(3):685-692
pubmed: 29345395
Br J Nurs. 2018 Sep 20;27(17):1004-1010
pubmed: 30235034
Health Expect. 2017 Feb;20(1):130-145
pubmed: 26914249
Health Expect. 2013 Sep;16(3):e36-47
pubmed: 23374430