Creation of a tool to evaluate supportive care.

Patient-reported outcome questionnaire Socioesthetics Supportive care

Journal

Palliative & supportive care
ISSN: 1478-9523
Titre abrégé: Palliat Support Care
Pays: England
ID NLM: 101232529

Informations de publication

Date de publication:
01 Aug 2022
Historique:
entrez: 1 8 2022
pubmed: 2 8 2022
medline: 2 8 2022
Statut: aheadofprint

Résumé

The absence of a specific tool to evaluate the impact of supportive care in general and socioesthetics (SE) in particular is undoubtedly at the origin of the lack of published research based on scientific standards. We developed a supportive-care, patient-reported outcome questionnaire using the multistep methods, following COSMIN recommendations. The Patient Centricity Questionnaire (PCQ) was developed using the standardized methodology for designing patient-reported outcome (PRO) questionnaires according to the following steps: elaboration of the questionnaire, measurement properties of the questionnaire, internal and external validation, test-retest validation and translation, cross-cultural adaptation, and cognitive debriefing. A multidisciplinary work group was designed including professionals, such as physicians, public health experts, sociologists, supportive-care experts, and socioestheticians. Our questionnaire includes 11 items. It is scored by adding each Visual Analogue Scale [VAS], making it range from 0 to 110, with a higher benefit when the score is higher. The Cronbach's Constructed according to the recommendations, the PCQ meets the prerequisite for this type of questionnaire. Its short format and simplicity of use allow it to be used by a large number of people. The PCQ is a simple, reliable, easy-to-use, and validated tool for research teams, making it possible for randomized studies to prove the impact of supportive care in general and SE in particular, on the patient's quality of life.

Identifiants

pubmed: 35913037
doi: 10.1017/S1478951522000918
pii: S1478951522000918
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

1-8

Auteurs

Damien Giacchero (D)

Department of Medical Oncology, University Côte d'Azur, Centre Antoine Lacassagne, Nice, France.

Guillaume Buiret (G)

Department of Otorhinolaryngology Surgery, Hospital of Valence, Valence, France.

Cécile Bartolini-Grosjean (C)

Department of Medical Oncology, University Côte d'Azur, Centre Antoine Lacassagne, Nice, France.

Charles Taieb (C)

Patient Priority Department, European Market Maintenance Assessment, Fontenay-sous-Bois, France.

Mahasti Saghatchian (M)

Department of Oncology, American Hospital of Paris, Neuilly-sur-Seine, France.
Department of Medical Oncology, Gustave Roussy Institute, Villejuif, France.

Ivan Krakowski (I)

Association Francophone pour les Soins Oncologiques de Support, Bègles, France.

Classifications MeSH