"A Different Way to Survive": The Experiences of Family Caregivers of Persons Living With Dementia During the COVID-19 Pandemic.
COVID-19
dementia
family caregiving
Journal
Journal of family nursing
ISSN: 1552-549X
Titre abrégé: J Fam Nurs
Pays: United States
ID NLM: 9503761
Informations de publication
Date de publication:
08 2022
08 2022
Historique:
pubmed:
10
7
2022
medline:
15
7
2022
entrez:
9
7
2022
Statut:
ppublish
Résumé
Family caregivers of persons living with dementia often experience challenges to their health and quality of life related to their caregiving role. The COVID-19 pandemic added substantially to the responsibilities of family caregivers, potentially putting them at greater risk of poor health outcomes and impeded quality of life. To better understand the impact of the pandemic on the experiences of family caregivers, a multimethods study was conducted. Family caregivers of persons living with dementia were invited to complete a cross-sectional survey and a subset of survey respondents were invited to participate in focus groups for added insight. A total of 161 caregivers responded to the survey and 30 participated in the focus groups. Qualitative data from focus groups were used to elucidate deeper insight into quantitative findings from the survey. Findings reflect that the pandemic affected family caregiver health and wellness, access of care and resources, identity, and resilience.
Identifiants
pubmed: 35808849
doi: 10.1177/10748407221111079
pmc: PMC9272038
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
243-257Références
J Gerontol B Psychol Sci Soc Sci. 2009 Nov;64(6):788-98
pubmed: 19318470
Front Aging Neurosci. 2021 Jan 18;12:625781
pubmed: 33536898
Sch Inq Nurs Pract. 1996 Fall;10(3):293-304
pubmed: 9009823
Dementia (London). 2021 Aug;20(6):2007-2023
pubmed: 33381996
Health Aff (Millwood). 2015 Oct;34(10):1637-41
pubmed: 26438738
Am J Geriatr Psychiatry. 2011 Apr;19(4):382-91
pubmed: 20808120
Am J Alzheimers Dis Other Demen. 2019 May;34(3):199-207
pubmed: 30700106
Am J Geriatr Psychiatry. 2020 Jul;28(7):796-797
pubmed: 32327300
Am J Alzheimers Dis Other Demen. 2020 Jan-Dec;35:1533317520976720
pubmed: 33295781
J Gerontol B Psychol Sci Soc Sci. 2021 Mar 14;76(4):e241-e245
pubmed: 32827214
HRB Open Res. 2020 May 15;3:24
pubmed: 32551415
Am J Geriatr Psychiatry. 2021 Jan;29(1):27-34
pubmed: 33153872
J Am Med Dir Assoc. 2014 Feb;15(2):108-16
pubmed: 24238605
Int Nurs Rev. 2015 Sep;62(3):340-50
pubmed: 26058542
J Biomed Inform. 2009 Apr;42(2):377-81
pubmed: 18929686
Alzheimers Dement. 2021 Aug;17(8):1297-1306
pubmed: 33559975
J Am Med Dir Assoc. 2015 Dec;16(12):1034-41
pubmed: 26593303
Can J Public Health. 2021 Jun;112(3):400-411
pubmed: 33825134
Aging Ment Health. 2020 Sep;24(9):1505-1513
pubmed: 31104475
Am J Hosp Palliat Care. 2020 Aug;37(8):648-658
pubmed: 31830813
Int J Geriatr Psychiatry. 2019 Sep;34(9):1326-1334
pubmed: 30198597
Am J Alzheimers Dis Other Demen. 2021 Jan-Dec;36:15333175211008768
pubmed: 33853394
Age Ageing. 2020 Aug 24;49(5):713-715
pubmed: 32584402
Psychol Methods. 2003 Sep;8(3):322-37
pubmed: 14596494
Am J Geriatr Psychiatry. 2020 Nov;28(11):1185-1194
pubmed: 32736918
JAMA. 1999 Dec 15;282(23):2215-9
pubmed: 10605972
Neurodegener Dis Manag. 2016 Apr;6(2):69-72
pubmed: 27027883
Res Involv Engagem. 2021 Jul 23;7(1):54
pubmed: 34301338
J Gerontol B Psychol Sci Soc Sci. 2021 Mar 14;76(4):e235-e240
pubmed: 32738144
Int Psychogeriatr. 2020 Nov;32(11):1377-1381
pubmed: 32729446
BMC Geriatr. 2021 May 10;21(1):301
pubmed: 33971847
Alzheimers Dement. 2021 Mar;17(3):327-406
pubmed: 33756057
Prog Community Health Partnersh. 2019;13(4):427-434
pubmed: 31866597
J Geriatr Psychiatry Neurol. 2014 Sep;27(3):172-80
pubmed: 24614200
Int J Geriatr Psychiatry. 2021 Apr;36(4):583-587
pubmed: 33166418
Front Psychol. 2017 Apr 19;8:585
pubmed: 28469589
J Am Med Dir Assoc. 2019 Aug;20(8):977-983.e4
pubmed: 30692034
Front Aging Neurosci. 2021 Apr 20;13:652833
pubmed: 33958999
Int Psychogeriatr. 2018 Aug;30(8):1099-1107
pubmed: 29143722
Dementia (London). 2022 Jan;21(1):250-269
pubmed: 34346231