"Spiritual distress (00066)" in patients under fertility treatment: Clinical validation study.
Assisted reproductive techniques
infertility
nursing diagnosis
spirituality
validation studies
Journal
International journal of nursing knowledge
ISSN: 2047-3095
Titre abrégé: Int J Nurs Knowl
Pays: United States
ID NLM: 101582422
Informations de publication
Date de publication:
Apr 2023
Apr 2023
Historique:
received:
11
03
2022
accepted:
01
06
2022
medline:
6
4
2023
pubmed:
7
7
2022
entrez:
6
7
2022
Statut:
ppublish
Résumé
This study aimed to clinically validate the NANDA-I nursing diagnosis of "Spiritual distress (00066)" in people under assisted reproductive technologies, and to determine the sensitivity, specificity, and predictive value of the defining characteristics. Cross-sectional study that was conducted between September 2019 and June 2020. Recruitment happened by invitation posted in fertility-related websites. Those who accepted to participate were asked to fill the consent form and the online questionnaire. Statistical analysis was based on Rasch's model. The study was approved by the Ethics Committee. The sample comprised 104 Portuguese individuals undergoing assisted reproductive techniques. The "Spiritual distress (00066)" was validated and 22 defining characteristics were confirmed as representative. No item showed differential item functioning. "Perceived suffering" was the most sensitive defining characteristic and had the highest negative predictive value. "Insufficient courage" had the highest positive predictive value, and "Anger toward power greater than self" was the most specific. Results validated the presence of the NANDA-I nursing diagnosis of "Spiritual distress (00066)" in a sample going through assisted reproductive technologies, improving accuracy of this nursing diagnosis in such population. This is a crucial step to raise the level of evidence of such nursing diagnosis and to increase the level of evidence on NANDA-I terminology. Furthermore, this study has contributed to raising the quality of nurse's critical judgement and clinical reasoning and allow an early spiritual and a more holistic and personalized patient-centered intervention in the reproductive field. O presente estudo teve como objetivo analisar a validade clínica do diagnóstico de “angústia espiritual (00066)” em pessoas a realizar técnicas de reprodução assistida e determinar a sensibilidade, especificidade e valor preditivo das características definidoras. MÉTODOS: Este é um estudo transversal que decorreu entre Setembro de 2019 e Junho de 2020. O recrutamento ocorreu por meio de convite lançado em sítios afetos ao tema da fertilidade. As pessoas interessadas em participar preencheram um formulário de consentimento informado e um questionário online. A análise estatística primou pelo emprego do modelo Rasch. O estudo foi aprovado pela Comissão de Ética. A amostra final incluiu 104 portugueses submetidos a técnicas de reprodução medicamente assistida. O diagnóstico de “angústia espiritual (00066)” foi validado e 22 características definidoras foram confirmadas pelos dados. “Sofrimento percebido” foi a característica definidora mais sensível e com o maior valor negativo preditivo. “Coragem insuficiente” destacou-se no valor positivo preditivo, e “Raiva relativa a Poder Maior do que o próprio” foi a mais específica. CONCLUSÕES: Os resultados obtidos validaram a presença do diagnóstico de “angústia espiritual (00066)” em pessoas a realizar técnicas de reprodução assistida, contribuindo, desta forma para melhorar a acurácia deste diagnóstico de enfermagem nesta população. IMPLICAÇÕES PARA A PRÁTICA: Este é um passo crucial para elevar o nível de evidência deste diagnóstico de enfermagem e aumentar o corpo do conhecimento da terminologia NANDA-I. O seu contributo passa também por elevar a qualidade do julgamento crítico dos enfermeiros e o seu poder de decisão clínica permitindo uma intervenção precoce mais holística, centrada na espiritualidade e no paciente em contexto reprodutivo.
Autres résumés
Type: Publisher
(por)
O presente estudo teve como objetivo analisar a validade clínica do diagnóstico de “angústia espiritual (00066)” em pessoas a realizar técnicas de reprodução assistida e determinar a sensibilidade, especificidade e valor preditivo das características definidoras. MÉTODOS: Este é um estudo transversal que decorreu entre Setembro de 2019 e Junho de 2020. O recrutamento ocorreu por meio de convite lançado em sítios afetos ao tema da fertilidade. As pessoas interessadas em participar preencheram um formulário de consentimento informado e um questionário online. A análise estatística primou pelo emprego do modelo Rasch. O estudo foi aprovado pela Comissão de Ética.
