Anti-disialosyl-immunoglobulin M chronic autoimmune neuropathies: a nationwide multicenter retrospective study.


Journal

European journal of neurology
ISSN: 1468-1331
Titre abrégé: Eur J Neurol
Pays: England
ID NLM: 9506311

Informations de publication

Date de publication:
12 2022
Historique:
revised: 30 07 2022
received: 02 06 2022
accepted: 11 08 2022
pubmed: 16 8 2022
medline: 4 11 2022
entrez: 15 8 2022
Statut: ppublish

Résumé

In this retrospective study involving 14 university hospitals from France and Switzerland, the aim was to define the clinicopathological features of chronic neuropathies with anti-disialosyl ganglioside immunoglobulin M (IgM) antibodies (CNDA). Fifty-five patients with a polyneuropathy evolving for more than 2 months and with at least one anti-disialosyl ganglioside IgM antibody, that is, anti-GD1b, -GT1b, -GQ1b, -GT1a, -GD2 and -GD3, were identified. Seventy-eight percent of patients were male, mean age at disease onset was 55 years (30-76) and disease onset was progressive (82%) or acute (18%). Patients presented with limb sensory symptoms (94% of cases), sensory ataxia (85%), oculomotor weakness (36%), limb motor symptoms (31%) and bulbar muscle weakness (18%). Sixty-five percent of patients had a demyelinating polyradiculoneuropathy electrodiagnostic profile and 24% a sensory neuronopathy profile. Anti-GD1b antibodies were found in 78% of cases, whilst other anti-disialosyl antibodies were each observed in less than 51% of patients. Other features included nerve biopsy demyelination (100% of cases), increased cerebrospinal fluid protein content (75%), IgM paraprotein (50%) and malignant hemopathy (8%). Eighty-six percent of CNDA patients were intravenous immunoglobulins-responsive, and rituximab was successfully used as second-line treatment in 50% of cases. Fifteen percent of patients had mild symptoms and were not treated. CNDA course was progressive (55%) or relapsing (45%), and 93% of patients still walked after a mean disease duration of 11 years. Chronic neuropathies with anti-disialosyl ganglioside IgM antibodies have a recognizable phenotype, are mostly intravenous immunoglobulins-responsive and present with a good outcome in a majority of cases.

Sections du résumé

BACKGROUND AND PURPOSE
In this retrospective study involving 14 university hospitals from France and Switzerland, the aim was to define the clinicopathological features of chronic neuropathies with anti-disialosyl ganglioside immunoglobulin M (IgM) antibodies (CNDA).
RESULTS
Fifty-five patients with a polyneuropathy evolving for more than 2 months and with at least one anti-disialosyl ganglioside IgM antibody, that is, anti-GD1b, -GT1b, -GQ1b, -GT1a, -GD2 and -GD3, were identified. Seventy-eight percent of patients were male, mean age at disease onset was 55 years (30-76) and disease onset was progressive (82%) or acute (18%). Patients presented with limb sensory symptoms (94% of cases), sensory ataxia (85%), oculomotor weakness (36%), limb motor symptoms (31%) and bulbar muscle weakness (18%). Sixty-five percent of patients had a demyelinating polyradiculoneuropathy electrodiagnostic profile and 24% a sensory neuronopathy profile. Anti-GD1b antibodies were found in 78% of cases, whilst other anti-disialosyl antibodies were each observed in less than 51% of patients. Other features included nerve biopsy demyelination (100% of cases), increased cerebrospinal fluid protein content (75%), IgM paraprotein (50%) and malignant hemopathy (8%). Eighty-six percent of CNDA patients were intravenous immunoglobulins-responsive, and rituximab was successfully used as second-line treatment in 50% of cases. Fifteen percent of patients had mild symptoms and were not treated. CNDA course was progressive (55%) or relapsing (45%), and 93% of patients still walked after a mean disease duration of 11 years.
CONCLUSION
Chronic neuropathies with anti-disialosyl ganglioside IgM antibodies have a recognizable phenotype, are mostly intravenous immunoglobulins-responsive and present with a good outcome in a majority of cases.

Identifiants

pubmed: 35969369
doi: 10.1111/ene.15523
doi:

Substances chimiques

Immunoglobulin M 0
Immunoglobulins, Intravenous 0
Gangliosides 0

Types de publication

Multicenter Study Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

3547-3555

Informations de copyright

© 2022 European Academy of Neurology.

