Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementation.
Diversity and Inclusion; Fairness; Reciprocity; Collaboration; Global; Quality.
Engagement and involvement; Genomics; Trust
Equality
Journal
Wellcome open research
ISSN: 2398-502X
Titre abrégé: Wellcome Open Res
Pays: England
ID NLM: 101696457
Informations de publication
Date de publication:
2021
2021
Historique:
accepted:
13
10
2021
entrez:
20
5
2022
pubmed:
21
5
2022
medline:
21
5
2022
Statut:
epublish
Résumé
Genomic science is increasingly central to the provision of health care. Producing and applying robust genomics knowledge is a complex endeavour in which no single individual, profession, discipline or community holds all the answers. Engagement and involvement of diverse stakeholders can support alignment of societal and scientific interests, understandings and perspectives and promises better science and fairer outcomes. In this context we argue for F.A.I.R.E.R. data and data use that is Findable, Accessible, Interoperable, Reproducible,
Identifiants
pubmed: 35592835
doi: 10.12688/wellcomeopenres.17233.1
pmc: PMC9086526
doi:
Types de publication
Journal Article
Langues
eng
Pagination
311Subventions
Organisme : Medical Research Council
ID : MR/N01104X/1
Pays : United Kingdom
Informations de copyright
Copyright: © 2021 Murtagh MJ et al.
Déclaration de conflit d'intérêts
Competing interests: MJM is a former co-lead and ESD and YJ are current co-leads of the Regulatory and Ethics Work Stream of GA4GH. MJM is a member of Wellcome’s Independent Review Panel.
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