Identifiants
pubmed: 35792716
doi: 10.1111/2047-3095.12383
doi:
Types de publication
Journal Article
Langues
eng
Pagination
97-107Informations de copyright
© 2022 NANDA International, Inc.
Références
Allot, L., Payne, D., & Dann, L. (2013). Midwifery and assisted reproductive technologies. New Zealand College of Midwives, 47, 10-13.
Batool, S. S., & Visser, R. O. (2016). Experiences of infertility in British and Pakistani Women: A cross-cultural qualitative analysis. Health Care for Women International, 37, 180-196. https://doi.org/10.1080/07399332.2014.980890
Behboodi-Moghadam, Z., Salsali, M., Eftekhar-Ardabily, H., Vaismoradi, M., & Ramezanzadeh, F. (2013). Experiences of infertility through the lens of Iranian infertile women: A qualitative study. Japan Journal of Nursing Science, 10, 41-46. https://doi.org/10.1111/j.1742-7924.2012.00208.x
Berger, R., Paul, M., & Henshaw, L. (2013). Women's experience of infertility: A multi-systemic perspective. Journal of International Women's Studies, 14(1), 54-68.
Cabral, H. B. O., & Bucher-Maluschke, J. S. N. F. (2016). Desenvolvimento dos fatores de resiliência no contexto da infertilidade: Revisão. Psicologia, Saúde & Doença, 17(3), . https://doi.org/10.15309/16psd170315
Caldeira, S., Timmins, F., de Carvalho, E. C., & Vieira, M. (2015). Clinical validation of the nursing diagnosis spiritual distress in cancer patients undergoing chemotherapy. International Journal of Nursing Knowledge, 28(1), 44-52. https://doi.org/10.1111/2047-3095.12105
Caldeira, S., Timmins, F., de Carvalho, E. C., & Vieira, M. (2016). Nursing diagnosis of «spiritual distress» in women with breast cancer: Prevalence and major defining characteristics. Cancer Nursing, 39(4), 321-327. https://doi.org/10.1097/NCC.0000000000000310
Carvalho, J. L. S., & Santos, A. (2009). Estudo Afrodite, Caracterização da Infertilidade em Portugal (p. 74). Faculdade de Medicina da Universidade do Porto, Sociedade Portuguesa de Medicina da Reprodução, KeyPoint. http://static.publico.pt/docs/sociedade/AfroditeInfertilidade.pdf
Cassel, E. J. (1982). The nature of suffering and the goals of medicine. The New England Journal of Medicine, 306(11), 639-645. https://doi.org/10.1056/NEJM198203183061104
CNPMA. (2013). Relatório de Atividades desenvolvida pelos Centros de PMA em 2011 (p. 27). Conselho Nacional de Procriação Medicamente Assistida. http://www.spmr.pt/files/pma_nacional_2011.pdf
Daibes, M. A., Safadi, R. R., Athamneh, T., Anees, I. F., & Constantino, R. E. (2018). Half a woman, half a man; that is how they make me feel: A qualitative study of rural Jordanian women's experience of infertility. Culture, Health & Sexuality, 20(5), 516-530. https://doi.org/10.1080/13691058.2017.1359672
Decreto-Lei no319/86, 25 Setembro, Pub. L. No. I Série, no221, 2726 (1986).
de Souza Oliveira-Kumakura, A. R., Caldeira, S., Prado Simão, T., Camargo-Figuera, F. A., de Almeida Lopes Monteiro da Cruz, D., & Campos de Carvalho, E. (2018). The contribution of the Rasch model to the clinical validation of nursing diagnoses: Integrative literature review. International Journal of Nursing Knowledge, 29(2), 89-96. https://doi.org/10.1111/2047-3095.12162
Dierickx, S., Rahbari, L., Longman, C., Jaiteh, F., & Coene, G. (2018). ‘I am always crying on the inside’: A qualitative study on the implications of infertility on women's lives in urban Gambia. Reproductive Health, 15(1), 151. https://doi.org/10.1186/s12978-018-0596-2
Dyer, S. J., Abrahams, N., Hoffman, M., & van der Spuy, Z. M. (2002). Men leave me as I cannot have children: Women's experiences with involuntary childlessness. Human Reproduction (Oxford, England), 17(6), 1663-1668.