Références

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Auteurs

Claire Peillet (C)

Neurology Department, APHP, CHU de Bicêtre, Le Kremlin-Bicêtre, France.
French National Reference Center for Rare Neuropathies (NNERF), Le Kremlin-Bicêtre, France.

David Adams (D)

Neurology Department, APHP, CHU de Bicêtre, Le Kremlin-Bicêtre, France.
French National Reference Center for Rare Neuropathies (NNERF), Le Kremlin-Bicêtre, France.
INSERM U1195, Paris-Saclay University, Le Kremlin-Bicêtre, France.

Shahram Attarian (S)

Neurology Department, CHU Timone, Marseille, France.

Françoise Bouhour (F)

Hospices Civils de Lyon, Hôpital Neurologique Pierre Wertheimer, Bron, France.

Cécile Cauquil (C)

Neurology Department, APHP, CHU de Bicêtre, Le Kremlin-Bicêtre, France.
French National Reference Center for Rare Neuropathies (NNERF), Le Kremlin-Bicêtre, France.
INSERM U1195, Paris-Saclay University, Le Kremlin-Bicêtre, France.

Julien Cassereau (J)

Reference Centre for Neuromuscular Disorders, Department of Neurology, Angers University Hospital, Angers, France.

Jean-Baptiste Chanson (JB)

Department of Neurology, Reference Center for Neuromuscular Disorders NEIDF, University Hospital of Strasbourg, Strasbourg, France.

Pascal Cintas (P)

Unité de Neurologie, CHU Toulouse, Toulouse, France.

Alain Creange (A)

Service de Neurologie, CHU Henri Mondor, APHP, UPEC, Créteil, France.

Emilien Delmont (E)

Neurology Department, CHU Timone, Marseille, France.

Guillaume Fargeot (G)

Department of Clinical Neurophysiology, APHP, CHU Pitié-Salpêtrière, Paris, France.

Steeve Genestet (S)

Department of Clinical Neurophysiology, University Hospital, Paris, France.

Antoine Gueguen (A)

Department of Neurology, Fondation Ophtalmologique A. de Rothschild, Paris, France.

Anne Laure Kaminsky (AL)

Department of Neurology, Reference Center for Neuromuscular Disorders NEIDF, University Hospital of Nancy, Nancy, France.

Thierry Kuntzer (T)

Nerve-Muscle Unit, Department of Clinical Neurosciences, Lausanne University Hospital (CHUV) and University of Lausanne, Lausanne, Switzerland.

Céline Labeyrie (C)

Neurology Department, APHP, CHU de Bicêtre, Le Kremlin-Bicêtre, France.
French National Reference Center for Rare Neuropathies (NNERF), Le Kremlin-Bicêtre, France.
INSERM U1195, Paris-Saclay University, Le Kremlin-Bicêtre, France.

Maud Michaud (M)

Department of Neurology, Reference Center for Neuromuscular Disorders NEIDF, University Hospital of Nancy, Nancy, France.

Yann Pereon (Y)

Reference Centre for Neuromuscular Disorders AOC Filnemus, Euro-NMD, Hôtel-Dieu, Nantes University Hospital, Nantes, France.

Angela Puma (A)

Peripheral Nervous System and Muscle Department, Côte d'Azur University, Nice University Hospital, Nice, France.

Karine Viala (K)

Department of Clinical Neurophysiology, APHP, CHU Pitié-Salpêtrière, Paris, France.

Pascale Chretien (P)

Clinical Immunology Laboratory, APHP, CHU Bicêtre, Le Kremlin-Bicêtre, France.
Université de Paris, CNRS, INSERM, UTCBS, Unité Des Technologies Chimiques et Biologiques Pour la Santé, Paris, France.

Clovis Adam (C)

Pathology Department, APHP, CHU de Bicêtre, Le Kremlin-Bicêtre, France.

Andoni Echaniz-Laguna (A)

Neurology Department, APHP, CHU de Bicêtre, Le Kremlin-Bicêtre, France.
French National Reference Center for Rare Neuropathies (NNERF), Le Kremlin-Bicêtre, France.
INSERM U1195, Paris-Saclay University, Le Kremlin-Bicêtre, France.

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