Identifying indicators of community participation-promoting efforts within coordinated specialty care: A modified e-Delphi study of stakeholder perspectives.
early intervention
first-episode psychosis
implementation science
participatory research
young adults
Journal
Early intervention in psychiatry
ISSN: 1751-7893
Titre abrégé: Early Interv Psychiatry
Pays: Australia
ID NLM: 101320027
Informations de publication
Date de publication:
12 2022
12 2022
Historique:
revised:
02
11
2021
received:
16
03
2021
accepted:
13
03
2022
pubmed:
25
3
2022
medline:
31
12
2022
entrez:
24
3
2022
Statut:
ppublish
Résumé
Community participation in occupational, social, recreational, and other domains is critically important during young adulthood. Coordinated Specialty Care (CSC) programs provide developmentally tailored care to young adults experiencing early psychosis within the United States, but little is known about the breadth of efforts to promote community participation. This study aimed to develop and evaluate indicators of these efforts based on the perspectives of a national multi-stakeholder group. Seventeen stakeholders (i.e., young adults with early psychosis, family members, experts by profession) participated in a modified e-Delphi study, conducted in two rounds. The purpose of round one was to generate a comprehensive list of community participation-promoting indicators. During round two, stakeholders rated the importance and feasibility of the implementation of each indicator. Descriptive statistics and percentage of agreement regarding round two ratings were assessed. During round one, 186 indicators of activities and/or practices designed to promote community participation were identified; this list was reduced to 44 by eliminating redundancies or indicators not related to community participation. In round two, we found broad agreement regarding the importance, but significant variation in perceived feasibility of indicators. The highest-rated indicators in both categories pertained to staff knowledge (regarding barriers and supports to participation and the importance of participation to health) and strategies for addressing participation barriers. This study is expected to facilitate the identification and development of promising CSC activities and practices designed to promote community participation among young adults while potentially also enhancing engagement in services and improving clinical outcomes.
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
1376-1390Informations de copyright
© 2022 John Wiley & Sons Australia, Ltd.
Références
Addington, D., Birchwood, M., Jones, P., Killackey, E., McDaid, D., Melau, M., Mizuno, M., Mueser, K., & Nordentoft, M. (2018). Fidelity scales and performance measures to support implementation and quality assurance for first episode psychosis services. Early Intervention in Psychiatry, 12(6), 1235-1242. https://doi.org/10.1111/eip.12684
Arnett, J. J. (2000). Emerging adulthood: A theory of development from the late teens through the twenties. American Psychologist, 55(5), 469-480. https://doi.org/10.1037/0003-066X.55.5.469
Bandura, A., & Schunk, D. H. (1981). Cultivating competence, self-efficacy, and intrinsic interest through proximal self-motivation. Journal of Personality and Social Psychology, 41(3), 586-598. https://doi.org/10.1037/0022-3514.41.3.586
Bassett, J., Lloyd, C., & Bassett, H. (2001). Work issues for young people with psychosis: Barriers to employment. British Journal of Occupational Therapy, 64(2), 66-72. https://doi.org/10.1177/030802260106400203
Berzonsky, M. D. (2003). Identity style and well-being: Does commitment matter? Identity: An International Journal of Theory and Research, 3(2), 131-142. https://doi.org/10.1207/S1532706XID030203
Brooke, L. E., Gucciardi, D. F., Ntoumanis, N., & Lin, A. (2020). Qualitative investigation of perceived barriers to and enablers of sport participation for young people with first episode psychosis. Early Intervention in Psychiatry, 14(3), 293-306. https://doi.org/10.1111/eip.12854
Chaudoir, S. R., Dugan, A. G., & Barr, C. H. I. (2013). Measuring factors affecting implementation of health innovations: A systematic review of structural, organizational, provider, patient, and innovation level measures. Implementation Science, 8, 20. https://doi.org/10.1186/1748-5908-8-22
