Gaining consensus: the challenges of living with a stoma and the impact of stoma leakage.

Leakage Mental health Patient groups Skin complications Stoma

Journal

British journal of nursing (Mark Allen Publishing)
ISSN: 0966-0461
Titre abrégé: Br J Nurs
Pays: England
ID NLM: 9212059

Informations de publication

Date de publication:
24 Mar 2022
Historique:
entrez: 25 3 2022
pubmed: 26 3 2022
medline: 1 4 2022
Statut: ppublish

Résumé

People with a stoma face many unique challenges. Leakage is a significant one but is not sufficiently discussed within the wider area of health and social care. This study aimed to articulate and achieve consensus on the problems experienced by people with a stoma, particularly leakage, in the hope of encouraging conversations among patients, clinicians and policymakers on how to solve them. Output from a modified Delphi panel, consisting of patient groups, was used to create a set of calls to action, with a particular focus on the issue of leakage. Leakage has a large impact on daily life and can cause both physical and mental health difficulties. Peer support and specialist care can be offer considerable benefits in dealing with these. There are significant unmet needs for equitable access to specialist stoma care and peer support, as well as information provision for non-specialist healthcare providers. The calls to action should be implemented.

Sections du résumé

BACKGROUND UNASSIGNED
People with a stoma face many unique challenges. Leakage is a significant one but is not sufficiently discussed within the wider area of health and social care.
AIMS UNASSIGNED
This study aimed to articulate and achieve consensus on the problems experienced by people with a stoma, particularly leakage, in the hope of encouraging conversations among patients, clinicians and policymakers on how to solve them.
METHODS UNASSIGNED
Output from a modified Delphi panel, consisting of patient groups, was used to create a set of calls to action, with a particular focus on the issue of leakage.
FINDINGS UNASSIGNED
Leakage has a large impact on daily life and can cause both physical and mental health difficulties. Peer support and specialist care can be offer considerable benefits in dealing with these.
CONCLUSIONS UNASSIGNED
There are significant unmet needs for equitable access to specialist stoma care and peer support, as well as information provision for non-specialist healthcare providers. The calls to action should be implemented.

Identifiants

pubmed: 35333550
doi: 10.12968/bjon.2022.31.6.S30
doi:

Types de publication

Journal Article

Langues

eng

Pagination

S30-S39

Auteurs

Miriayi Aibibula (M)

Market Access Manager, Ostomy and Wound Care, Coloplast.

Gill Burry (G)

Market Access Programme Manager, Payers and Evidence, Coloplast.

Hannah Gagen (H)

Head of Government Affairs and Patient Advocacy, Coloplast.

Wendy Osborne (W)

Clinical Governance Lead, Coloplast.

Harry Lewis (H)

Analyst, Initiate Consultancy.

Caroline Bramwell (C)

PR and Communications Manager, Ileostomy & Internal Pouch Association UK.

Hazel Pixley (H)

Chief Executive Officer, Urostomy Association UK.

Giovanni Cinque (G)

Fundraising & Campaigns Manager, Colostomy UK.

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