High Hereditary Transthyretin-Related Amyloidosis Prevalence in Crete: Genetic Heterogeneity and Distinct Phenotypes.


Journal

Neurology. Genetics
ISSN: 2376-7839
Titre abrégé: Neurol Genet
Pays: United States
ID NLM: 101671068

Informations de publication

Date de publication:
Oct 2022
Historique:
received: 10 01 2022
accepted: 01 06 2022
entrez: 14 9 2022
pubmed: 15 9 2022
medline: 15 9 2022
Statut: epublish

Résumé

Our goal was to study hereditary transthyretin-related amyloidosis (hATTR) in Crete, Greece. We aimed at ascertaining all hATTR cases in Crete, an island of 0.62 million people. For this, we evaluated patients with polyneuropathy, autonomic involvement, cardiomyopathy, and/or ophthalmopathy suggestive of hATTR, who presented to the physicians of this study or were referred to them by other physicians. Genetic analyses were performed on all patients suspected of suffering from hATTR. We included in our observational longitudinal cohort study all individuals, residents of Crete, who, during the study period (1993-2019), were found to carry a pathogenic Over the past 27 years, 30 individuals (15 female patients, 15 male patients), from 12 apparently unrelated families, were diagnosed with hATTR, whereas evaluation of their offspring identified 5 asymptomatic Our study revealed that the prevalence of hATTR in Crete is one of the world's highest. Three different pathogenic

Sections du résumé

Background and Objectives UNASSIGNED
Our goal was to study hereditary transthyretin-related amyloidosis (hATTR) in Crete, Greece.
Methods UNASSIGNED
We aimed at ascertaining all hATTR cases in Crete, an island of 0.62 million people. For this, we evaluated patients with polyneuropathy, autonomic involvement, cardiomyopathy, and/or ophthalmopathy suggestive of hATTR, who presented to the physicians of this study or were referred to them by other physicians. Genetic analyses were performed on all patients suspected of suffering from hATTR. We included in our observational longitudinal cohort study all individuals, residents of Crete, who, during the study period (1993-2019), were found to carry a pathogenic
Results UNASSIGNED
Over the past 27 years, 30 individuals (15 female patients, 15 male patients), from 12 apparently unrelated families, were diagnosed with hATTR, whereas evaluation of their offspring identified 5 asymptomatic
Discussion UNASSIGNED
Our study revealed that the prevalence of hATTR in Crete is one of the world's highest. Three different pathogenic

Identifiants

pubmed: 36101541
doi: 10.1212/NXG.0000000000200013
pii: NNG-2022-200016
pmc: PMC9465837
doi:

Types de publication

Journal Article

Langues

eng

Pagination

e200013

Informations de copyright

Copyright © 2022 The Author(s). Published by Wolters Kluwer Health, Inc. on behalf of the American Academy of Neurology.

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Auteurs

Minas Tzagournissakis (M)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Emmanouil Foukarakis (E)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Dimitrios Samonakis (D)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Miltiadis Tsilimbaris (M)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Kleita Michaelidou (K)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Lambros Mathioudakis (L)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Anastasios Marinis (A)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Emmanouil Giannakoudakis (E)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Cleanthe Spanaki (C)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Irene Skoula (I)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Sofia Erimaki (S)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Georgios Amoiridis (G)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Georgios Koutsis (G)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Sofia Koukouraki (S)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Kostas Stylianou (K)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Andreas Plaitakis (A)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Panayiotis D Mitsias (PD)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Ioannis Zaganas (I)

Neurology Department (M. Tzagournissakis, C.S., S.E., P.D.M., I.Z.), University Hospital of Heraklion; Cardiology Department (E.F.), Venizelion General Hospital of Heraklion; Gastroenterology Department (D.S.), and Ophthalmology Department (M. Tsilimbaris), University Hospital of Heraklion; Neurogenetics Laboratory (K.M., L.M., A.M., I.S., G.A., A.P., I.Z.), Medical School, University of Crete, Heraklion; Neurology Department (E.G.), Venizelion General Hospital of Heraklion, Crete; Eginition Hospital (G.K.), Medical School, University of Athens; Nuclear Medicine Department (S.K.), University Hospital of Heraklion; and Renal Medicine Department (K.S.), University Hospital of Heraklion, Crete, Greece.

Classifications MeSH