Fisher, J. (2010). Development and application of a spiritual well-being questionnaire called SHALOM. Religions, 1(1), 105-121. https://doi.org/10.3390/rel1010105
Frankl, V. E. (2013). Em busca de sentido: Um psicólogo no campo de concentração. Editora Sinodal.
Gameiro, S., Van Den Belt-Dusebout, A. W., Smeenk, J. M. J., Braat, D. D. M., Van Leeuwen, F. E., & Verhaak, C. M. (2016). Women's adjustment trajectories during IVF and impact on mental health 11-17 years later. Human Reproduction, 31(8), . https://doi.org/10.1093/humrep/dew131
Gengo e Silva, R. de C., Guedes, E. de S., & da Cruz, D. d. A. L. M. (2014). Ineffective peripheral tissue perfusion: construct validation using Rasch analysis [Poster presentation]. 25th International Nursing Research Congress, Hong Kong. https://sigma.nursingrepository.org/handle/10755/335255
Gómez, E. P., Orozco, V., L, C., Camargo, F., F, A., Berrío, J. A., & Moreno, L. X. M. (2012). Bullying en adolescentes escolarizados: Validacion del diagnostico de enfermeria «riesgo de violencia dirigida a otros». Hacia la Promoción de la Salud, 17(1), 45-58.
Gómez, E. P., Orozco, V. L. C., Camargo, F. F. A., Alfonso, H. E. P., Peña, V, E. R., Villabona, A. L. N., & Acevedo, G. Y. (2011). Lactancia materna ineficaz: Prevalencia y factores asociados. Revista de la Universidad Industrial de Santander. Salud, 43(3), 271-279.
Gomez, R., & Fisher, J. W. (2003). Domains of spiritual well-being and development and validation of the spiritual well-being questionnaire. Personality and Individual Differences, 35, 1975-1991. https://doi.org/10.1016/S0191-8869(03)00045-X
Gomez, R., & Fisher, J. W. (2005). The spiritual well-being questionnaire: Testing for model applicability, measurement and structural equivalencies, and latent mean differences across gender. Personality and Individual Differences, 39(8), 1383-1393. https://doi.org/10.1016/j.paid.2005.03.023
Gouveia, M. J., Marques, M., & Ribeiro, J. L. P. (2009). Versão portuguesa do questionário de bem-estar espiritual (SWBQ): Análise confirmatória da sua estrutura factorial. Psicologia, Saúde & Doenças, 10(2), 285-293.
Greil, A. L., Slauson-Blevins, K., & McQuillan, J. (2010). The experience of infertility: A review of recent literature. Sociology of Health and Illness, 32(1), 140-162. https://doi.org/10.1111/j.1467-9566.2009.01213.x
Hagquist, C., Bruce, M., & Gustavsson, J. P. (2009). Using the Rasch model in nursing research: An introduction and illustrative example. International Journal of Nursing Studies, 46, 380-393.
Hendriks, S., Peeraer, K., Bos, H., Repping, S., & Dancet, E. a. F. (2017). The importance of genetic parenthood for infertile men and women. Human Reproduction (Oxford, England), 32(10), 2076-2087. https://doi.org/10.1093/humrep/dex256
Herdman, H. T., & Kamitsuru, S. (2018). Nursing diagnoses: Definitions & classification 2018-2020. Thieme.
Herdman, H. T., Kamitsuru, S., & Lopes, camila. (2021). NANDA-I Nursing diagnoses: Definitions and classification 2021-2023 (12th edition). Thieme Medical Publishers.
