The experience of people with idiopathic pulmonary fibrosis living through the COVID-19 pandemic.
COVID-19
idiopathic pulmonary fibrosis
midwives
nurses
nursing
pandemic
patients experience
qualitative research
Journal
Journal of advanced nursing
ISSN: 1365-2648
Titre abrégé: J Adv Nurs
Pays: England
ID NLM: 7609811
Informations de publication
Date de publication:
Jul 2022
Jul 2022
Historique:
revised:
12
01
2022
received:
23
09
2021
accepted:
25
01
2022
pubmed:
19
2
2022
medline:
25
6
2022
entrez:
18
2
2022
Statut:
ppublish
Résumé
To explore the experience of people with idiopathic pulmonary fibrosis living through the COVID-19 pandemic. A qualitative descriptive design using semi-structured interviews. Purposive sampling was employed to recruit 13 participants with idiopathic pulmonary fibrosis attending the respiratory department of a large urban teaching hospital in Limerick, Ireland. Data were collected between January 2021 and February 2021 through semi-structured interviews, using an online platform. Reflective thematic analysis was used for data analysis. Four key themes were identified from participant's experience of living through the COVID-19 pandemic: (1) fear of contracting COVID-19 disease, (2) living with reduced social interaction, (3) the adjustment in the relationship with healthcare professionals (HCP) and (4) navigating an altered landscape. Healthcare professionals have a key role in protecting the physical and psychological health of the person with idiopathic pulmonary fibrosis during this time and into the future. Through being cognisant of the additional supportive care needs of people with idiopathic pulmonary fibrosis, HCP can focus on developing targeted interventions aimed to enhance care provision. This study considers people with idiopathic pulmonary fibrosis as a particularly vulnerable group whose experiences of living through the COVID-19 pandemic warrant specific attention. Participants felt compelled to self-isolate due to fear and anxiety of contracting COVID-19 disease. Participants reported increased social isolation with some experiencing anger and resentment at loss of precious time with loved ones. Participants felt an increased responsibility for self-monitoring their condition and had concerns about differentiating symptoms of COVID-19 disease from an exacerbation. A variety of strategies that helped them cope through the pandemic were identified and also the important role these played. The results from this study can be used to inform HCP' understanding of challenges experienced by people with idiopathic pulmonary fibrosis during enforced restrictions related to the COVID-19 pandemic.
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
2232-2244Informations de copyright
© 2022 John Wiley & Sons Ltd.
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