Craig, T., Shepherd, G., Rinaldi, M., Smith, J., Carr, S., Preston, F. & Singh, S. (2014). Vocational rehabilitation in early psychosis: Cluster randomised trial. British Journal of Psychiatry, 205(2), 145-150. https://doi.org/10.1192/bjp.bp.113.136283
Deighton, S., & Addington, J. (2014). Exercise practices of young people at their first episode of psychosis. Schizophrenia Research, 152(1), 311-312. https://doi.org/10.1016/j.schres.2013.10.045
Dixon, L., Jones, N., Loewy, R., Perkins, D., Sale, T., Huggins, W., & Hamilton, C. (2019). Recommendations and challenges of the clinical services panel of the PhenX early psychosis working group. Psychiatric Services, 70(6), 514-517. https://doi.org/10.1176/appi.ps.201800585
Embrett, M. G., Randall, G. E., Longo, C. J., Nguyen, T., & Mulvale, G. (2015). Effectiveness of health system services and programs for youth to adult transitions in mental health care: A systematic review of academic literature. Administration and Policy in Mental Health and Mental Health Services Research, 43(2), 259-269. https://doi.org/10.1007/s10488-015-0638-9
Firth, J., Carney, R., Elliott, R., French, P., Parker, S., McIntyre, R., McPhee, J. S., & Yung, A. R. (2018). Exercise as an intervention for first-episode psychosis: A feasibility study. Early Intervention in Psychiatry, 12(3), 307-315. https://doi.org/10.1111/eip.12329
Fowler, D., Hodgekins, J., French, P., Marshall, M., Freemantle, N., McCrone, P., Everard, L., Lavis, A., Jones, P. B., Amos, T., Singh, S., Sharma, V., & Birchwood, M. (2018). Social recovery therapy in combination with early intervention services for enhancement of social recovery in patients with first-episode psychosis (supereden3): A single-blind, randomised controlled trial. The Lancet Psychiatry, 5(1), 41-50. https://doi.org/10.1016/S2215-0366(17)30476-5
Frank, L., Basch, E., Selby, J. V., & Patient-Centered Outcomes Research Institute. (2014). The PCORI perspective on patient-centered outcomes research. JAMA, 312(15), 1513-1514. https://doi.org/10.1001/jama.2014.11100
Garcia-Poole, C., Byrne, S., & Rodrigo, M. J. (2018). Youth-led activities associated with positive competence changes in a community-based program for adolescents. Child & Family Social Work, 23(4), 599-608. https://doi.org/10.1111/cfs.12450
Gross, P. H., Bailes, A. F., Horn, S. D., Hurvitz, E. A., Kean, J., Shusterman, M., For the cerebral palsy research network. (2018). Setting a patient-centred research agenda for cerebral palsy: A participatory action research initiative. Developmental Medicine & Child Neurology, 60(12), 1278-1284. https://doi.org/10.1111/dmcn.13984
Hasson, F., Keeney, S., & McKenna, H. (2000). Research guidelines for the delphi survey technique. Journal of Advanced Nursing, 32(4), 1008-1015. https://doi.org/10.1046/j.1365-2648.2000.01567.x
Hausman, A. J., Baker, C. N., Komaroff, E., Thomas, N., Guerra, T., Hohl, B. C., & Leff, S. S. (2013). Developing measures of community-relevant outcomes for violence prevention programs: A community-based participatory research approach to measurement. American Journal of Community Psychology, 52(3-4), 249-262. https://doi.org/10.1007/s10464-013-9590-6
Holland, D., & Lachicotte, W. (2007). Vygotsky, mead, and the new sociocultural studies of identity. In H. Daniels, M. Cole, & J. V. Wertsch (Eds.), Cambridge companion to vygotsky (pp. 101-135). Cambridge University Press.
Iyer, S. N., Mangala, R., Anitha, J., Thara, R., & Malla, A. K. (2011). An examination of patient-identified goals for treatment in a first-episode programme in Chennai, India. Early Intervention in Psychiatry, 5(4), 360-365. https://doi.org/10.1111/j.1751-7893.2011.00289.x
Kaplan, K., Salzer, M., & Brusilovskiy, E. (2012). Community participation as a predictor of recovery-oriented outcomes among emerging and mature adults with mental illnesses. Psychiatric Rehabilitation Journal, 35(3), 219-229. https://doi.org/10.2975/35.3.2012.219.229
Kaur, N., & Pluye, P. (2019). Delineating and operationalizing the definition of patient-oriented research: A modified e-delphi study. Journal of Patient-Centered Research and Reviews, 6(1), 7-16. https://doi.org/10.17294/2330-0698.1655
Kim, D. J., Brown, E., Reynolds, S., Geros, H., Sizer, H., Tindall, R., McGorry, P., & O'Donoghue, B. (2019). The rates and determinants of disengagement and subsequent re-engagement in young people with first-episode psychosis. Social Psychiatry and Psychiatric Epidemiology, 54(8), 945-953. https://doi.org/10.1007/s00127-019-01698-7
