Life expectancy in multiple sclerosis by EDSS score.


Journal

Multiple sclerosis and related disorders
ISSN: 2211-0356
Titre abrégé: Mult Scler Relat Disord
Pays: Netherlands
ID NLM: 101580247

Informations de publication

Date de publication:
Dec 2022
Historique:
received: 06 07 2022
revised: 24 09 2022
accepted: 04 10 2022
pubmed: 17 10 2022
medline: 15 12 2022
entrez: 16 10 2022
Statut: ppublish

Résumé

The median survival time of newly-diagnosed MS patients without severe disabilities is approximately 30-35 years. The prognosis after the onset of severe disability has not been reported. Based on Harding et al.'s 2018 study of the Southeast Wales MS registry, we calculated life expectancies according to the Expanded Disability Status Scale (EDSS). Upon loss of independent ambulation (EDSS 6-6.5; mean age 51.2) life expectancy was 13.3 additional years. At EDSS 9-9.5 (mean age 70.8) life expectancy was 1.1 additional years. These figures provide an empirical basis for discussions of advanced MS care planning.

Identifiants

pubmed: 36244189
pii: S2211-0348(22)00724-6
doi: 10.1016/j.msard.2022.104219
pii:
doi:

Types de publication

Letter

Langues

eng

Sous-ensembles de citation

IM

Pagination

104219

Subventions

Organisme : Medical Research Council
ID : MR/L010305/1
Pays : United Kingdom

Informations de copyright

Copyright © 2022 Elsevier B.V. All rights reserved.

Déclaration de conflit d'intérêts

Declarations of Competing Interest Lucas Walz has no conflicts of interest. Jordan Brooks and Robert Shavelle have served as expert witnesses on life expectancy for persons with neurological disabilities including some with multiple sclerosis. Neil Robertson has received honoraria and/or support to attend educational meetings from Biogen, Novartis, Genzyme, Teva, Roche. His research group has also received research support from Biogen, Novartis and Genzyme. Katharine Harding has received honoraria and/or support to attend educational meetings from Biogen, Novartis, Merck Serono, and Roche.

Auteurs

Lucas Walz (L)

Life Expectancy Project, 1439 17th Avenue San Francisco, CA 94122, USA.

Jordan C Brooks (JC)

Life Expectancy Project, 1439 17th Avenue San Francisco, CA 94122, USA.

Robert M Shavelle (RM)

Life Expectancy Project, 1439 17th Avenue San Francisco, CA 94122, USA.

Neil Robertson (N)

Institute of Psychological Medicine and Clinical Neuroscience, Cardiff University, University Hospital of Wales, Heath Park, Cardiff, United Kingdom; Helen Durham Centre for Neuroinflammatory Disease, Department of Neurology, University Hospital of Wales, Heath Park, Cardiff, United Kingdom.

Katharine E Harding (KE)

Institute of Psychological Medicine and Clinical Neuroscience, Cardiff University, University Hospital of Wales, Heath Park, Cardiff, United Kingdom; Aneurin Bevan University Health Board, Department of Neurology, Royal Gwent Hospital, Cardiff Road, Newport NP20 2UB, United Kingdom. Electronic address: katharineharding@doctors.org.uk.

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Classifications MeSH