Clinical, biochemical and genetic characteristics of MOGS-CDG: a rare congenital disorder of glycosylation.

central nervous system diseases diagnosis glycomics human genetics sequence analysis, DNA

Journal

Journal of medical genetics
ISSN: 1468-6244
Titre abrégé: J Med Genet
Pays: England
ID NLM: 2985087R

Informations de publication

Date de publication:
05 Jul 2022
Historique:
received: 21 10 2021
accepted: 18 04 2022
pmc-release: 05 01 2024
entrez: 5 7 2022
pubmed: 6 7 2022
medline: 6 7 2022
Statut: aheadofprint

Résumé

To summarise the clinical, molecular and biochemical phenotype of mannosyl-oligosaccharide glucosidase-related congenital disorders of glycosylation (MOGS-CDG), which presents with variable clinical manifestations, and to analyse which clinical biochemical assay consistently supports diagnosis in individuals with bi-allelic variants in Phenotypic characterisation was performed through an international and multicentre collaboration. Genetic testing was done by exome sequencing and targeted arrays. Biochemical assays on serum and urine were performed to delineate the biochemical signature of MOGS-CDG. Clinical phenotyping revealed heterogeneity in MOGS-CDG, including neurological, immunological and skeletal phenotypes. Bi-allelic variants in The clinical phenotype of MOGS-CDG includes multisystemic involvement with variable severity. Molecular analysis, combined with biochemical testing, is important for diagnosis. In MOGS-CDG, urine oligosaccharide analysis via matrix-assisted laser desorption/ionisation time-of-flight mass spectrometry can be used as a reliable biochemical test for screening and confirmation of disease.

Identifiants

pubmed: 35790351
pii: jmedgenet-2021-108177
doi: 10.1136/jmedgenet-2021-108177
pmc: PMC9813274
mid: NIHMS1817980
pii:
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Subventions

Organisme : NICHD NIH HHS
ID : P50 HD105351
Pays : United States
Organisme : NIDDK NIH HHS
ID : R01 DK099551
Pays : United States
Organisme : NINDS NIH HHS
ID : U54 NS115198
Pays : United States
Organisme : Intramural NIH HHS
ID : Z99 HG999999
Pays : United States

Investigateurs

Michael J Bamshad (MJ)
Deborah A Nickerson (DA)
Peter Anderson (P)
Tamara J Bacus (TJ)
Elizabeth E Blue (EE)
Katherine Brower (K)
Kati J Buckingham (KJ)
Jessica X Chong (JX)
Colleen P Davis (CP)
Chayna J Davis (CJ)
Christian D Frazar (CD)
Katherine Gomeztagle-Burgess (K)
William W Gordon (WW)
Martha Horike-Pyne (M)
Jameson R Hurless (JR)
Gail P Jarvik (GP)
Eric Johanson (E)
J Thomas Kolar (J)
Colby T Marvin (CT)
Sean McGee (S)
Daniel J McGoldrick (DJ)
Betselote Mekonnen (B)
Patrick M Nielsen (PM)
Karynne Patterson (K)
Aparna Radhakrishnan (A)
Matthew A Richardson (MA)
Gwendolin T Roote (GT)
Erica L Ryke (EL)
Kathryn M Shively (KM)
Joshua D Smith (JD)
Monica Tackett (M)
Jeffrey M Weiss (JM)
Marsha M Wheeler (MM)
Qian Yi (Q)
Xiaohong Zhang (X)

Informations de copyright

© Author(s) (or their employer(s)) 2022. No commercial re-use. See rights and permissions. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: None declared.

