Medical and Surgical Care of Patients With Mesothelioma and Their Relatives Carrying Germline BAP1 Mutations.


Journal

Journal of thoracic oncology : official publication of the International Association for the Study of Lung Cancer
ISSN: 1556-1380
Titre abrégé: J Thorac Oncol
Pays: United States
ID NLM: 101274235

Informations de publication

Date de publication:
07 2022
Historique:
received: 15 12 2021
revised: 23 03 2022
accepted: 31 03 2022
pubmed: 25 4 2022
medline: 29 6 2022
entrez: 24 4 2022
Statut: ppublish

Résumé

The most common malignancies that develop in carriers of BAP1 germline mutations include diffuse malignant mesothelioma, uveal and cutaneous melanoma, renal cell carcinoma, and less frequently, breast cancer, several types of skin carcinomas, and other tumor types. Mesotheliomas in these patients are significantly less aggressive, and patients require a multidisciplinary approach that involves genetic counseling, medical genetics, pathology, surgical, medical, and radiation oncology expertise. Some BAP1 carriers have asymptomatic mesothelioma that can be followed by close clinical observation without apparent adverse outcomes: they may survive many years without therapy. Others may grow aggressively but very often respond to therapy. Detecting BAP1 germline mutations has, therefore, substantial medical, social, and economic impact. Close monitoring of these patients and their relatives is expected to result in prolonged life expectancy, improved quality of life, and being cost-effective. The co-authors of this paper are those who have published the vast majority of cases of mesothelioma occurring in patients carrying inactivating germline BAP1 mutations and who have studied the families affected by the BAP1 cancer syndrome for many years. This paper reports our experience. It is intended to be a source of information for all physicians who care for patients carrying germline BAP1 mutations. We discuss the clinical presentation, diagnostic and treatment challenges, and our recommendations of how to best care for these patients and their family members, including the potential economic and psychosocial impact.

Identifiants

pubmed: 35462085
pii: S1556-0864(22)00192-7
doi: 10.1016/j.jtho.2022.03.014
pmc: PMC9233126
mid: NIHMS1809061
pii:
doi:

Substances chimiques

BAP1 protein, human 0
Tumor Suppressor Proteins 0
Ubiquitin Thiolesterase EC 3.4.19.12

Types de publication

Journal Article Review Research Support, N.I.H., Extramural

Langues

eng

Sous-ensembles de citation

IM

Pagination

873-889

Subventions

Organisme : NCI NIH HHS
ID : R01 CA198138
Pays : United States
Organisme : NCI NIH HHS
ID : P30 CA008748
Pays : United States
Organisme : NCI NIH HHS
ID : R01 CA237235
Pays : United States
Organisme : NCI NIH HHS
ID : U01 CA214195
Pays : United States
Organisme : NIEHS NIH HHS
ID : R01 ES030948
Pays : United States

Informations de copyright

Copyright © 2022 International Association for the Study of Lung Cancer. All rights reserved.

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Auteurs

Michele Carbone (M)

University of Hawaii Cancer Center, Honolulu, Hawaii. Electronic address: mcarbone@cc.hawaii.edu.

Harvey I Pass (HI)

Department of Cardiothoracic Surgery, New York University Langone Medical Center, New York, New York.

Guntulu Ak (G)

Eskisehir Osmangazi University Lung and Pleural Cancers Research and Clinical Center, Eskisehir, Turkey.

H Richard Alexander (HR)

Rutgers Cancer Institute, Rutgers Robert Wood Johnson Medical School, New Brunswick, New Jersey.

Paul Baas (P)

Department of Thoracic Oncology, The Netherlands Cancer Institute, Amsterdam, The Netherlands; Leiden University Medical Center, Leiden, The Netherlands.

Francine Baumann (F)

University of Hawaii Cancer Center, Honolulu, Hawaii.

Andrew M Blakely (AM)

Surgical Oncology Program, National Cancer Institute, Bethesda, Maryland.

Raphael Bueno (R)

Division of Thoracic and Cardiac Surgery, Brigham and Women's Hospital and Harvard Medical School, Boston, Massachusetts.

Aleksandra Bzura (A)

Leicester Cancer Research Centre, Department of Genetics & Genome Biology, University of Leicester, Leicester, UK.

Giuseppe Cardillo (G)

Unit of Thoracic Surgery, Azienda Ospedaliera San Camillo Forlanini, Roma, Italy.

Jane E Churpek (JE)

Division of Hematology, Oncology, and Palliative Care, Carbone Cancer Center and School of Medicine and Public Health, The University of Wisconsin-Madison, Madison, Wisconsin.

Irma Dianzani (I)

Department of Health Sciences, Università del Piemonte Orientale, Novara, Italy.

Assunta De Rienzo (A)

Division of Thoracic and Cardiac Surgery, Brigham and Women's Hospital and Harvard Medical School, Boston, Massachusetts.

Mitsuru Emi (M)

Department of Genetics, Hyogo College of Medicine, Nishinomiya, Hyogo, Japan.

Salih Emri (S)

Department of Chest Diseases, Medicana Hospital Kadikoy, Istanbul, Turkey.

