Need for transition medicine in pediatric surgery - health related quality of life in adolescents and young adults with congenital malformations.
Hirschsprung’s disease
anorectal malformations
biliary atresia
coledochal cyst
congenital diaphragmatic hernia
esophageal atresia
health-related quality of life
transition medicine
Journal
Innovative surgical sciences
ISSN: 2364-7485
Titre abrégé: Innov Surg Sci
Pays: Germany
ID NLM: 101708165
Informations de publication
Date de publication:
01 Dec 2021
01 Dec 2021
Historique:
received:
26
04
2021
accepted:
13
08
2021
entrez:
8
8
2022
pubmed:
9
8
2022
medline:
9
8
2022
Statut:
epublish
Résumé
Survival rates of patients with visceral congenital malformations have increased considerably. However, long-term morbidity in these patients is high. In the last decades, these circumstances have led to a shift in goals of caretakers and researchers with a new focus on patients' perspectives and long-term morbidity. Health-related quality of life (HrQoL) is the most commonly used patient-reported outcome measure to assess the impact of chronic symptoms on patients' everyday lives. Most pediatric surgical conditions can cause a significantly decreased HrQoL in affected patients compared to the healthy population. In order to guarantee life-long care and to minimize the impact on HrQoL a regular interdisciplinary follow-up is obligatory. The period of transition from child-centered to adult-oriented medicine represents a critical phase in the long-term care of these complex patients. This scoping review aims to summarize relevant pediatric surgical conditions focusing on long-term-morbidity and HrQoL assessment in order to demonstrate the necessity for a well-structured and standardized transition for pediatric surgical patients.
Identifiants
pubmed: 35937850
doi: 10.1515/iss-2021-0019
pii: iss-2021-0019
pmc: PMC9294337
doi:
Types de publication
Journal Article
Review
Langues
eng
Pagination
151-160Informations de copyright
© 2021 Marie Uecker et al., published by De Gruyter, Berlin/Boston.
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