Références

Clin Chim Acta. 1991 Dec 16;203(2-3):211-24
pubmed: 1777982
Glycobiology. 2015 Jun;25(6):669-82
pubmed: 25609749
Pediatr Int. 2020 Mar;62(3):417-418
pubmed: 32246563
Nature. 2016 Sep 22;537(7621):508-514
pubmed: 27626380
Am J Med. 1995 Dec 29;99(6B):24S-27S
pubmed: 8585553
Brain Dev. 2021 Mar;43(3):402-410
pubmed: 33261925
Trends Genet. 2018 Jun;34(6):466-476
pubmed: 29606283
Adv Neurobiol. 2014;9:47-70
pubmed: 25151374
Eur J Hum Genet. 2016 May;24(5):660-5
pubmed: 26350515
J Clin Invest. 2001 Dec;108(11):1687-95
pubmed: 11733564
Pediatr Allergy Immunol. 2008 Sep;19(6):505-12
pubmed: 18167154
Biochem Biophys Res Commun. 2018 Sep 10;503(3):1471-1477
pubmed: 30031603
Clin Genet. 2008 Jun;73(6):507-15
pubmed: 18462449
Ann Neurol. 2019 Dec;86(6):821-831
pubmed: 31618474
Ann Transl Med. 2018 Dec;6(24):477
pubmed: 30740408
J Hum Genet. 2018 Mar;63(3):383-386
pubmed: 29235540
Am J Hum Genet. 2006 Sep;79(3):562-6
pubmed: 16909395
Neurogenetics. 2020 Apr;21(2):97-104
pubmed: 31925597
FEBS J. 2005 Apr;272(7):1625-38
pubmed: 15794750
Crit Rev Oral Biol Med. 2004 Jun 04;15(3):126-36
pubmed: 15187031
Am J Hum Genet. 2000 Jun;66(6):1744-56
pubmed: 10788335
N Engl J Med. 2014 Apr 24;370(17):1615-1625
pubmed: 24716661
J Hum Genet. 2019 Mar;64(3):265-268
pubmed: 30587846
Am J Med Genet A. 2015 Nov;167A(11):2691-6
pubmed: 26086840
Neuroscientist. 2018 Aug;24(4):368-380
pubmed: 29542386
Arch Dis Child. 1995 Oct;73(4):281-3
pubmed: 7492188
Glycobiology. 2018 Oct 1;28(10):774-785
pubmed: 29931153
Am J Med Genet A. 2021 Jan;185(1):219-222
pubmed: 33058492
Epilepsia. 2017 Apr;58(4):512-521
pubmed: 28276062
J Proteome Res. 2011 May 6;10(5):2612-24
pubmed: 21469647
Cell. 2010 May 28;141(5):897-907
pubmed: 20510933
Semin Pediatr Neurol. 2019 Dec;32:100770
pubmed: 31813518
Antivir Ther. 2015;20(3):257-9
pubmed: 25318123
J Clin Immunol. 2021 Feb;41(2):335-344
pubmed: 33245474
Clin Chem. 2013 Sep;59(9):1357-68
pubmed: 23676310
Proc Natl Acad Sci U S A. 2006 Mar 7;103(10):3764-9
pubmed: 16537452
Lancet. 2011 Apr 9;377(9773):1276-87
pubmed: 21450337
Eur J Hum Genet. 2016 Feb;24(2):198-207
pubmed: 25966638
Am J Hum Genet. 2016 Feb 4;98(2):339-46
pubmed: 26805780
Annu Rev Neurosci. 2015 Jul 8;38:105-25
pubmed: 25840006
Clin Cases Miner Bone Metab. 2016 May-Aug;13(2):110-118
pubmed: 27920806

Auteurs

Shino Shimada (S)

Medical Genetic Branch, National Human Genome Research Institute, Bethesda, Maryland, USA s-shimada@juntendo.ac.jp.
Undiagnosed Diseases Program, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA.

Bobby G Ng (BG)

Human Genetics Program, Sanford-Burnham-Prebys Medical Discovery Institute, La Jolla, California, USA.

Amy L White (AL)

Biochemical Genetics Laboratory, Department of Laboratory Medicine and Pathology, Mayo Clinic, Rochester, MN, USA.

Kim K Nickander (KK)

Biochemical Genetics Laboratory, Department of Laboratory Medicine and Pathology, Mayo Clinic, Rochester, MN, USA.

Coleman Turgeon (C)

Biochemical Genetics Laboratory, Department of Laboratory Medicine and Pathology, Mayo Clinic, Rochester, MN, USA.

Kristen L Liedtke (KL)

Biochemical Genetics Laboratory, Department of Laboratory Medicine and Pathology, Mayo Clinic, Rochester, MN, USA.

Christina T Lam (CT)

Center for Integrative Brain Research, Seattle Children's Research Institute, Seattle, Washington, USA.
Department of Pediatrics, University of Washington, Seattle, Washington, USA.

Esperanza Font-Montgomery (E)

University Hospital Medical Genetics Clinic, University of Missouri, Columbia, Missouri, USA.

