Using a biopsychosocial approach to examine parental sense of burden and competency associated with raising a child with a physical disability.
Impact on Family Scale
caregiver burden
disability
paediatrics
rehabilitation
Journal
Child: care, health and development
ISSN: 1365-2214
Titre abrégé: Child Care Health Dev
Pays: England
ID NLM: 7602632
Informations de publication
Date de publication:
05 2023
05 2023
Historique:
revised:
23
07
2022
received:
17
01
2022
accepted:
30
09
2022
medline:
14
4
2023
pubmed:
9
10
2022
entrez:
8
10
2022
Statut:
ppublish
Résumé
Parents report both positive and negative experiences associated with raising a child with a physical disability. However, distinctive factors may affect children and families differently. Using a biopsychosocial approach, the current study expands on the existing literature on the general impact of raising a child with a disability. Participants were 98 parents of children/youth with a physical disability. Parents reported on child's level of physical disability, the impact of the disability on the family (financial, social, personal strain and mastery) and their general health. Data were analysed to examine how different biopsychosocial factors are associated with raising a child with a physical disability. Parents reported that child's disability had a higher social impact, compared with the financial and personal burden, as well as compared with their sense of competency and mastery. Child's level of disability was associated with financial burden, whereas parental emotional distress was associated with parents' personal and social burden, with the latter also associated with parent's religiosity. Total impact was associated with parental emotional distress and educational level. Altogether, parental characteristics, but not child's characteristics, were associated with greater caregiver burden. Furthermore, the social impact a child's physical disability has on the family exceeded other sources of burden within the family. Providing parents social and emotional support, tailored to their unique biopsychosocial needs, may mitigate burden and distress, and increase sense of competency among families of children with a physical disability.
Sections du résumé
BACKGROUND
Parents report both positive and negative experiences associated with raising a child with a physical disability. However, distinctive factors may affect children and families differently.
AIMS
Using a biopsychosocial approach, the current study expands on the existing literature on the general impact of raising a child with a disability.
METHODS
Participants were 98 parents of children/youth with a physical disability. Parents reported on child's level of physical disability, the impact of the disability on the family (financial, social, personal strain and mastery) and their general health. Data were analysed to examine how different biopsychosocial factors are associated with raising a child with a physical disability.
RESULTS
Parents reported that child's disability had a higher social impact, compared with the financial and personal burden, as well as compared with their sense of competency and mastery. Child's level of disability was associated with financial burden, whereas parental emotional distress was associated with parents' personal and social burden, with the latter also associated with parent's religiosity. Total impact was associated with parental emotional distress and educational level.
CONCLUSIONS
Altogether, parental characteristics, but not child's characteristics, were associated with greater caregiver burden. Furthermore, the social impact a child's physical disability has on the family exceeded other sources of burden within the family. Providing parents social and emotional support, tailored to their unique biopsychosocial needs, may mitigate burden and distress, and increase sense of competency among families of children with a physical disability.
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
518-528Informations de copyright
© 2022 The Authors. Child: Care, Health and Development published by John Wiley & Sons Ltd.
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