Factors associated with health-related quality of life (HRQoL) deterioration in glioma patients during the progression-free survival period.

brain tumor deterioration-free-survival progressive disease time-to-deterioration

Journal

Neuro-oncology
ISSN: 1523-5866
Titre abrégé: Neuro Oncol
Pays: England
ID NLM: 100887420

Informations de publication

Date de publication:
01 12 2022
Historique:
pubmed: 12 4 2022
medline: 3 12 2022
entrez: 11 4 2022
Statut: ppublish

Résumé

Maintenance of functioning and well-being during the progression-free survival (PFS) period is important for glioma patients. This study aimed to determine whether health-related quality of life (HRQoL) can be maintained during progression-free time, and factors associated with HRQoL deterioration in this period. We included longitudinal HRQoL data from previously published clinical trials in glioma. The percentage of patients with stable HRQoL until progression was determined per scale and at the individual patient level (i.e. considering all scales simultaneously). We assessed time to a clinically relevant deterioration in HRQoL, expressed in deterioration-free survival and time-to-deterioration (the first including progression as an event). We also determined the association between sociodemographic and clinical factors and HRQoL deterioration in the progression-free period. Five thousand five hundred and thirty-nine patients with at least baseline HRQoL scores had a median time from randomization to progression of 7.6 months. Between 9-29% of the patients deteriorated before disease progression on the evaluated HRQoL scales. When considering all scales simultaneously, 47% of patients deteriorated on ≥1 scale. Median deterioration-free survival period ranged between 3.8-5.4 months, and median time-to-deterioration between 8.2-11.9 months. For most scales, only poor performance status was independently associated with clinically relevant HRQoL deterioration in the progression-free period. HRQoL was maintained in only 53% of patients in their progression-free period, and treatment was not independently associated with this deterioration in HRQoL. Routine monitoring of the patients' functioning and well-being during the entire disease course is therefore important, so that interventions can be initiated when problems are signaled.

Sections du résumé

BACKGROUND
Maintenance of functioning and well-being during the progression-free survival (PFS) period is important for glioma patients. This study aimed to determine whether health-related quality of life (HRQoL) can be maintained during progression-free time, and factors associated with HRQoL deterioration in this period.
METHODS
We included longitudinal HRQoL data from previously published clinical trials in glioma. The percentage of patients with stable HRQoL until progression was determined per scale and at the individual patient level (i.e. considering all scales simultaneously). We assessed time to a clinically relevant deterioration in HRQoL, expressed in deterioration-free survival and time-to-deterioration (the first including progression as an event). We also determined the association between sociodemographic and clinical factors and HRQoL deterioration in the progression-free period.
RESULTS
Five thousand five hundred and thirty-nine patients with at least baseline HRQoL scores had a median time from randomization to progression of 7.6 months. Between 9-29% of the patients deteriorated before disease progression on the evaluated HRQoL scales. When considering all scales simultaneously, 47% of patients deteriorated on ≥1 scale. Median deterioration-free survival period ranged between 3.8-5.4 months, and median time-to-deterioration between 8.2-11.9 months. For most scales, only poor performance status was independently associated with clinically relevant HRQoL deterioration in the progression-free period.
CONCLUSIONS
HRQoL was maintained in only 53% of patients in their progression-free period, and treatment was not independently associated with this deterioration in HRQoL. Routine monitoring of the patients' functioning and well-being during the entire disease course is therefore important, so that interventions can be initiated when problems are signaled.

Identifiants

pubmed: 35404443
pii: 6566436
doi: 10.1093/neuonc/noac097
pmc: PMC9713503
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

2159-2169

Commentaires et corrections

Type : CommentIn

Informations de copyright

© The Author(s) 2022. Published by Oxford University Press on behalf of the Society for Neuro-Oncology.

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Auteurs

Marijke B Coomans (MB)

Department of Neurology, Leiden University Medical Center, Leiden, the Netherlands.

Linda Dirven (L)

Department of Neurology, Leiden University Medical Center, Leiden, the Netherlands.
Department of Neurology, Haaglanden Medical Center, Den Haag, the Netherlands.

Neil Aaronson (N)

Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam, the Netherlands.

Brigitta G Baumert (BG)

Institute of Radiation-Oncology, Kantonsspital Graubünden, Chur, Switzerland.
Department of Radiation Oncology (MAASTRO Clinic), and GROW (School for Oncology and Developmental Biology), Maastricht University Medical Center, Maastricht, the Netherlands.

Martin van den Bent (M)

The Brain Tumor Center, Erasmus MC Cancer Institute, Rotterdam, the Netherlands.

Andrew Bottomley (A)

Quality of Life Department, European Organisation for Research and Treatment of Cancer, Brussels, Belgium.

Alba A Brandes (AA)

Department of Medical Oncology, Azienda USL-IRCCS Institute of Neurological Sciences, Bologna, Italy.

Olivier Chinot (O)

Aix-Marseille Univ, APHM, CNRS, INP, Inst Neurophysiopathol, CHU Timone, Service de Neuro-Oncologie, Marseille, France.

Corneel Coens (C)

Quality of Life Department, European Organisation for Research and Treatment of Cancer, Brussels, Belgium.

Thierry Gorlia (T)

European Organization for Research and Treatment of Cancer, Headquarters, Brussels, Belgium.

Ulrich Herrlinger (U)

Division of Clinical Neurooncology, Department of Neurology, University of Bonn Medical Center, Bonn, Germany.

Florence Keime-Guibert (F)

Groupe Hôpital Pitié-Salpetrière, Assistance Publique, Paris, France.

Annika Malmström (A)

Department of Advanced Home Care and Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden.

Francesca Martinelli (F)

Quality of Life Department, European Organisation for Research and Treatment of Cancer, Brussels, Belgium.

Roger Stupp (R)

Northwestern University, Feinberg School of Medicine, Chicago, Illinois,USA.

Andrea Talacchi (A)

Department of Neurosciences, Azienda Ospedaliera San Giovanni Addolorata , Roma, Italia.

Michael Weller (M)

Department of Neurology, University Hospital and University of Zurich, Zurich, Switzerland.

Wolfgang Wick (W)

Neurology Clinic and National Centre for Tumour Diseases, University Hospital Heidelberg, Heidelberg, Germany.
German Consortium of Translational Cancer Research (DKTK), Clinical Cooperation Unit Neurooncology, German Cancer Research Center, Heidelberg, Germany.

Jaap C Reijneveld (JC)

Department of Neurology and Brain Tumour Center Amsterdam, Amsterdam University Medical Center, Amsterdam, the Netherlands.

Martin J B Taphoorn (MJB)

Department of Neurology, Leiden University Medical Center, Leiden, the Netherlands.
Department of Neurology, Haaglanden Medical Center, Den Haag, the Netherlands.

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