"It's part of our life now": a qualitative exploration of the social eating experiences of family members of patients living with head and neck cancer.
Carer
Commensality
Eating
Family
Head and neck cancer
Social
Journal
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer
ISSN: 1433-7339
Titre abrégé: Support Care Cancer
Pays: Germany
ID NLM: 9302957
Informations de publication
Date de publication:
Dec 2022
Dec 2022
Historique:
received:
08
07
2022
accepted:
20
10
2022
pubmed:
29
10
2022
medline:
6
12
2022
entrez:
28
10
2022
Statut:
ppublish
Résumé
Family members (FMs) of patients with head and neck cancer (HNC) report a change in their social eating experience. They miss out on the opportunities and benefits that eating with others provides. However, few studies investigate FM's social eating experiences, with existing research primarily focusing on the patient experience. Therefore, the aim of this study was to explore the social eating experiences of FMs of patients who have had treatment for HNC. A qualitative research design using semi-structured interviews was used to understand FM's social eating experiences. Key themes were inductively developed from the data using reflexive thematic analysis. Twelve interviews were conducted with FMs, and three key themes were identified: (1) changes and challenges experienced by FMs due to HNC patients' social eating difficulties, (2) living with social eating changes is a balancing act, and (3) FMs' efforts to promote social eating for a patient with HNC. FMs expressed significant changes to their social eating habits within and outside the home, indicating the need for support to meet their own emotional, psychological and social needs. FMs experience many demands and tensions, having to balance the psychological impact they experience, which are often minimised, whilst attempting to find the best ways to support, protect and encourage their loved ones to adjust and adapt to social eating changes. Therefore, interventions need to support FMs' challenges and equip them to know how to best support patients living with HNC and themselves.
Identifiants
pubmed: 36307655
doi: 10.1007/s00520-022-07427-2
pii: 10.1007/s00520-022-07427-2
pmc: PMC9615617
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
10159-10167Informations de copyright
© 2022. The Author(s).
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