Making Research More Inclusive: Is Universal Design of Research the Answer?

Universal design of research experimental design user diversity

Journal

Studies in health technology and informatics
ISSN: 1879-8365
Titre abrégé: Stud Health Technol Inform
Pays: Netherlands
ID NLM: 9214582

Informations de publication

Date de publication:
02 Sep 2022
Historique:
entrez: 8 9 2022
pubmed: 9 9 2022
medline: 11 9 2022
Statut: ppublish

Résumé

Researchers typically declare in the methods section of scientific papers that the study included a representative sample. A closer look at the composition of participant groups, however, reveal that these samples are typically based on criteria such as age, educational background, and a binary gender division. Nothing is mentioned about other characteristics e.g., functional, or neurocognitive variations. Consequently, many "representative samples" do not really represent the whole population, but rather the majority. In this perspective paper, we argue that there is a need for more inclusive research considering the broad diversity of people. We discuss whether Universal Design of Research (UDR) is a purposeful approach. We go through the proposed definition of UDR and apply three topics as examples, namely participant characteristics, communication, and study design. The overall conclusion is that UDR might be purposeful for many studies but is not ethical or purposeful in all types of research. There is, however, a need for a more precise and comprehensive definition of UDR to comply with ethical requirements and to be purposeful for researchers. We therefore conclude by suggesting a revised definition.

Identifiants

pubmed: 36073381
pii: SHTI220823
doi: 10.3233/SHTI220823
doi:

Types de publication

Journal Article

Langues

eng

Pagination

77-84

Auteurs

Gerd Berget (G)

Dep. of Archivistics, Library and Information Science, Oslo Metropolitan University.

Birgit Kvikne (B)

Dep. of Archivistics, Library and Information Science, Oslo Metropolitan University.

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Classifications MeSH