Implementation of paediatric intensive care unit diaries: Feasibility and opinions of parents and healthcare providers.

Child Humans Prospective Studies Parents / psychology Hospitalization Health Personnel Intensive Care Units, Pediatric
Caregivers Child Critical illness Diary Family-centred care Intensive care units Mental health Paediatric Post-traumatic Stress disorders

Journal

Australian critical care : official journal of the Confederation of Australian Critical Care Nurses
ISSN: 1036-7314
Titre abrégé: Aust Crit Care
Pays: Australia
ID NLM: 9207852

Informations de publication

Date de publication:
05 2023
Historique:
received: 29 08 2021
revised: 22 01 2022
accepted: 23 01 2022
medline: 2 5 2023
pubmed: 21 3 2022
entrez: 20 3 2022
Statut: ppublish

Résumé

The implementation of paediatric intensive care unit (PICU) diaries has been reported as feasible in routine care. To date no feasibility study has compared PICU healthcare providers' (HCPs) and parents' opinions on this tool. The aim of this study is to describe the feasibility and perception of PICU diaries in an Italian PICU from the point of view of parents and HCPs. This is a single-centre, prospective, observational study conducted in a tertiary care paediatric hospital from August 2020 to May 2021. Children admitted to the emergency department PICU, intubated, and sedated for ≥48 h were enrolled. To explore their perceptions and attitudes with the PICU diary, parents were interviewed at 30 days from their child's discharge from the PICU, whereas PICU HCPs were surveyed at the end of the study. Data were analysed as proportions for categorical variables and means and medians for continuous variables according to the distribution, whereas qualitative data were summarised in categories by two independent researchers. Twenty families were enrolled in this study. A total of 275 daily PICU diary entries were collected. Children's median age was 9 years (interquartile range = 2-13.25), and the length of stay ranged from 6 to 39 days. PICU diary applicability was rated high by parents and HCPs (>8 on a 1-10 Likert scale). Parents and HCPs perceived PICU diaries as beneficial for communication between staff and families, for parents by expressing their emotions and for staff by becoming aware of how parents experienced their child's admission. Reported barriers were the lack of a private environment, the risk of exposure to public reading, and PICU workload. PICU diaries were feasible and perceived as beneficial both by parents and HCPs. Future research is warranted to understand the effect of PICU diaries on post-PICU outcomes.

Sections du résumé

BACKGROUND
The implementation of paediatric intensive care unit (PICU) diaries has been reported as feasible in routine care. To date no feasibility study has compared PICU healthcare providers' (HCPs) and parents' opinions on this tool.
OBJECTIVES
The aim of this study is to describe the feasibility and perception of PICU diaries in an Italian PICU from the point of view of parents and HCPs.
METHODS
This is a single-centre, prospective, observational study conducted in a tertiary care paediatric hospital from August 2020 to May 2021. Children admitted to the emergency department PICU, intubated, and sedated for ≥48 h were enrolled. To explore their perceptions and attitudes with the PICU diary, parents were interviewed at 30 days from their child's discharge from the PICU, whereas PICU HCPs were surveyed at the end of the study. Data were analysed as proportions for categorical variables and means and medians for continuous variables according to the distribution, whereas qualitative data were summarised in categories by two independent researchers.
RESULTS
Twenty families were enrolled in this study. A total of 275 daily PICU diary entries were collected. Children's median age was 9 years (interquartile range = 2-13.25), and the length of stay ranged from 6 to 39 days. PICU diary applicability was rated high by parents and HCPs (>8 on a 1-10 Likert scale). Parents and HCPs perceived PICU diaries as beneficial for communication between staff and families, for parents by expressing their emotions and for staff by becoming aware of how parents experienced their child's admission. Reported barriers were the lack of a private environment, the risk of exposure to public reading, and PICU workload.
CONCLUSIONS
PICU diaries were feasible and perceived as beneficial both by parents and HCPs. Future research is warranted to understand the effect of PICU diaries on post-PICU outcomes.