Kahn, D. L., & Steeves, R. H. (1986). The experience of suffering: Conceptual clarification and theoretical definition. Journal of Advanced Nursing, 11(6), 623-631. https://doi.org/10.1111/j.1365-2648.1986.tb03379.x
Kraus, T. (2014). Sentido de vida da pessoa com dor crónica [Tese Doutoramento, Universidade Católica Portuguesa, Instituto de Ciências da Saúde]. Veritati - Repositório Institucional da Universidade Católica Portuguesa. https://repositorio.ucp.pt/handle/10400.14/16164
Kraus, T. (2021). Tradução, adaptação cultural e validação do meaning in suffering test para português Europeu. Revista de Enfermagem Referência, 5, e20069. https://doi.org/10.12707/RV20069
Lalos, A., Lalos, O., Jacobsson, L., & von Schoultz, B. (1985). Psychological reactions to the medical investigation and surgical treatment of infertility. Gynecologic and Obstetric Investigation, 20(4), 209-217.
Levett-Jones, T., Hoffman, K., Dempsey, J., Jeong, S. Y.-S., Noble, D., Norton, C. A., Roche, J., & Hickey, N. (2010). The «five rights» of clinical reasoning: An educational model to enhance nursing students’ ability to identify and manage clinically «at risk» patients. Nurse Education Today, 30(6), 515-520. https://doi.org/10.1016/j.nedt.2009.10.020
Linacre, J. M. (1994). Sample size and item calibration or person measure stability. Rasch Measurement Transactions, 7, 328.
Linacre, J. M. (2011). Table 23.1, 23.11, … Principal components/contrast plots of item loadings. Winsteps. https://www.winsteps.com/winman/table23_1.htm
Linacre, J. M. (2021a). Table 23.0 Variance components for items. Winsteps. https://www.winsteps.com/winman/table23_0.htm
Linacre, J. M. (2021b). WINSTEPS - Multiple-choice, rating scale and partial credit Rasch analysis (4.8.0) [Computer software]. https://www.winsteps.com/winsteps.htm
Lopes, M. V., de, O., Silva da, V. M., & de Araujo, T. L. (2013). Validação de diagnósticos de enfermagem: Desafios e alternativas. Revista Brasileira de Enfermagem, 66, 649-655. https://doi.org/10.1590/S0034-71672013000500002
Machado, M. H. (1999). Controvérsias éticas e jurídicas na reprodução medicamente assistida [Dissertação apresentada ao Curso de Pós-Graduação em Direito da Universidade Federal de Santa Catarina» como requisito à obtenção do titulo de Mestre em Ciências Humanas - Especialidade em Direito.]. Universidade Federal de Santa Catarina.
Mascarenhas, M. N., Flaxman, S. R., Boerma, T., Vanderpoel, S., & Stevens, G. A. (2012). National, regional, and global trends in infertility prevalence since 1990: A systematic analysis of 277 health surveys. PLOS Medicine, 9(12), 1-12.
McCreary, L. L., Conrad, K. M., Conrad, K. J., Scott, C. K., Funk, R. R., & Dennis, M. L. (2013). Using the Rasch measurement model in psychometric analysis of the family effectiveness measure. Nursing Research, 62(3), 149-159. https://doi.org/10.1097/NNR.0b013e31828eafe6
McQuillan, J., Stone, R. A. T., & Greil, A. L. (2007). Infertility and life satisfaction among women. Journal of Family Issues, 28(7), 955-981.
Miguel, S., Romeiro, J., Martins, H., Casaleiro, T., & Herdman, T. H. (2018). “Call for the use of axial terms”: Toward completeness of NANDA-I nursing diagnoses Labels. International Journal of Nursing Knowledge, 30(3), 131-136. https://doi.org/10.1111/2047-3095.12228
Moreira, S. M. (2011). Espiritualidade, bem-estar e qualidade de vida de pessoas idosas que vivem sós no domicílio habitual [Tese Mestrado em Enfermagem de Saúde Mental e Psiquiatria, Escola Superior de Enfermagem do Porto]. https://comum.rcaap.pt/handle/10400.26/9214
Nunnally, J. C., & Bernstein, I. H. (1994). The assessment of reliability. Em Psychometric theory (Vol. 3, pp. 248-292). McGraw-Hill.
Oddens, B. J., Tonkelaar den, I., & Nieuwenhuyse, H. (1999). Psychosocial experiences in women facing fertility problems-A comparative survey. Human Reproduction, 14(1), 255-261.