Lucksted, A., Essock, S. M., Stevenson, J., Mendon, S. J., Nossel, I. R., Goldman, H. H., Goldstein, A. B., & Dixon, L. B. (2015). Client views of engagement in the raise connection program for early psychosis recovery. Psychiatric Services, 66(7), 699-704. https://doi.org/10.1176/appi.ps.201400475
Martel, A., & Fuchs, D. C. (2017). Transitional age youth and mental illness-Influences on young adult outcomes. Child and Adolescent Psychiatric Clinics of North America, 26(2), xiii-xvii. https://doi.org/10.1016/j.chc.2017.01.001
Mueser, K. T., Penn, D. L., Addington, J., Brunette, M. F., Gingerich, S., Glynn, S. M., Lynde, D. W., Gottlieb, J. D., Meyer-Kalos, P., McGurk, S. R., Cather, C., Saade, S., Robinson, D. G., Schooler, N. R., Rosenheck, R. A., & Kane, J. M. (2015). The navigate program for first-episode psychosis: Rationale, overview, and description of psychosocial components. Psychiatric Services, 66(7), 680-690. https://doi.org/10.1176/appi.ps.201400413
Nasa, P., Jain, R., & Juneja, D. (2021). Delphi methodology in healthcare research: How to decide its appropriateness. World Journal of Methodology, 11(4), 116-129. https://doi.org/10.5662/wjm.v11.i4.116
Pillay, R., Lecomte, T., & Abdel-Baki, A. (2018). Factors limiting romantic relationship formation for individuals with early psychosis. Early Intervention in Psychiatry, 12(4), 645-651. https://doi.org/10.1111/eip.12353
Ramsay, C. E., Broussard, B., Goulding, S. M., Cristofaro, S., Hall, D., Kaslow, N. J., Killackey, E., Penn, D., & Compton, M. T. (2011). Life and treatment goals of individuals hospitalized for first-episode nonaffective psychosis. Psychiatry Research, 189(3), 344-348. https://doi.org/10.1016/j.psychres.2011.05.039
Rayens, M. K., & Hahn, E. J. (2000). Building consensus using the policy delphi method. Policy, Politics, & Nursing Practice, 1(4), 308-315. https://doi.org/10.1177/152715440000100409
Read, H., Roush, S., & Downing, D. (2018). Early intervention in mental health for adolescents and young adults: A systematic review. American Journal of Occupational Therapy, 72(5), 7205190040p1-7205190040p8. https://doi.org/10.5014/ajot.2018.033118
Redmond, C., Larkin, M., & Harrop, C. (2010). The personal meaning of romantic relationships for young people with psychosis. Clinical Child Psychology and Psychiatry, 15(2), 151-170. https://doi.org/10.1177/1359104509341447
Rosenblatt, A., Dixon, L., Goldman, H., George, P., Daley, T., O’Brien, J., & Bond, G. (2018). Mental health block grant ten percent set aside study: Final report. Rockville, MD: Westat.
Salzer, M. S., & Baron, R. C. (2016). Well together-A blueprint for community inclusion: Fundamental concepts, theoretical frameworks and evidence. Melbourne, Australia.
Shern, D., Neylon, K., Kazandjian, M., & Lutterman, T. (2017). Use of medicaid to finance coordinated specialty care for first episode psychosis. Alexandria, VA: National Association of State Mental Health Program Directors. Retrieved from https://www.nasmhpd.org/sites/default/files/Medicaid_brief_1.pdf.
Thomas, E. C., Snethen, G., O'Shea, A., Suarez, J., Hurford, I., & Salzer, M. S. (2020). An examination of the community participation interests of young adults with serious mental illnesses. The Journal of Behavioral Health Services & Research, 47(4), 526-543. https://doi.org/10.1007/s11414-019-09678-0
Thomas, E. C., Snethen, G., & Salzer, M. S. (2017). A developmental study of community participation of individuals with serious mental illnesses: Implications for policy and practice. American Journal of Orthopsychiatry, 87(5), 597-605. https://doi.org/10.1037/ort0000269
Townley, G., Brusilovskiy, E., & Salzer, M. S. (2017). Urban and non-urban differences in community living and participation among individuals with serious mental illnesses. Social Science & Medicine, 177, 223-230. https://doi.org/10.1016/j.socscimed.2017.01.058
Weiss-Laxer, N. S., Crandall, A., Okano, L., & Riley, A. W. (2020). Building a foundation for family health measurement in national surveys: A modified delphi expert process. Maternal and Child Health Journal, 24(3), 259-266. https://doi.org/10.1007/s10995-019-02870-w
White, D. A., Luther, L., Bonfils, K. A., & Salyers, M. P. (2015). Essential components of early intervention programs for psychosis: Available intervention services in the United States. Schizophrenia Research, 168(1), 79-83. https://doi.org/10.1016/j.schres.2015.08.020