Tailored Parenting Plans of Young Adults With Sickle Cell Disease or Sickle Cell Trait.
Journal
Computers, informatics, nursing : CIN
ISSN: 1538-9774
Titre abrégé: Comput Inform Nurs
Pays: United States
ID NLM: 101141667
Informations de publication
Date de publication:
01 Sep 2022
01 Sep 2022
Historique:
pubmed:
6
8
2022
medline:
14
9
2022
entrez:
5
8
2022
Statut:
epublish
Résumé
Our study purpose was to evaluate the variation and accuracy of tailored parenting plans individually generated as a supplement to reproductive health education on the genetic inheritance of sickle cell disease or sickle cell trait. We present a secondary data analysis of experimental group data from a randomized controlled trial. Participants completed the valid and reliable Internet-based Sickle Cell Reproductive Health Knowledge Parenting Intent Questionnaire. We created a computerized algorithm that used participants' responses to generate tailored parenting plans based on their parenting preferences and partner's sickle cell status. Thirty-one different parenting plans were generated to meet the variety in the participants' preferences. The most frequently generated plan was for participants with sickle cell disease who had a partner with hemoglobin AA, who wanted to be a parent, was not likely to be pregnant, and wanted their child to be sickle cell disease free. More than half of the participants required alteration in their reproductive behavior to achieve their parenting goals. Findings provide insight into the variety and accuracy of computer algorithm-generated parenting plans, which could further guide refinement of the algorithm to produce patient-centered, tailored parenting plans supplemental to Internet-based genetic inheritance education.
Identifiants
pubmed: 35930415
doi: 10.1097/CIN.0000000000000933
pii: 00024665-202209000-00008
pmc: PMC9464668
mid: NIHMS1790169
doi:
Types de publication
Journal Article
Randomized Controlled Trial
Langues
eng
Sous-ensembles de citation
IM
Pagination
633-640Subventions
Organisme : NHGRI NIH HHS
ID : R01 HG011927
Pays : United States
Organisme : NHLBI NIH HHS
ID : R01 HL114404
Pays : United States
Organisme : NHLBI NIH HHS
ID : U54 HL090513
Pays : United States
Informations de copyright
Copyright © 2022 Wolters Kluwer Health, Inc. All rights reserved.
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