Emanuela Felley-Bosco (E)

Laboratory of Molecular Oncology, Division of Thoracic Surgery, University Hospital Zürich, Zürich, Switzerland.

Dean A Fennell (DA)

Leicester Cancer Research Centre, Department of Genetics & Genome Biology, University of Leicester, Leicester, UK.

Raja M Flores (RM)

Department of Thoracic Surgery, Icahn School of Medicine at Mount Sinai Health System, New York, New York.

Federica Grosso (F)

Mesothelioma Unit, Azienda Ospedaliera SS Antonio e Biagio e Cesare Arrigo, Alessandria, Italy.

Nicholas K Hayward (NK)

QIMR Berghofer Medical Research Institute, Brisbane, Queensland, Australia.

Mary Hesdorffer (M)

Mesothelioma Applied Research Foundation, Washington DC.

Chuong D Hoang (CD)

Thoracic Surgery Branch, National Cancer Institute, National Institutes of Health, Bethesda, Maryland.

Peter A Johansson (PA)

QIMR Berghofer Medical Research Institute, Brisbane, Queensland, Australia.

Hedy L Kindler (HL)

Section of Hematology/Oncology, University of Chicago, Chicago, Illinois.

Muaiad Kittaneh (M)

Department of Oncology, Loyola University Chicago, Maywood, Illinois.

Thomas Krausz (T)

Department of Pathology, University of Chicago, Chicago, Illinois.

Aaron Mansfield (A)

Division of Medical Oncology and Precision Cancer Therapeutics, Mayo Clinic, Rochester, Minnesota.

Muzaffer Metintas (M)

Eskisehir Osmangazi University Lung and Pleural Cancers Research and Clinical Center, Eskisehir, Turkey.

Michael Minaai (M)

University of Hawaii Cancer Center, Honolulu, Hawaii.

Luciano Mutti (L)

Center for Biotechnology, Sbarro Institute for Cancer Research and Molecular Medicine, College of Science and Technology, Temple University, Philadelphia, Pennsylvania.

Maartje Nielsen (M)

Department of Clinical Genetics, LUMC, Leiden, The Netherlands.

Kenneth O'Byrne (K)

Centre for Genomics and Personalised Health, Translational Research Institute, Queensland University of Technology (QUT), Brisbane, Australia.

Isabelle Opitz (I)

Laboratory of Molecular Oncology, Division of Thoracic Surgery, University Hospital Zürich, Zürich, Switzerland.

Sandra Pastorino (S)

University of Hawaii Cancer Center, Honolulu, Hawaii.

Francesca Pentimalli (F)

Department of Medicine and Surgery, LUM University "Giuseppe DeGennaro," Casamassima, Bari, Italy.

Marc de Perrot (M)

Department of Surgery, Division of Thoracic Surgery, Toronto General Hospital, Toronto, Ontario, Canada; Department of Immunology, Division of Thoracic Surgery, Toronto General Hospital, Toronto, Ontario, Canada.

Antonia Pritchard (A)

Department of Genetics and Immunology, University of the Highlands and Islands, Inverness, Scotland, UK.

Robert Taylor Ripley (RT)

Department of Surgery, Division of General Thoracic Surgery, The Michael E. DeBakey Department of Surgery, Baylor College of Medicine, Houston, Texas.

Bruce Robinson (B)

National Centre for Asbestos Related Disease, University of Western Australia, School of Medicine and Pharmacology, Nedlands, Western Australia, Australia.

Valerie Rusch (V)

Department of Surgery, Memorial Sloan Kettering Cancer Center, New York, New York.

Emanuela Taioli (E)

Institute for Translational Epidemiology, Icahn School of Medicine at Mount Sinai Health System, New York, New York.

Yasutaka Takinishi (Y)

University of Hawaii Cancer Center, Honolulu, Hawaii.

Mika Tanji (M)

University of Hawaii Cancer Center, Honolulu, Hawaii.

Anne S Tsao (AS)

Department of Thoracic/Head and Neck Medical Oncology, Division of Cancer Medicine, The University of Texas MD Anderson Cancer Center, Houston, Texas.

A Murat Tuncer (AM)

International Prevention Research Institute, Lyon, France.

Sebastian Walpole (S)

QIMR Berghofer Medical Research Institute, Brisbane, Queensland, Australia.

Andrea Wolf (A)

New York Mesothelioma Program and Department of Thoracic Surgery, Icahn School of Medicine at Mount Sinai Health System, New York, New York.

Haining Yang (H)

University of Hawaii Cancer Center, Honolulu, Hawaii.

Yoshie Yoshikawa (Y)

Department of Genetics, Hyogo College of Medicine, Nishinomiya, Hyogo, Japan.

Alicia Zolondick (A)

University of Hawaii Cancer Center, Honolulu, Hawaii.

David S Schrump (DS)

Thoracic Surgery Branch, National Cancer Institute, National Institutes of Health, Bethesda, Maryland.

Raffit Hassan (R)

Thoracic and GI Malignancies Branch, Center for Cancer Research, National Cancer Institute, Bethesda, Maryland.

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