Conceptualizing impact in community-based participatory action research to engage communities in end-of-life issues.

community-based end-of-life health-promoting palliative care impact participatory action research

Journal

Palliative care and social practice
ISSN: 2632-3524
Titre abrégé: Palliat Care Soc Pract
Pays: United States
ID NLM: 101754997

Informations de publication

Date de publication:
2022
Historique:
received: 02 11 2021
accepted: 25 03 2022
entrez: 16 5 2022
pubmed: 17 5 2022
medline: 17 5 2022
Statut: epublish

Résumé

A health promotion approach to end-of-life (EoL) care is gaining traction internationally. However, there is a lack of evaluations of the impact of this approach, particularly regarding community-based initiatives. Conceptualizations of impact in participatory action research (PAR) may contribute to understanding ways in which impact can be investigated in community-based health promotion approaches to EoL issues. We aim to investigate impact and the process of impact development in our community-based PAR project, Studio DöBra, a Swedish health promotion initiative to engage communities in EoL issues. We do this through a qualitative framework analysis expanding on Banks We present a model of impact development consisting of impact on individual and group development, action-oriented impact, and strategy-oriented impact; ways they relate to and evolve from one another; and how they may be affected by contextual influences. Besides contributing to conceptualizations of impact in PAR, findings contribute a community perspective to the limited literature investigating the impact of health promotion initiatives related to EoL issues.

Sections du résumé

Background UNASSIGNED
A health promotion approach to end-of-life (EoL) care is gaining traction internationally. However, there is a lack of evaluations of the impact of this approach, particularly regarding community-based initiatives. Conceptualizations of impact in participatory action research (PAR) may contribute to understanding ways in which impact can be investigated in community-based health promotion approaches to EoL issues. We aim to investigate impact and the process of impact development in our community-based PAR project, Studio DöBra, a Swedish health promotion initiative to engage communities in EoL issues.
Methods UNASSIGNED
We do this through a qualitative framework analysis expanding on Banks
Findings UNASSIGNED
We present a model of impact development consisting of impact on individual and group development, action-oriented impact, and strategy-oriented impact; ways they relate to and evolve from one another; and how they may be affected by contextual influences.
Conclusion UNASSIGNED
Besides contributing to conceptualizations of impact in PAR, findings contribute a community perspective to the limited literature investigating the impact of health promotion initiatives related to EoL issues.

Identifiants

pubmed: 35573090
doi: 10.1177/26323524221095107
pii: 10.1177_26323524221095107
pmc: PMC9092577
doi:

Types de publication

Journal Article

Langues

eng

Pagination

26323524221095107

Informations de copyright

© The Author(s), 2022.

Déclaration de conflit d'intérêts

Conflict of interest statement: The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

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Auteurs

Max Kleijberg (M)

Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Alfred Nobels Allé 23, Flemingsberg, 14183 Stockholm, Sweden.

Rebecca Hilton (R)

Research Centre, Stockholm University of the Arts, Stockholm, Sweden.

Beth Maina Ahlberg (BM)

Skaraborg Institute for Research and Development, Skövde, Sweden.

Carol Tishelman (C)

Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden.

Classifications MeSH