The Management of Asymptomatic Congenital Pulmonary Airway Malformation: Results of a European Delphi Survey.

congenital lung abnormalities congenital pulmonary airway malformation consensus core outcome set outcome parameters

Journal

Children (Basel, Switzerland)
ISSN: 2227-9067
Titre abrégé: Children (Basel)
Pays: Switzerland
ID NLM: 101648936

Informations de publication

Date de publication:
30 Jul 2022
Historique:
received: 27 06 2022
revised: 14 07 2022
accepted: 20 07 2022
entrez: 26 8 2022
pubmed: 27 8 2022
medline: 27 8 2022
Statut: epublish

Résumé

Consensus on the optimal management of asymptomatic congenital pulmonary airway malformation (CPAM) is lacking, and comparison between studies remains difficult due to a large variety in outcome measures. We aimed to define a core outcome set (COS) for pediatric patients with an asymptomatic CPAM. An online, three-round Delphi survey was conducted in two stakeholder groups of specialized caregivers (surgeons and non-surgeons) in various European centers. Proposed outcome parameters were scored according to level of importance, and the final COS was established through consensus. A total of 55 participants (33 surgeons, 22 non-surgeons) from 28 centers in 13 European countries completed the three rounds and rated 43 outcome parameters. The final COS comprises seven outcome parameters: respiratory insufficiency, surgical complications, mass effect/mediastinal shift (at three time-points) and multifocal disease (at two time-points)

Identifiants

pubmed: 36010044
pii: children9081153
doi: 10.3390/children9081153
pmc: PMC9406306
pii:
doi:

Types de publication

Journal Article

Langues

eng

Références

BMJ Paediatr Open. 2017 Aug 11;1(1):e000151
pubmed: 29637158
Ann Thorac Surg. 2001 Aug;72(2):604-5
pubmed: 11515907
PLoS Med. 2011 Jan 25;8(1):e1000393
pubmed: 21283604
Pediatr Int. 2021 Jun;63(6):704-709
pubmed: 32991002
J Pediatr Surg. 2018 Jun;53(6):1092-1097
pubmed: 29576400
Pediatrics. 2021 Apr;147(4):
pubmed: 33762310
Pediatr Pulmonol. 2009 Jan;44(1):14-30
pubmed: 19061226
Crit Care Med. 2019 Oct;47(10):1324-1331
pubmed: 31356474
Front Med. 2013 Sep;7(3):316-27
pubmed: 23666611
J Pediatr Surg. 1996 Jun;31(6):805-8
pubmed: 8783108
Am J Perinatol. 2019 Feb;36(3):225-232
pubmed: 30199894
Eur J Pediatr Surg. 2011 Jan;21(1):2-7
pubmed: 21104589
Arch Dis Child. 2017 Sep;102(9):798-803
pubmed: 28584070
J Pediatr Surg. 2012 May;47(5):852-6
pubmed: 22595560
Neonatology. 2016;110(2):101-15
pubmed: 27070354
Pediatr Pulmonol. 2016 Dec;51(12):1367-1372
pubmed: 27232731
Semin Pediatr Surg. 2015 Aug;24(4):183-6
pubmed: 26051051
Pediatr Surg Int. 2018 Jun;34(6):613-620
pubmed: 29632964
J Pediatr Surg. 2004 Apr;39(4):549-56
pubmed: 15065026
Prenat Diagn. 2000 Jun;20(6):459-64
pubmed: 10861709
BMJ Open. 2019 May 22;9(5):e028861
pubmed: 31123006
Pediatr Pulmonol. 2020 Nov;55(11):3152-3161
pubmed: 32808750
Ann R Coll Surg Engl. 2013 Mar;95(2):144-7
pubmed: 23484999
Semin Respir Crit Care Med. 2007 Jun;28(3):355-66
pubmed: 17562505
Eur J Pediatr. 2017 Dec;176(12):1559-1571
pubmed: 29046943
Semin Pediatr Surg. 2015 Aug;24(4):187-95
pubmed: 26051052
J Pediatr Surg. 2004 Mar;39(3):329-34; discussion 329-34
pubmed: 15017547
Am J Surg Pathol. 2003 Aug;27(8):1139-46
pubmed: 12883247
Eur J Pediatr Surg. 2018 Feb;28(1):1-5
pubmed: 28709163
BMJ Open. 2021 Apr 12;11(4):e044544
pubmed: 33846152
J Pediatr Surg. 2016 Mar;51(3):508-12
pubmed: 26775193
Neonatology. 2013;103(1):60-6
pubmed: 23108035
J Pediatr Surg. 2009 May;44(5):1027-33
pubmed: 19433193
J Pediatr Surg. 2010 Jun;45(6):1086-9
pubmed: 20620300
Fetal Diagn Ther. 2017;41(1):58-65
pubmed: 27174294
Paediatr Respir Rev. 2021 Mar;37:80-88
pubmed: 32178987
J Pediatr Surg. 2017 Dec;52(12):1891-1897
pubmed: 28951013
Trials. 2017 Jun 20;18(Suppl 3):280
pubmed: 28681707
BMJ Open. 2020 Nov 23;10(11):e040223
pubmed: 33234639
Int J Gynaecol Obstet. 2005 May;89(2):99-102
pubmed: 15847870
Am J Clin Pathol. 1991 Jun;95(6):889-92
pubmed: 1645926
Pediatr Pulmonol. 2019 Aug;54(8):1326-1334
pubmed: 31012287
Pediatr Surg Int. 1999 Jul;15(5-6):332-5
pubmed: 10415280
J Pediatr Surg. 2003 Apr;38(4):548-52
pubmed: 12677563
Semin Pediatr Surg. 2014 Oct;23(5):270-7
pubmed: 25459011

Auteurs

Casper M Kersten (CM)

Department of Pediatric Surgery, Erasmus MC Sophia Children's Hospital, 3015 GD Rotterdam, The Netherlands.

