The French EVAL-PLH cohort of persons with polyhandicap.
Journal
Scientific reports
ISSN: 2045-2322
Titre abrégé: Sci Rep
Pays: England
ID NLM: 101563288
Informations de publication
Date de publication:
22 07 2022
22 07 2022
Historique:
received:
04
03
2022
accepted:
12
07
2022
entrez:
22
7
2022
pubmed:
23
7
2022
medline:
27
7
2022
Statut:
epublish
Résumé
Polyhandicap is characterized by a combination of profound intellectual disability and serious motor deficit, resulting in the extreme restriction of autonomy and communication. The aim of the EVAL-PLH (EVALuation PoLyHandicap) study is to identify the impact of socioeconomic, environmental, and epidemiological determinants on the health status of the persons with polyhandicap and the daily lives of their caregivers. EVAL-PLH is a prospective cohort study. The study involved persons with severe polyhandicap (who were cared for at reeducation centers, residential facilities, and one specialized pediatric/neurological department of a university hospital), their familial caregivers and the institutional caregivers. Data collection included sociodemographics, heath status, and psychocomportemental information. Data have been collected at 2 points (2015-2016 and 2020-2021). The French EVAL-PLH cohort is the first cohort study focusing on persons with polyhandicap, their families, and the health care workers caring for them. The sustainability of the device is essential to assist patients, families, clinicians, and health decision-making authorities in the optimization of care management.
Identifiants
pubmed: 35869128
doi: 10.1038/s41598-022-16596-3
pii: 10.1038/s41598-022-16596-3
pmc: PMC9305042
doi:
Banques de données
ClinicalTrials.gov
['NCT02400528']
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
12512Investigateurs
Thierry Billette de Villemeur
(TB)
Marie-Christine Rousseau
(MC)
Sherezad Khaldi-Cherif
(S)
Kim Maincent
(K)
Agnès Felce
(A)
Karine Baumstarck
(K)
Pascal Auquier
(P)
Lionel Dany
(L)
Any Beltran
(A)
Ilyes Hamouda
(I)
Marie-Anastasie Aim
(MA)
Narjess Boutalbi
(N)
Isabelle Kemlin
(I)
Julie Roger
(J)
Patrick Julien
(P)
Ponha Heng
(P)
Daniel Willocq
(D)
Maria Valkov
(M)
Stéphane Pietra
(S)
Stéphane Lenormand
(S)
Katia Lind
(K)
Informations de copyright
© 2022. The Author(s).
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