Pancreatic Cancer From the Patient Perspective: The Time to Act is Now.

cancer medical education patient engagement patient feedback quality improvement quality of life

Journal

Journal of patient experience
ISSN: 2374-3735
Titre abrégé: J Patient Exp
Pays: United States
ID NLM: 101688338

Informations de publication

Date de publication:
2022
Historique:
entrez: 18 7 2022
pubmed: 19 7 2022
medline: 19 7 2022
Statut: epublish

Résumé

Pancreatic cancer is a disease requiring urgent attention from governments and policymakers. Recently, a state of emergency has been declared for this cancer-being the fourth most common cause of cancer deaths in the European Union, it has the lowest survival rate of all common cancers. One of the major reasons pancreatic cancer is associated with such poor outcomes is because it is usually diagnosed at a late stage. Also, investment in research for effective targeted therapies is lacking. This is the perspective of a white paper developed by Digestive Cancers Europe, an umbrella organisation representing European patient organisations. It has been developed after consultation with pancreatic cancer patients, representatives of cancer patient organisations and leading pancreatic cancer healthcare professionals. The purpose of the paper is to highlight the key urgent unmet needs in pancreatic cancer from the patient perspective, ultimately with a view to improve patient care and outcomes in this very challenging disease.

Identifiants

pubmed: 35846247
doi: 10.1177/23743735221112633
pii: 10.1177_23743735221112633
pmc: PMC9277424
doi:

Types de publication

Journal Article

Langues

eng

Pagination

23743735221112633

Informations de copyright

© The Author(s) 2022.

Déclaration de conflit d'intérêts

Declaration of Conflicting Interests: The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

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Auteurs

Marianna Vitaloni (M)

Digestive Cancers Europe, Brussel, Belgium.

Patrick Michl (P)

European Pancreatic Club, Vienna, Austria.

Matthias Löhr (M)

European Pancreatic Club, Vienna, Austria.

Ali Stunt (A)

Pancreatic Cancer Action, Oakhanger, UK.

Patrycja Rzadkowska (P)

Europa Colon Polska, Otwock, Poland.

Eva Backman (E)

The PALEMA Cancer Society, Stockholm, Sweden.

Lama Sharara (L)

Fondation Aide et Recherche en Cancérologie Digestive, Levallois-Perret, France.

Vitor Neves (V)

Europa Colon Portugal, Oporto, Portugal.

Thomas Gruenberger (T)

Clinic Favoriten, HPB center Health Network Vienna and Sigmund Freud University, Vienna, Austria.

Zorana Maravic (Z)

Digestive Cancers Europe, Brussel, Belgium.

Classifications MeSH