Priorities for rheumatic and musculoskeletal disease research in Ireland.

Arthritis Ecosystem Musculoskeletal diseases Ownership Patient participation Policy Public and patient involvement Research Research priorities Rheumatic diseases

Journal

BMC rheumatology
ISSN: 2520-1026
Titre abrégé: BMC Rheumatol
Pays: England
ID NLM: 101738571

Informations de publication

Date de publication:
11 Aug 2022
Historique:
received: 01 03 2022
accepted: 15 06 2022
entrez: 10 8 2022
pubmed: 11 8 2022
medline: 11 8 2022
Statut: epublish

Résumé

Research priority setting is a useful approach to decide which unanswered questions are most worth trying to solve through research. The aim is to reduce bias in the research agenda. Traditionally, research was decided by funders, policymakers, and academics with limited influence from other stakeholders like people living with health conditions, caregivers, or the community. This can lead to research gaps that fail to address these important stakeholder needs. The objective of this study is to identify the top research priorities for Rheumatic and Musculoskeletal Disease (RMD) research in Ireland. The process framework included a design workshop, two online surveys and a review of the literature. 545 people completed the first survey to identify RMD research topics relevant to Ireland, of which 72% identified as a person living with RMD. 460 people completed the second survey to prioritise these research topics. The first survey had 2185 research topics submitted. These were analysed and grouped into 38 topic areas which were ranked in the second survey. The top three research priorities for RMD research in Ireland focused on preventing RMD progression, RMD diagnosis and its impact, and pain management. The prioritised research topics indicate important areas of RMD research for Ireland. Research funded in response to these co-created research priorities will have increased relevance and impact.

Sections du résumé

BACKGROUND BACKGROUND
Research priority setting is a useful approach to decide which unanswered questions are most worth trying to solve through research. The aim is to reduce bias in the research agenda. Traditionally, research was decided by funders, policymakers, and academics with limited influence from other stakeholders like people living with health conditions, caregivers, or the community. This can lead to research gaps that fail to address these important stakeholder needs. The objective of this study is to identify the top research priorities for Rheumatic and Musculoskeletal Disease (RMD) research in Ireland.
METHODS METHODS
The process framework included a design workshop, two online surveys and a review of the literature.
PARTICIPANTS METHODS
545 people completed the first survey to identify RMD research topics relevant to Ireland, of which 72% identified as a person living with RMD. 460 people completed the second survey to prioritise these research topics.
RESULTS RESULTS
The first survey had 2185 research topics submitted. These were analysed and grouped into 38 topic areas which were ranked in the second survey. The top three research priorities for RMD research in Ireland focused on preventing RMD progression, RMD diagnosis and its impact, and pain management.
CONCLUSIONS CONCLUSIONS
The prioritised research topics indicate important areas of RMD research for Ireland. Research funded in response to these co-created research priorities will have increased relevance and impact.

Identifiants

pubmed: 35948949
doi: 10.1186/s41927-022-00285-9
pii: 10.1186/s41927-022-00285-9
pmc: PMC9365446
doi:

Types de publication

Journal Article

Langues

eng

Pagination

55

Informations de copyright

© 2022. The Author(s).

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Auteurs

Emma R Dorris (ER)

University College Dublin, Belfield, Dublin 04, D04V1W8, Ireland. emma.dorris@ucd.ie.

Stacey Grealis (S)

, Mayo, Ireland.

Karmen Kegl (K)

, Dublin, Ireland.

Norelee Kennedy (N)

Discipline of Physiotherapy, School of Allied Health, Faculty of Education and Health Sciences, University of Limerick and Health Research Institute (HRI), University of Limerick, Limerick, Ireland.

Louise Larkin (L)

Health Research Institute (HRI), University of Limerick, Limerick, Ireland.

Brian Lynch (B)

Arthritis Ireland, Dublin 02, Ireland.

Ailis Moran (A)

UCD School of Biomolecular and Biomedical Science, University College Dublin, Dublin 04, Ireland.

Justine O'Brien (J)

UCD School of Biomolecular and Biomedical Science, University College Dublin, Dublin 04, Ireland.

Stephanie Skeffington (S)

, Tipperary, Ireland.

Kayleigh Slater (K)

UCD School of Biomolecular and Biomedical Science, University College Dublin, Dublin 04, Ireland.

Rebecca Ward (R)

UCD School of Biomolecular and Biomedical Science, University College Dublin, Dublin 04, Ireland.

Allison Willett (A)

UCD College of Social Sciences & Law, University College Dublin, Belfield, Dublin 4, Ireland.

Classifications MeSH