The use of formal care for dementia from a professional perspective: a scoping review.
Access
Dementia
Formal care
Health and social care professionals
Influencing aspects
Journal
BMC health services research
ISSN: 1472-6963
Titre abrégé: BMC Health Serv Res
Pays: England
ID NLM: 101088677
Informations de publication
Date de publication:
25 Jun 2022
25 Jun 2022
Historique:
received:
09
03
2022
accepted:
16
06
2022
entrez:
25
6
2022
pubmed:
26
6
2022
medline:
29
6
2022
Statut:
epublish
Résumé
The progressive character of dementia usually leads to a continuously increasing need for support. There is some evidence of late use of professional support during the disease course. We aim to provide an overview of aspects influencing access and use of formal care in dementia from the perspective of health and social care professionals. Additionally, the perspectives of professionals and people with dementia/informal carers will be compared. We conducted a scoping review with a systematic literature search in Medline via Ovid in January 2019 and updated this in April 2020 and in May 2021. Publications were considered eligible when focusing on influencing aspects of the use of formal care or support for people with dementia in an outpatient setting from the perspective of health professionals. Included publications were critically appraised using the Mixed Method Appraisal Tool. We identified aspects of access to and use of formal care and support services. A consultation exercise with three specialised trained dementia care nurses was conducted to validate our results. We included 29 studies: n = 20 qualitative, n = 6 quantitative-descriptive, n = 3 mixed-methods. Various support services were identified, but a focus was on services for diagnostic and treatment of dementia. A wide range of influencing aspects (n = 15) describe the access to and use of formal care services. Aspects related to the complexity and structure of the healthcare system and the competence of professionals were frequently addressed. Second, attitudes and expectations of professionals, and experiences with people with dementia and their informal carers were identified. The dementia care nurses highlighted the importance of coordinated care to enhance dementia-specific competencies. Health and social care professionals still describe barriers in accessing and using formal care due to various influences. Ways to improve access to and use of professional support in dementia should consider individual and system-level activities, as well as overarching aspects. Important topics are therefore education and training of professionals and coordinated dementia-specific care to provide adequate support for people with dementia and their relatives. Several professions may be involved in this increasingly important field, e.g., nurses with a dementia-specific training like dementia care nurses.
Sections du résumé
BACKGROUND AND OBJECTIVES
OBJECTIVE
The progressive character of dementia usually leads to a continuously increasing need for support. There is some evidence of late use of professional support during the disease course. We aim to provide an overview of aspects influencing access and use of formal care in dementia from the perspective of health and social care professionals. Additionally, the perspectives of professionals and people with dementia/informal carers will be compared.
METHODS
METHODS
We conducted a scoping review with a systematic literature search in Medline via Ovid in January 2019 and updated this in April 2020 and in May 2021. Publications were considered eligible when focusing on influencing aspects of the use of formal care or support for people with dementia in an outpatient setting from the perspective of health professionals. Included publications were critically appraised using the Mixed Method Appraisal Tool. We identified aspects of access to and use of formal care and support services. A consultation exercise with three specialised trained dementia care nurses was conducted to validate our results.
RESULTS
RESULTS
We included 29 studies: n = 20 qualitative, n = 6 quantitative-descriptive, n = 3 mixed-methods. Various support services were identified, but a focus was on services for diagnostic and treatment of dementia. A wide range of influencing aspects (n = 15) describe the access to and use of formal care services. Aspects related to the complexity and structure of the healthcare system and the competence of professionals were frequently addressed. Second, attitudes and expectations of professionals, and experiences with people with dementia and their informal carers were identified. The dementia care nurses highlighted the importance of coordinated care to enhance dementia-specific competencies.
CONCLUSIONS
CONCLUSIONS
Health and social care professionals still describe barriers in accessing and using formal care due to various influences. Ways to improve access to and use of professional support in dementia should consider individual and system-level activities, as well as overarching aspects. Important topics are therefore education and training of professionals and coordinated dementia-specific care to provide adequate support for people with dementia and their relatives. Several professions may be involved in this increasingly important field, e.g., nurses with a dementia-specific training like dementia care nurses.
Identifiants
pubmed: 35752801
doi: 10.1186/s12913-022-08229-2
pii: 10.1186/s12913-022-08229-2
pmc: PMC9233851
doi:
Types de publication
Journal Article
Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
825Informations de copyright
© 2022. The Author(s).
