Communication about Alzheimer's disease and research among American Indians and Alaska Natives.

Alzheimer's disease Indigenous communication dementia education perception

Journal

Alzheimer's & dementia (New York, N. Y.)
ISSN: 2352-8737
Titre abrégé: Alzheimers Dement (N Y)
Pays: United States
ID NLM: 101650118

Informations de publication

Date de publication:
2022
Historique:
received: 24 02 2022
revised: 05 04 2022
accepted: 13 04 2022
entrez: 20 5 2022
pubmed: 21 5 2022
medline: 21 5 2022
Statut: epublish

Résumé

American Indian and Alaska Native (AI/AN) people infrequently participate in Alzheimer's disease (AD) research, despite the rapidly increasing population of AI/AN people aged 65 and older. We surveyed 320 adults who identified as AI/AN at two Native-focused events and used ordinary least squares regression and logistic regression models to test associations between demographic factors and perceived risk of AD, knowledge about AD, and willingness to participate in research, along with preferred source of AD information. Willingness to participate in research was highest among those living in a city versus reservation and associated with perceived personal risk for AD. Health professionals and the internet were preferred sources of information about AD. These hypothesis-generating results provide insight into perceptions of AD and willingness to participate in research. Conclusions could inform development of AD recruitment strategies for AI/ANs and influence participation in AD research.

Identifiants

pubmed: 35592690
doi: 10.1002/trc2.12302
pii: TRC212302
pmc: PMC9093044
doi:

Types de publication

Journal Article

Langues

eng

Pagination

e12302

Subventions

Organisme : NIA NIH HHS
ID : K01 AG066063
Pays : United States
Organisme : NIA NIH HHS
ID : P30 AG066509
Pays : United States
Organisme : NIA NIH HHS
ID : P50 AG005136
Pays : United States

Informations de copyright

© 2022 The Authors. Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring published by Wiley Periodicals, LLC on behalf of Alzheimer's Association.

Déclaration de conflit d'intérêts

The authors declare that there are no conflicts of interest.

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Auteurs

Amanda D Boyd (AD)

The Edward R. Murrow College of Communication Washington State University Pullman Washington USA.
Institute for Research and Education to Advance Community Health Washington State University Seattle Washington USA.

Ashley F Railey (AF)

Institute for Research and Education to Advance Community Health Washington State University Seattle Washington USA.
Department of Sociology Indiana University Bloomington Indiana USA.

Alex W Kirkpatrick (AW)

The Edward R. Murrow College of Communication Washington State University Pullman Washington USA.

Ying-Chia Hsu (YC)

The Edward R. Murrow College of Communication Washington State University Pullman Washington USA.

Clemma Muller (C)

Institute for Research and Education to Advance Community Health Washington State University Seattle Washington USA.

Dedra Buchwald (D)

Institute for Research and Education to Advance Community Health Washington State University Seattle Washington USA.

Classifications MeSH