Charles M Lourenco (CM)

Department of Medical Genetics, School of Medicine, Neurogenetics Unit, University, Sao Paulo, Sao Paulo, Brazil.
Faculdade de Medicina, Centro Universitario Estácio de Ribeirão Preto, Ribeirão Preto, Brazil.

Miao He (M)

Department of Pathology and Laboratory Medicine, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.

Dawn S Peck (DS)

Biochemical Genetics Laboratory, Department of Laboratory Medicine and Pathology, Mayo Clinic, Rochester, MN, USA.

Luis A Umana (LA)

Division of Genetics and Metabolism, Department of Pediatrics, The University of Texas Southwestern Medical Center, Dallas, Texas, USA.

Crescenda L Uhles (CL)

Department of Genetics, Children's Medical Center Dallas, Dallas, Texas, USA.

Devon Haynes (D)

Division of Genetics, Arnold Palmer Hospital for Children, Orlando, Florida, USA.

Patricia G Wheeler (PG)

Division of Genetics, Arnold Palmer Hospital for Children, Orlando, Florida, USA.

Michael J Bamshad (MJ)

Department of Pediatrics, University of Washington, Seattle, Washington, USA.
Department of Genome Sciences, University of Washington, Seattle, Washington, USA.

Deborah A Nickerson (DA)

Professor of Genome Sciences and Bioengineering, University of Washington, Seattle, Washington, USA.

Tom Cushing (T)

Division of Pediatric Genetics, Department of Pediatrics, University of New Mexico School of Medicine, Albuquerque, New Mexico, USA.

Ryan Gates (R)

Division of Medical Genetics, Stanford University, Stanford, California, USA.

Natalia Gomez-Ospina (N)

Division of Medical Genetics, Stanford University, Stanford, California, USA.

Heather M Byers (HM)

Division of Medical Genetics, Stanford University, Stanford, California, USA.

Fernanda B Scalco (FB)

Laboratório de Erros Inatos do Metabolismo/LABEIM, Instituto de Química, Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brazil.

Noelia N Martinez (NN)

Center for Clinical Genetics, Sydney Children's Hospital Randwick, Randwick, New South Wales, Australia.

Rani Sachdev (R)

Center for Clinical Genetics, Sydney Children's Hospital Randwick, Randwick, New South Wales, Australia.
School of Women's & Children's Health, University of New South Wales, Sydney, New South Wales, Australia.

Lacey Smith (L)

Department of Neurology, Boston Children's Hospital and Harvard Medical School, Boston, Massachusetts, USA.

Annapurna Poduri (A)

Department of Neurology, Boston Children's Hospital and Harvard Medical School, Boston, Massachusetts, USA.

Stephen Malone (S)

Department of Neurosciences, Queensland Children's Hospital, South Brisbane, Queensland, Australia.

Rebekah V Harris (RV)

Department of Medicine, The University of Melbourne, Austin Health, Heidelberg, Victoria, Australia.

Ingrid E Scheffer (IE)

Department of Medicine, The University of Melbourne, Austin Health, Heidelberg, Victoria, Australia.
Department of Paediatrics, The University of Melbourne, Royal Children's Hospital, Parkville, Victoria, Australia.

Sergio D Rosenzweig (SD)

Department of Laboratory Medicine, Clinical Center, and Primary Immunodeficiency Clinic, National Institute of Allergy and Infectious Diseases, Bethesda, Maryland, USA.

David R Adams (DR)

Medical Genetic Branch, National Human Genome Research Institute, Bethesda, Maryland, USA.
Undiagnosed Diseases Program, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA.

William A Gahl (WA)

Medical Genetic Branch, National Human Genome Research Institute, Bethesda, Maryland, USA.
Undiagnosed Diseases Program, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA.

May Christine V Malicdan (MCV)

Medical Genetic Branch, National Human Genome Research Institute, Bethesda, Maryland, USA.
Undiagnosed Diseases Program, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA.

Kimiyo M Raymond (KM)

Biochemical Genetics Laboratory, Department of Laboratory Medicine and Pathology, Mayo Clinic, Rochester, MN, USA.

Hudson H Freeze (HH)

Human Genetics Program, Sanford-Burnham-Prebys Medical Discovery Institute, La Jolla, California, USA.

Lynne A Wolfe (LA)

Medical Genetic Branch, National Human Genome Research Institute, Bethesda, Maryland, USA.
Undiagnosed Diseases Program, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA.

Classifications MeSH