Identifiants

DOI: 10.1016/j.aucc.2022.01.011 PMID: 35305896
pubmed: 35305896
pii: S1036-7314(22)00012-1
doi: 10.1016/j.aucc.2022.01.011
pii:
doi:

Types de publication

Observational Study Journal Article

Langues

eng

Pagination

370-377

Informations de copyright

Copyright © 2022 Australian College of Critical Care Nurses Ltd. Published by Elsevier Ltd. All rights reserved.

Auteurs

Orsola Gawronski (O)

Professional Development, Continuing Education and Research Unit, Medical Directorate, Bambino Gesù Children's Hospital, IRCCS, P.zza S. Onofrio 4, Rome, Italy. Electronic address: orsola.gawronski@opbg.net.

Vincenza Sansone (V)

Professional Development, Continuing Education and Research Unit, Medical Directorate, Bambino Gesù Children's Hospital, IRCCS, P.zza S. Onofrio 4, Rome, Italy; Department of Biomedicine and Prevention, University of Rome Tor Vergata, Rome, Italy. Electronic address: vincenzasansone@live.it.

Federica Cancani (F)

Pediatric Intensive Care Unit, Department of Emergency, Acceptance and General Pediatrics, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy. Electronic address: federica.cancani@opbg.net.

Matteo Di Nardo (M)

Pediatric Intensive Care Unit, Department of Emergency, Acceptance and General Pediatrics, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy. Electronic address: matteo.dinardo@opbg.net.

Angela Rossi (A)

Clinical Psychology Unit, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy. Electronic address: angela.rossi@opbg.net.

Chiara Gagliardi (C)

Pediatric Intensive Care Unit, Department of Emergency, Acceptance and General Pediatrics, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy. Electronic address: chiara.gagliardi@opbg.net.

Cristiana De Ranieri (C)

Clinical Psychology Unit, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy. Electronic address: cristiana.deranieri@opbg.net.

Tiziana Satta (T)

Pediatric Intensive Care Unit, Department of Emergency, Acceptance and General Pediatrics, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy. Electronic address: tiziana.satta@opbg.net.

Immacolata Dall'Oglio (I)

Professional Development, Continuing Education and Research Unit, Medical Directorate, Bambino Gesù Children's Hospital, IRCCS, P.zza S. Onofrio 4, Rome, Italy. Electronic address: immacolata.dalloglio@opbg.net.

Emanuela Tiozzo (E)

Professional Development, Continuing Education and Research Unit, Medical Directorate, Bambino Gesù Children's Hospital, IRCCS, P.zza S. Onofrio 4, Rome, Italy. Electronic address: emanuela.tiozzo@opbg.net.

Rosaria Alvaro (R)

Department of Biomedicine and Prevention, University of Rome Tor Vergata, Rome, Italy. Electronic address: rosaria.alvaro@gmail.com.

Massimiliano Raponi (M)

Medical Directorate, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy. Electronic address: massimiliano.raponi@opbg.net.

Corrado Cecchetti (C)

Pediatric Intensive Care Unit, Department of Emergency, Acceptance and General Pediatrics, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy. Electronic address: corrado.cecchetti@opbg.net.

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Classifications MeSH

questionsmedicales.fr › Personnes › Tranches d'âge › Enfant › Implementation of paediatric intensive care...
questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › Implementation of paediatric intensive care...
questionsmedicales.fr › Environnement et santé publique › Santé publique › Méthodes épidémiologiques › Caractéristiques des études épidémiologiques › Études épidémiologiques › Études de cohortes › Études prospectives › Implementation of paediatric intensive care...
questionsmedicales.fr › Personnes › Parents › Implementation of paediatric intensive care...
questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Services de santé › Soins aux patients › Hospitalisation › Implementation of paediatric intensive care...
questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Personnel de santé › Implementation of paediatric intensive care...
questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Établissements de santé › Unités hospitalières › Unités de soins intensifs › Unités de soins intensifs pédiatriques › Implementation of paediatric intensive care...