Need for transition medicine in pediatric surgery - health related quality of life in adolescents and young adults with congenital malformations.

Hirschsprung’s disease anorectal malformations biliary atresia coledochal cyst congenital diaphragmatic hernia esophageal atresia health-related quality of life transition medicine

Journal

Innovative surgical sciences
ISSN: 2364-7485
Titre abrégé: Innov Surg Sci
Pays: Germany
ID NLM: 101708165

Informations de publication

Date de publication:
01 Dec 2021
Historique:
received: 26 04 2021
accepted: 13 08 2021
entrez: 8 8 2022
pubmed: 9 8 2022
medline: 9 8 2022
Statut: epublish

Résumé

Survival rates of patients with visceral congenital malformations have increased considerably. However, long-term morbidity in these patients is high. In the last decades, these circumstances have led to a shift in goals of caretakers and researchers with a new focus on patients' perspectives and long-term morbidity. Health-related quality of life (HrQoL) is the most commonly used patient-reported outcome measure to assess the impact of chronic symptoms on patients' everyday lives. Most pediatric surgical conditions can cause a significantly decreased HrQoL in affected patients compared to the healthy population. In order to guarantee life-long care and to minimize the impact on HrQoL a regular interdisciplinary follow-up is obligatory. The period of transition from child-centered to adult-oriented medicine represents a critical phase in the long-term care of these complex patients. This scoping review aims to summarize relevant pediatric surgical conditions focusing on long-term-morbidity and HrQoL assessment in order to demonstrate the necessity for a well-structured and standardized transition for pediatric surgical patients.

Identifiants

pubmed: 35937850
doi: 10.1515/iss-2021-0019
pii: iss-2021-0019
pmc: PMC9294337
doi:

Types de publication

Journal Article Review

Langues

eng

Pagination

151-160

Informations de copyright

© 2021 Marie Uecker et al., published by De Gruyter, Berlin/Boston.

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Auteurs

Marie Uecker (M)

Center of Pediatric Surgery, Hannover Medical School and Bult Children's Hospital, Hannover, Germany.

Benno Ure (B)

Center of Pediatric Surgery, Hannover Medical School and Bult Children's Hospital, Hannover, Germany.

Julia Hannah Quitmann (JH)

Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.

Jens Dingemann (J)

Center of Pediatric Surgery, Hannover Medical School and Bult Children's Hospital, Hannover, Germany.

Classifications MeSH