Sergei M Hermelijn (SM)

Department of Pediatric Surgery, Erasmus MC Sophia Children's Hospital, 3015 GD Rotterdam, The Netherlands.

Dhanya Mullassery (D)

Department of Pediatric Surgery, Great Ormond Street Hospital, London WC1N 3JH, UK.

Nagarajan Muthialu (N)

Department of Pediatric Surgery, Great Ormond Street Hospital, London WC1N 3JH, UK.

Nazan Cobanoglu (N)

Department of Pediatric Pulmonology, Ankara University School of Medicine, 06620 Ankara, Turkey.

Silvia Gartner (S)

Department of Pediatric Pulmonology and Cystic Fibrosis, Hospital Universitari Vall d'Hebron, 08035 Barcelona, Spain.

Pietro Bagolan (P)

Department of Fetus, Newborn and Infant, Bambino Gesù Pediatric Hospital, Tor Vergata University, 00165 Rome, Italy.

Carmen Mesas Burgos (C)

Department of Pediatric Surgery, Karolinska Institutet, 171 77 Stockholm, Sweden.

Alberto Sgrò (A)

Department of Pediatric Surgery, University Hospital Padua, 35128 Padua, Italy.

Stijn Heyman (S)

Department of Pediatric Surgery, ZNA-GZA Children's Hospital, 2020 Antwerp, Belgium.

Holger Till (H)

Department of Pediatric Surgery, Medical University of Graz, 8036 Graz, Austria.

Janne Suominen (J)

Department of Pediatric Surgery, Helsinki Children's Hospital, 00290 Helsinki, Finland.

Maarten Schurink (M)

Department of Pediatric Surgery, Radboud University Medical Centre, Amalia Children's Hospital, 3525 GA Nijmegen, The Netherlands.

Liesbeth Desender (L)

Department of Pediatric Surgery, Ghent University Hospital, 9000 Ghent, Belgium.

Paul Losty (P)

Department of Pediatric Surgery, Institute of Life Course and Medical Sciences, University of Liverpool, Liverpool L69 72B, UK.

Henri Steyaert (H)

Department of Pediatric Surgery, Queen Fabiola Children's University Hospital, 1020 Brussels, Belgium.

Suzanne Terheggen-Lagro (S)

Department of Pediatric Pulmonology, Emma Children's Hospital Amsterdam University Medical Centers, 1105 AZ Amsterdam, The Netherlands.

Martin Metzelder (M)

Department of Pediatric Surgery, Medizinische Universität Wien, 1090 Vienna, Austria.

Arnaud Bonnard (A)

Department of Pediatric Surgery, Hôpital Universitaire Robert Debré, 75019 Paris, France.

Rony Sfeir (R)

Department of Pediatric Surgery, Hôpital Jeanne de Flandre, 59000 Lille, France.

Michael Singh (M)

Department of Pediatric Surgery, Birmingham Children's Hospital, Birmingham B4 6NH, UK.

Iain Yardley (I)

Department of Pediatric Surgery, Evelina London Children's Hospital, London SE1 7EH, UK.

Noor R V M Rikkers-Mutsaerts (NRVM)

Department of Pediatric Pulmonology, Leiden University Medical Centre, 2033 ZA Leiden, The Netherlands.

Cornelis K van der Ent (CK)

Department of Pediatric Pulmonology, University Medical Centre Utrecht, 3584 CX Utrecht, The Netherlands.

Niels Qvist (N)

Department of Pediatric Surgery, Odense University Hospital, 5000 Odense, Denmark.

Des W Cox (DW)

Department of Pediatric Pulmonology, Children's Health Ireland at Crumlin, D12 N512 Dublin, Ireland.

Robert Peters (R)

Department of Pediatric Surgery, Royal Manchester Children's Hospital, Manchester M13 9WL, UK.

Michiel A G E Bannier (MAGE)

Department of Pediatric Pulmonology, Maastricht University Medical Centre, 6229 HX Maastricht, The Netherlands.

Lucas Wessel (L)

Department of Pediatric Surgery, University Hospital Mannheim, 68167 Mannheim, Germany.

Marijke Proesmans (M)

Department of Pediatric Pulmonology, University Hospital Leuven, 3000 Leuven, Belgium.

Michael Stanton (M)

Department of Pediatric Surgery, University Hospital Southampton, Southampton SO16 6YD, UK.

Edward Hannon (E)

Department of Pediatric Surgery, Leeds Children's Hospital, Leeds LS1 3EX, UK.

Marco Zampoli (M)

Department of Pediatric Pulmonology, Red Cross War Memorial Children's Hospital, Cape Town 7700, South Africa.

Francesco Morini (F)

Department of Neonatal Surgery, Azienda Ospedaliero Universitaria Meyer, 50139 Florence, Italy.

Harm A W M Tiddens (HAWM)

Department of Pediatric Pulmonology and Allergology, Department of Radiology, Erasmus MC Sophia Children's Hospital, 3015 GD Rotterdam, The Netherlands.

René M H Wijnen (RMH)

Department of Pediatric Surgery, Erasmus MC Sophia Children's Hospital, 3015 GD Rotterdam, The Netherlands.

Johannes M Schnater (JM)

Department of Pediatric Surgery, Erasmus MC Sophia Children's Hospital, 3015 GD Rotterdam, The Netherlands.

Classifications MeSH