Understanding the role and deployment of volunteers within specialist palliative care services and organisations as they have adjusted to the COVID-19 pandemic: A multi-national EAPC volunteer taskforce survey.

COVID-19 COVID-19 pandemic hospices palliative care volunteers workforce

Journal

Palliative medicine
ISSN: 1477-030X
Titre abrégé: Palliat Med
Pays: England
ID NLM: 8704926

Informations de publication

Date de publication:
02 2023
Historique:
pubmed: 27 11 2022
medline: 1 2 2023
entrez: 26 11 2022
Statut: ppublish

Résumé

Early indications were of a major decline in specialist palliative care volunteer numbers during COVID-19. It is important that ongoing deployment and role of volunteers is understood, given the dependence of many palliative care services on volunteers for quality care provision. To understand the roles and deployment of volunteers in specialist palliative care services as they have adjusted to the impact of COVID-19. Observational multi-national study, using a cross-sectional online survey with closed and free-text option questions. Disseminated via social media, palliative care networks and key collaborators from May to July 2021. Any specialist palliative care setting in any country, including hospices, day hospices, hospital based or community teams. The person responsible for managing the deployment of volunteers was invited to complete the survey. Valid responses were received from 304 organisations (35 countries, 80.3% Europe). Most cared for adults only (60.9%), provided in-patient care (62.2%) and were non-profit (62.5%). 47.0% had cared for people with COVID-19. 47.7% changed the way they deployed volunteers; the mean number of active volunteers dropped from 203 per organisation to 33, and 70.7% reported a decrease in volunteers in direct patient/family facing roles. There was a shift to younger volunteers. 50.6% said this drop impacted care provision, increasing staff workload and pressure, decreasing patient support, and increasing patient isolation and loneliness. The sustained reduction in volunteer deployment has impacted the provision of specialist palliative care. Urgent consideration must be given to the future of volunteering including virtual modes of delivery, micro-volunteering, and appealing to a younger demographic.

Sections du résumé

BACKGROUND
Early indications were of a major decline in specialist palliative care volunteer numbers during COVID-19. It is important that ongoing deployment and role of volunteers is understood, given the dependence of many palliative care services on volunteers for quality care provision.
AIM
To understand the roles and deployment of volunteers in specialist palliative care services as they have adjusted to the impact of COVID-19.
DESIGN
Observational multi-national study, using a cross-sectional online survey with closed and free-text option questions. Disseminated via social media, palliative care networks and key collaborators from May to July 2021.
SETTING/PARTICIPANTS
Any specialist palliative care setting in any country, including hospices, day hospices, hospital based or community teams. The person responsible for managing the deployment of volunteers was invited to complete the survey.
RESULTS
Valid responses were received from 304 organisations (35 countries, 80.3% Europe). Most cared for adults only (60.9%), provided in-patient care (62.2%) and were non-profit (62.5%). 47.0% had cared for people with COVID-19. 47.7% changed the way they deployed volunteers; the mean number of active volunteers dropped from 203 per organisation to 33, and 70.7% reported a decrease in volunteers in direct patient/family facing roles. There was a shift to younger volunteers. 50.6% said this drop impacted care provision, increasing staff workload and pressure, decreasing patient support, and increasing patient isolation and loneliness.
CONCLUSION
The sustained reduction in volunteer deployment has impacted the provision of specialist palliative care. Urgent consideration must be given to the future of volunteering including virtual modes of delivery, micro-volunteering, and appealing to a younger demographic.

Identifiants

pubmed: 36428254
doi: 10.1177/02692163221135349
pmc: PMC9705505
doi:

Types de publication

Observational Study Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

203-214

Auteurs

Catherine Walshe (C)

International Observatory on End of Life Care, Division of Health Research, Lancaster University, Lancaster, UK.

Leszek Pawłowski (L)

Department of Palliative Medicine, Medical University of Gdańsk, Gdańsk, Poland.

Sophie Shedel (S)

Lancaster University, Lancaster, UK.

Steven Vanderstichelen (S)

Vrije Universiteit Brussel, Gent, Belgium.

Melissa J Bloomer (MJ)

Griffith University School of Nursing and Midwifery & Princess Alexandra Hospital Intensive Care Unit, Brisbane, QLD, Australia.

Anne Goossensen (A)

University of Humanistic Studies, Utrecht, The Netherlands.

Joaquín T Limonero (JT)

Universitat Autònoma de Barcelona, Bellaterra (Cerdanyola del Vallès), Barcelona, Spain.

Karen Sangild Stoelen (KS)

University College Copenhagen, Copenhagen, Denmark.

Chiara Caraffa (C)

Italian Federation for Palliative Care, Milan, Italy.

Leena Pelttari (L)

Hospice Austria, Vienna, Austria.

Ros Scott (R)

University of Dundee, Dundee, Scotland, UK.

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