Establishing a database of patients with diabetes and an interest in research participation.


Journal

The New Zealand medical journal
ISSN: 1175-8716
Titre abrégé: N Z Med J
Pays: New Zealand
ID NLM: 0401067

Informations de publication

Date de publication:
06 05 2022
Historique:
entrez: 21 6 2022
pubmed: 22 6 2022
medline: 24 6 2022
Statut: epublish

Résumé

To establish interest in medical research and student training, based on demographics of those attending public-funded diabetes services and types of research. Patients who attended the Auckland Diabetes Centre (ADC) between July 2018 and July 2019 were invited via text message (SMS) to register their interest in being contacted for future health research projects and medical training. Consenting adults were enrolled in the Auckland Diabetes Centre Volunteer Database (ADCVD) and sent a survey on the acceptability of various types of research and factors influencing participation. Relationships between ADCVD enrolment and other variables were determined using Fisher's exact test. Qualitative data were coded to generate key themes using an inductive approach. Of 2,884 patients contacted, 527 were enrolled in the ADCVD (response rate: 18.3%); and of these, 176 completed surveys (response rate: 33.3%). Most respondents were NZ European (n=92, 52.3%), male (n=125, 70.6%), and from the least deprived areas (n=35, 19.9%). The type of research did not affect interest. Motivations to participate centred around a hope to improve their own diabetes and that of future generations. SMS-based recruitment from a diabetes clinic results in modest interest in participation in teaching and research from predominantly those of NZ European ethnicity and living in areas of least socio-economic deprivation.

Identifiants

pubmed: 35728217

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

55-62

Déclaration de conflit d'intérêts

Nil.

Auteurs

Ry Yves Tweedie-Cullen (RY)

Research Fellow, School of Medicine, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand.

Audrey Tay (A)

Dietitian, School of Medicine, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand; Auckland Diabetes Centre, Greenlane Clinical Centre, Auckland District Health Board, Auckland, New Zealand.

Yiping Zou (Y)

Research Assistant, School of Medicine, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand.

Rebecca Brandon (R)

Research Fellow, School of Medicine, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand.

Ryan Yeu (R)

Research Fellow, School of Medicine, Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand.

Stacey Ruru (S)

Research Assistant, School of Medicine, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand.

Holly Carmichael (H)

Patient Administration Co-ordinator, Auckland Diabetes Centre, Greenlane Clinical Centre, Auckland District Health Board, Auckland, New Zealand.

Ole Schmiedel (O)

Clinical Service Director, Auckland Diabetes Centre, Greenlane Clinical Centre, Auckland District Health Board, Auckland, New Zealand.

Rinki Murphy (R)

Associate Professor, School of Medicine, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand; Consultant Diabetologist, Auckland Diabetes Centre, Greenlane Clinical Centre, Auckland District Health Board, Auckland, New Zealand.

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Classifications MeSH