Orozco-Vargas, L. C., Villamizar-Carvajal, B., & Vargas-Porras, C. (2015a). Impaired parenting (00056) in primiparous mothers: Clinical validation through Rasch analysis. Aquichan, 15(2), 176-187. https://doi.org/10.5294/aqui.2015.15.2.2
Pedro, J., Sobral, M. P., Mesquita-Guimarães, J., Leal, C., Costa, M. E., & Martins, M. V. (2017). Couples’ discontinuation of fertility treatments: A longitudinal study on demographic, biomedical, and psychosocial risk factors. Journal of Assisted Reproduction and Genetics, 34(2), . https://doi.org/10.1007/s10815-016-0844-8
Practice Committee of American Society for Reproductive Medicine. (2012). Definitions of infertility and recurrent pregnancy loss: A committee opinion. Fertility and Sterility, 99(1), 63. https://doi.org/10.1016/j.fertnstert.2012.09.023
Rayner, J.-A., McLachlan, H. L., Forster, D. A., & Cramer, R. (2009). Australian women's use of complementary and alternative medicines to enhance fertility: Exploring the experiences of women and practitioners. BMC Complementary and Alternative Medicine, 9(52), 1-10. https://doi.org/10.1186/1472-6882-9-52
Romeiro, J., & Caldeira, S. (2018a). A synthesis of Portuguese studies regarding infertile patients. BMC Health Services Research, 18(Suppl 2), 684, 1-183. https://doi.org/10.1186/s12913-018-3444-8
Romeiro, J., & Caldeira, S. (2018b). The human responses and nursing diagnoses of those living with infertility: A qualitative systematic review. International Journal of Nursing Knowledge, . https://doi.org/10.1111/2047-3095.12223
Romeiro, J., Caldeira, S., Brady, V., Hall, J., & Timmins, F. (2017). The spiritual journey of infertile couples: Discussing the opportunity for spiritual care. Religions, 8(4), 76. https://doi.org/10.3390/rel8040076
Romeiro, J., Caldeira, S., Brady, V., Timmins, F., & Hall, J. (2017). Spiritual aspects of living with infertility: A synthesis of qualitative studies. Journal of Clinical Nursing, 26, 3917-3935. https://doi.org/10.1111/jocn.13813
Romeiro, J., Nogueira, P. J., Fisher, J., & Caldeira, S. (2022). Portuguese version of the spiritual well-being questionnaire: Validation study in people under assisted reproductive techniques. Religions, 13(5), 400. https://doi.org/10.3390/rel13050400
Roudsari, R. L., Allan, H. T., & Smith, P. A. (2007). Looking at infertility through the lens of religion and spirituality: A review of the literature. Human Fertility, 10(3), 141-149.
Silva, I. R. V., Ferreira, A. M. N. dos S., Brito, M. A. F., Dias, N. M. B., & Henriques, C. M. G. (2012). As vivências da mulher infértil. Revista de Enfermagem Referência, III(8), 181-189.
Sormunen, T., Karlgren, K., Aanesen, A., Fossum, B., & Westerbotn, M. (2020). The role of social media for persons affected by infertility. BMC Women's Health, 20(1), 112. https://doi.org/10.1186/s12905-020-00964-0
Tabachnick, B. G., & Fidell, L. S. (2007). Using multivariate statistics. (5th ed.). Allyn & Bacon/Pearson Education.
Van Den Broeck, U., Holvoet, L., Enzlin, P., Bakelants, E., Demyttenaere, K., & D'Hooghe, T. (2009). Reasons for dropout in infertility treatment. Gynecologic and Obstetric Investigation, 68(1), . https://doi.org/10.1159/000214839
Weathers, E., McCarthy, G., & Coffey, A. (2016). Concept analysis of spirituality: An evolutionary approach. Nursing Forum, 51(2), 79-96. https://doi.org/10.1111/nuf.12128
Wright, B. D., & Linacre, J. M. (1994). Reasonable mean-square fit values. Rasch Measurement Transactions, 8, 370-371.
Zegers-Hochschild, F., Adamson, G. D., Dyer, S., Racowsky, C., de Mouzon, J., Sokol, R., Rienzi, L., Sunde, A., Schmidt, L., Cooke, I. D., Simpson, J. L., & van der Poel, S. (2017). The international glossary on infertility and fertility care, 2017. Fertility and Sterility, 108(3), . https://doi.org/10.1016/j.fertnstert.2017.06.005