Legal Implications of Stroke Biobanking and Genomics Research in Sub-Saharan Africa.

bioethics gene editing germ cell editing genetic engineering scientific regulation

Journal

Journal of law and medicine
ISSN: 1320-159X
Titre abrégé: J Law Med
Pays: Australia
ID NLM: 9431853

Informations de publication

Date de publication:
Jun 2022
Historique:
entrez: 12 7 2022
pubmed: 13 7 2022
medline: 15 7 2022
Statut: ppublish

Résumé

Stroke is a major cause of death in Sub-Saharan Africa (SSA) and genetic factors appear to play a part. This has led to stroke biobanking and genomics research in SSA. Existing stroke studies have focused on causes, incidence rates, fatalities and effects. However, scant attention has been paid to the legal issues in stroke biobanking and genomics research in the sub-region. Therefore, this article examines the legal implications of stroke biobanking and genomics research in SSA. The article adopts a textual analysis of primary and secondary sources in law. It reports that there are laws from the perspectives of human right, the common law, and intellectual property. However, there are gaps to be filled. The article therefore argues for legislative intervention. It concludes that pending the time the statute will be enacted, genomics researchers in Africa should adopt the ethical guidelines prepared by Human Heredity and Health in Africa (H3 Africa).

Identifiants

pubmed: 35819393

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

579-598

Déclaration de conflit d'intérêts

None.

Auteurs

Muyiwa Adigun (M)

Department of Public Law, University of Ibadan, Nigeria.

Babatunde Raphael Ojebuyi (BR)

Department of Communication and Language Arts, University of Ibadan.

Joshua Akinyemi (J)

Neurology Unit, University of Ilorin, Nigeria.

Kolawole Wahab (K)

Neurology Unit, University of Ilorin, Nigeria.

Albert Akpalu (A)

University of Ghana Medical School, Ghana.

Fred S Sarfo (FS)

Neurology Unit, Kwame Nkrumah University of Science and Technology, Ghana.

Lukman F Owolabi (LF)

Neurology Unit, Bayero University, Nigeria.

Rabiu Musbahu (R)

Neurology Unit, Bayero University.

Abiodun Bello (A)

Neurology Unit, Department of Medicine, University of Ilorin.

Reginald Obiako (R)

Neurology Unit, Ahmadu Bello University Teaching Hospital, Nigeria.

Mayowa Ogunronbi (M)

Neuroscience and Ageing Research Unit, University of Ibadan.

Arti Singh (A)

School of Public Health, Kwame Nkrumah University of Science and Technology, Kumasi, Ghana.

Michelle Nichols (M)

College of Nursing, Medical University of South Carolina, United States.

Carolyn Jenkins (C)

College of Nursing, Medical University of South Carolina, United States.

Ayodele Jegede (A)

Department of Sociology, University of Ibadan.

Rajesh Kalaria (R)

Neurovascular Research Group, Newcastle University, United Kingdom.

Mayowa Owolabi (M)

Department of Medicine, University of Ibadan.

Bruce Ovbiagele (B)

Weill Institute of Neuroscience, University of California, San Franscisco, California, United States.

Oyedunni Arulogun (O)

Department of Health Promotion and Education, University of Ibadan.

Rufus Akinyemi (R)

Neuroscience and Ageing Research Unit, University of Ibadan.

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Classifications MeSH