Patterns of Intervention Utilization Among School-Aged Children with Autism Spectrum Disorder: Findings from a Multi-Site Research Consortium.

autism spectrum disorder child characteristics family characteristics geographical location intervention use

Journal

Research in autism spectrum disorders
ISSN: 1750-9467
Titre abrégé: Res Autism Spectr Disord
Pays: Netherlands
ID NLM: 101300021

Informations de publication

Date de publication:
Jun 2022
Historique:
entrez: 21 4 2022
pubmed: 22 4 2022
medline: 22 4 2022
Statut: ppublish

Résumé

When designing and interpreting results from clinical trials evaluating treatments for children on the autism spectrum, a complicating factor is that most children receive a range of concurrent treatments. Thus, it is important to better understand the types and hours of interventions that participants typically receive as part of standard of care, as well as to understand the child, family, and geographic factors that are associated with different patterns of service utilization. In this multi-site study, we interviewed 280 caregivers of 6-to-11-year-old school-aged children on the autism spectrum about the types and amounts of interventions their children received in the prior 6 weeks. Reported interventions were coded as "

Identifiants

pubmed: 35444715
doi: 10.1016/j.rasd.2022.101950
pmc: PMC9015686
mid: NIHMS1792667
pii:
doi:

Types de publication

Journal Article

Langues

eng

Subventions

Organisme : NICHD NIH HHS
ID : P50 HD103524
Pays : United States
Organisme : NICHD NIH HHS
ID : P50 HD105351
Pays : United States
Organisme : NIMH NIH HHS
ID : U19 MH108206
Pays : United States
Organisme : NCATS NIH HHS
ID : UL1 TR001863
Pays : United States

Déclaration de conflit d'intérêts

Conflict of Interest The authors [AS, JK, SF, MSD, JIN, CN, SW, RB, SJ, KC, CS, AN, JD] declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest. Dr. Dawson is on the Scientific Advisory Boards of Janssen Research and Development, Akili Interactive, Inc, LabCorp, Inc, Roche Pharmaceutical Company, and Tris Pharma, and is a consultant to Apple, Gerson Lehrman Group, Guidepoint Global, Inc, and is CEO of DASIO, LLC. Dr. Dawson has stock interests in Neuvana, Inc. Dr. Dawson has the following patent No. 10,912,801 and patent applications: 62,757,234, 25,628,402, and 62,757,226. Dr. Dawson has developed technology, data, and/or products that have been licensed to Apple, Inc. and Cryocell, Inc. and Dawson and Duke University have benefited financially. James C. McPartland consults with Customer Value Partners, Bridgebio, Determined Health, and BlackThorn Therapeutics, has received research funding from Janssen Research and Development, serves on the Scientific Advisory Boards of Pastorus and Modern Clinics, and receives royalties from Guilford Press, Lambert, and Springer. Frederick Shic consults for Janssen Research and Development, Roche Pharmaceuticals, and BlackThorn Therapeutics.

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Auteurs

Aksheya Sridhar (A)

Boston Children's Hospital/Harvard Medical School, Boston, MA, USA.

Jocelyn Kuhn (J)

Boston Medical Center, Boston, MA, USA.

Susan Faja (S)

Boston Children's Hospital/Harvard Medical School, Boston, MA, USA.

Maura Sabatos-DeVito (M)

Department of Psychiatry and Behavioral Sciences, Duke Center for Autism and Brain Development, Duke University, Durham, NC, USA.

Julia I Nikolaeva (JI)

Boston Children's Hospital/Harvard Medical School, Boston, MA, USA.

Geraldine Dawson (G)

Department of Psychiatry and Behavioral Sciences, Duke Center for Autism and Brain Development, Duke University, Durham, NC, USA.

Charles A Nelson (CA)

Boston Children's Hospital/Harvard Medical School, Boston, MA, USA.

Sara J Webb (SJ)

Center for Child Health, Behavior and Development, Seattle Children's Research Institute, Seattle, WA, USA.
Department of Pediatrics, University of Washington School of Medicine, Seattle WA, USA.

Raphael Bernier (R)

Department of Pediatrics, University of Washington School of Medicine, Seattle WA, USA.

Shafali Jeste (S)

University of California, Los Angeles, CA, USA.

Katarzyna Chawarska (K)

Yale Child Study Center, New Haven, CT, USA.

Catherine A Sugar (CA)

University of California, Los Angeles, CA, USA.

Frederick Shic (F)

Center for Child Health, Behavior and Development, Seattle Children's Research Institute, Seattle, WA, USA.
Department of Pediatrics, University of Washington School of Medicine, Seattle WA, USA.

Adam Naples (A)

Yale Child Study Center, New Haven, CT, USA.

James Dziura (J)

Yale Center for Analytical Sciences, New Haven, CT USA.

James C McPartland (JC)

Yale Child Study Center, New Haven, CT, USA.

Classifications MeSH