Lived experiences of people with or at risk for aortic dissection: A qualitative assessment.
Journal
Seminars in vascular surgery
ISSN: 1558-4518
Titre abrégé: Semin Vasc Surg
Pays: United States
ID NLM: 8809602
Informations de publication
Date de publication:
Mar 2022
Mar 2022
Historique:
received:
22
12
2021
revised:
11
02
2022
accepted:
11
02
2022
entrez:
2
5
2022
pubmed:
3
5
2022
medline:
6
5
2022
Statut:
ppublish
Résumé
Aortic dissection (AD) is a life-changing event that is often accompanied by a loss of normal quality of life. Survivors of AD go on to have a chronic disease that requires lifestyle modification, medical management, and surgical repair of the aorta. Clinical care includes multiple disciplines, health care settings, and often different geographic locations. This qualitative assessment examined the experiences of people with and at risk for AD. The following four themes emerged: "unnecessary drama" at diagnosis, unmet needs for information and support, the burden of self-advocacy and care coordination, and living with unaddressed mental health impacts. Our findings inform recommendations to advance patient-centered care delivery for individuals with and at risk for AD, improving communication of timely and relevant information, and an approach to care that acknowledges the whole person in clinical decision making.
Identifiants
pubmed: 35501045
pii: S0895-7967(22)00008-4
doi: 10.1053/j.semvascsurg.2022.02.008
pii:
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
78-87Investigateurs
Melanie Case
(M)
Novelett E Cotter
(NE)
Carmen C David
(CC)
Mark Fasano
(M)
Richard Goldenberg
(R)
Jake Howitt
(J)
Timo T Söderlund
(TT)
Debra Trotter
(D)
Asaf Rabin
(A)
Mattie Boehler-Tatman
(M)
Melissa L Russo
(ML)
Laura Marie Drudi
(LM)
Laura L Marks
(LL)
Maisoon D Yousif
(MD)
Tabea Hoffstaetter
(T)
Ella Taubenfeld
(E)
Sreekanth Vemulapalli
(S)
Chrisanne S Campos
(CS)
Lindsey Rusche
(L)
Robert C F Pena
(RCF)
Firas F Mussa
(FF)
Gretchen MacCarrick
(G)
Earl Goldsborough
(E)
Christeen Samuel
(C)
Lillian Xu
(L)
Nicolas J Mouawad
(NJ)
Eanas S Yassa
(ES)
Xiaoyi Teng
(X)
Amani Politano
(A)
Jesse Teindl
(J)
Lara Bloom
(L)
Rebecca Gluck
(R)
Meredith Ford O'Neal
(MF)
Josephine Grima
(J)
Eileen Masciale
(E)
Takeyoshi Ota
(T)
Katelyn Wright
(K)
Alan J Hakim
(AJ)
Gareth Owens
(G)
George J Arnaoutakis
(GJ)
Dejah Judelson
(D)
Mario D'Oria
(M)
Lurdes Del Rio-Sola
(LD)
Mark Ajalat
(M)
Marvin Chau
(M)
Stephanie D Talutis
(SD)
Karen Woo
(K)
Max V Wohlauer
(MV)
JeniannA Yi
(J)
Kim A Eagle
(KA)
Marion A Hofmann Bowman
(MAH)
Eva Kline-Rogers Ms
(EK)
Hyein Kim
(H)
Claudine Henoud
(C)
Scott Damrauer
(S)
Emilia Krol
(E)
Rana O Afifi
(RO)
Alana C Cecchi
(AC)
Madeline Drake
(M)
Anthony Estrera
(A)
Avery M Hebert
(AM)
Dianna M Milewicz
(DM)
Siddharth K Prakash
(SK)
Aaron W Roberts
(AW)
Harleen Sandhu
(H)
Akili Smith-Washington
(A)
Akiko Tanaka
(A)
Jacob Watson
(J)
Myra Ahmad
(M)
Catherine M Albright
(CM)
Christopher R Burke
(CR)
Peter H Byers
(PH)
L'Oreal Kennedy
(L)
Sarah O Lawrence
(SO)
Jenney R Lee
(JR)
Jonathan Medina
(J)
Thamanna Nishath
(T)
Julie Pham
(J)
Courtney Segal
(C)
Sherene Shalhub
(S)
Michael Soto
(M)
Linell Catalan
(L)
Megan Patterson
(M)
Nicole Ilonzo
(N)
Informations de copyright
Copyright © 2022 The Author(s). Published by Elsevier Inc. All rights reserved.