Eliciting critical hope in community-based HIV research with transgender women in Toronto, Canada: methodological insights.


Journal

Health promotion international
ISSN: 1460-2245
Titre abrégé: Health Promot Int
Pays: England
ID NLM: 9008939

Informations de publication

Date de publication:
23 Jun 2022
Historique:
pubmed: 26 2 2022
medline: 28 6 2022
entrez: 25 2 2022
Statut: ppublish

Résumé

Critical hope centres optimism and possibilities for change in the midst of struggles for social justice. It was a central tenet of early participatory pedagogy and HIV research. However, critical hope has been overlooked in contemporary HIV research that largely focuses on risk and biomedical interventions in ways that obscure collective agency and community strengths. We conducted a community-based study with transgender (trans) women of colour in Toronto, Canada to adapt an evidence-based HIV prevention intervention. Participants resisted a focus on HIV, instead calling researchers to centre journeys to self-love in contexts of social exclusion. In response, we piloted three arts-based, participatory methods generated with community collaborators: (i) affirmation cards sharing supportive messages with other trans women, (ii) hand-held mirrors for reflecting and sharing messages of self-acceptance and (iii) anatomical heart images to visualize coping strategies. Participants generated solidarity and community through shared stories of self-acceptance within contexts of pain, exclusion and loss. Narratives revealed locating agency and self-acceptance through community connectedness. Critical hope was a by-product of this participatory process, whereby participants shared personal and collective optimism. Participatory and arts-based methods that centre self-acceptance and solidarity can nurture resistance to pathologizing discourses in HIV research. Centring critical hope and participant-generated methodologies is a promising approach to transformative health promotion and intervention research. These methodological insights can be engaged in future participatory work with other marginalized groups facing dominant biomedical risk discourses. Critical hope holds potential as a participatory health promotion strategy for envisioning possibilities for sustainable change. Optimism and possibility for change in the midst of social justice struggles are central to critical hope and change-oriented research. The concept of critical hope guided community-based activism and research, including early in the HIV pandemic. Yet current HIV research largely focuses on individual risks and biomedical solutions, which may overlook critical hope and the important role of community connection in promoting wellbeing. Our community-based study with transgender (trans) women of colour in Toronto, Canada aimed to adapt an HIV prevention intervention. Participants challenged the HIV focus and invited the research team to instead focus on pathways to self-acceptance in larger contexts of social exclusion. In response, we developed three arts-based activities to pilot-test at three workshops: affirmation cards to write supportive messages to other trans women, hand-held mirrors to write messages of self-acceptance, and anatomical heart images to visualize coping strategies. Through these activities, participants shared stories of self-acceptance that occurred over time and through community connectedness, often in the face of exclusion and discrimination. Perspectives on personal and collective optimism, reflecting critical hope, were shared in the workshops. Participant-generated methodologies that offer opportunities to discuss critical hope can be promising approach to transformative health promotion and intervention research.

Autres résumés

Type: plain-language-summary (eng)
Optimism and possibility for change in the midst of social justice struggles are central to critical hope and change-oriented research. The concept of critical hope guided community-based activism and research, including early in the HIV pandemic. Yet current HIV research largely focuses on individual risks and biomedical solutions, which may overlook critical hope and the important role of community connection in promoting wellbeing. Our community-based study with transgender (trans) women of colour in Toronto, Canada aimed to adapt an HIV prevention intervention. Participants challenged the HIV focus and invited the research team to instead focus on pathways to self-acceptance in larger contexts of social exclusion. In response, we developed three arts-based activities to pilot-test at three workshops: affirmation cards to write supportive messages to other trans women, hand-held mirrors to write messages of self-acceptance, and anatomical heart images to visualize coping strategies. Through these activities, participants shared stories of self-acceptance that occurred over time and through community connectedness, often in the face of exclusion and discrimination. Perspectives on personal and collective optimism, reflecting critical hope, were shared in the workshops. Participant-generated methodologies that offer opportunities to discuss critical hope can be promising approach to transformative health promotion and intervention research.

Identifiants

pubmed: 35213717
pii: 6537085
doi: 10.1093/heapro/daac017
pmc: PMC9226654
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

ii37-ii47

Subventions

Organisme : Ontario Ministry of Research & Innovation Early Researcher Award, Canada Foundation for Innovation (CFI), and the Canada Research Chairs Program
Organisme : Ontario Ministry of Research & Innovation Early Researcher Award
Organisme : Canada Research Chairs Program
Organisme : Novo Nordisk Foundation
Organisme : NIMH NIH HHS
ID : R25 MH067127
Pays : United States
Organisme : Steno Diabetes Center Copenhagen
Organisme : Canadian Institutes of Health Research (CIHR)
Organisme : Social Sciences & Humanities Research Council of Canada (SSRHC)
Organisme : Canadian Institutes of Health Research (CIHR) and the Social Sciences & Humanities Research Council of Canada (SSRHC)
Organisme : NICHD NIH HHS
ID : P2C HD050924
Pays : United States
Organisme : Capital Region of Denmark
Organisme : Canada Foundation for Innovation (CFI)

Informations de copyright

© The Author(s) 2022. Published by Oxford University Press.

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Auteurs

Carmen H Logie (CH)

Factor-Inwentash Faculty of Social Work, University of Toronto, Toronto, ON M5S 1V4, Canada.
Women's College Research Institute, Women's College Hospital, Toronto, ON M5G 1N8, Canada.
Centre for Gender & Sexual Health Equity, Vancouver, BC V6Z 1Y6, Canada.

David J Kinitz (DJ)

Dalla Lana School of Public Health, University of Toronto, Toronto, ON M5T 3M7, Canada.

Lesley Gittings (L)

Factor-Inwentash Faculty of Social Work, University of Toronto, Toronto, ON M5S 1V4, Canada.

Yasmeen Persad (Y)

Women's College Research Institute, Women's College Hospital, Toronto, ON M5G 1N8, Canada.
519 Community Centre, Toronto, ON M4Y 2C9, Canada.

Ashley Lacombe-Duncan (A)

Women's College Research Institute, Women's College Hospital, Toronto, ON M5G 1N8, Canada.
Faculty of Social Work, University of Michigan, Ann Arbor, MI 48109, USA.

Tonia Poteat (T)

Department of Social Medicine, University of North Carolina, Chapel Hill, NC 27599-7240, USA.

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Classifications MeSH