Références
Arch Gerontol Geriatr. 2021 Nov-Dec;97:104471
pubmed: 34289415
Can Geriatr J. 2014 Sep 05;17(3):95-102
pubmed: 25232368
BMC Health Serv Res. 2017 Aug 3;17(1):518
pubmed: 28774307
Can J Aging. 2021 Sep;40(3):436-450
pubmed: 32631471
Geriatrics (Basel). 2016 Dec 27;2(1):
pubmed: 31011012
Am J Geriatr Psychiatry. 2010 Jul;18(7):576-85
pubmed: 20593538
Lancet. 2020 Apr 11;395(10231):1190-1191
pubmed: 32240625
J Alzheimers Dis. 2019;71(1):45-55
pubmed: 31322558
Nurs Stand. 2015 May 13;29(37):37-42
pubmed: 25967445
Res Synth Methods. 2014 Dec;5(4):371-85
pubmed: 26052958
BMC Geriatr. 2017 Sep 11;17(1):211
pubmed: 28893181
Dement Geriatr Cogn Dis Extra. 2019 Oct 01;9(3):352-361
pubmed: 31616459
Dementia (London). 2019 Oct-Nov;18(7-8):3113-3129
pubmed: 29649908
BMC Health Serv Res. 2020 Feb 24;20(1):140
pubmed: 32093699
J Cross Cult Gerontol. 2014 Mar;29(1):69-86
pubmed: 24443007
Int Rev Psychiatry. 2018 Dec;30(6):272-291
pubmed: 30810424
Health Bull (Edinb). 1996 Jan;54(1):32-6
pubmed: 8820227
Int Psychogeriatr. 2020 Oct;32(10):1157-1160
pubmed: 32393407
Int Psychogeriatr. 2014 Feb;26(2):247-56
pubmed: 24152974
Rev Educ Res. 2017 Oct;87(5):966-1002
pubmed: 28989194
BMC Health Serv Res. 2015 May 28;15:208
pubmed: 26017697
Alzheimers Dement. 2010 Nov;6(6):482-93
pubmed: 21044778
BMC Geriatr. 2020 Sep 9;20(1):333
pubmed: 32900360
Int Psychogeriatr. 2017 Nov;29(11):1785-1800
pubmed: 28756788
Gesundheitswesen. 2019 Apr;81(4):319-324
pubmed: 28666282
Front Med (Lausanne). 2020 Nov 25;7:600586
pubmed: 33324664
Can J Aging. 2018 Dec;37(4):390-399
pubmed: 30378533
Aging Clin Exp Res. 2007 Oct;19(5):356-63
pubmed: 18007113
BMC Med Res Methodol. 2013 Mar 23;13:48
pubmed: 23522333
BMC Health Serv Res. 2016 Aug 23;16(1):423
pubmed: 27550084
Dementia (London). 2020 Nov;19(8):2702-2713
pubmed: 31167555
J Gerontol B Psychol Sci Soc Sci. 2022 Feb 3;77(2):396-406
pubmed: 33914086
BMC Health Serv Res. 2017 Nov 13;17(1):717
pubmed: 29132353
J Rural Med. 2017 May;12(1):28-32
pubmed: 28593014
Int J Geriatr Psychiatry. 2000 Aug;15(8):758-61
pubmed: 10960890
Int J Environ Res Public Health. 2019 Dec 05;16(24):
pubmed: 31817315
Int J Circumpolar Health. 2017;76(1):1328962
pubmed: 28587573
Dementia (London). 2018 Jan;17(1):110-125
pubmed: 26915714
Z Evid Fortbild Qual Gesundhwes. 2018 Dec;139:17-27
pubmed: 30477972
Worldviews Evid Based Nurs. 2016 Apr;13(2):118-23
pubmed: 26821833
Swiss Med Wkly. 2018 Dec 21;148:w14695
pubmed: 30576570
Implement Sci. 2010 Sep 20;5:69
pubmed: 20854677
Rural Remote Health. 2014;14(3):2747
pubmed: 25081857
Prim Health Care Res Dev. 2014 Jan;15(1):104-10
pubmed: 23552172
J Aging Res. 2012;2012:590724
pubmed: 22132332
Health Soc Care Community. 2003 Sep;11(5):387-96
pubmed: 14498835
J Am Acad Nurse Pract. 2008 Aug;20(8):423-8
pubmed: 18786017
J Clin Nurs. 2022 Jul;31(13-14):1850-1863
pubmed: 33010066
Am J Geriatr Psychiatry. 2020 Mar;28(3):320-330
pubmed: 31466897
BMC Health Serv Res. 2019 Feb 1;19(1):88
pubmed: 30709345
Neurol Sci. 2020 Aug;41(8):1977-1979
pubmed: 32556746
Stud Health Technol Inform. 2020 Jun 23;271:224-231
pubmed: 32578567
BMC Geriatr. 2018 Jun 4;18(1):131
pubmed: 29866102
Int J Geriatr Psychiatry. 2019 Dec;34(12):1758-1764
pubmed: 31389087
Home Health Care Serv Q. 2009;28(1):1-23
pubmed: 19266368
Gerontol Geriatr Educ. 2021 Jan-Mar;42(1):114-125
pubmed: 32420824
J Gen Intern Med. 2007 Nov;22(11):1487-92
pubmed: 17823840