Assessment of Orofacial Symptoms in Juvenile Idiopathic Arthritis: Validation of a Consensus-Based Short Patient Questionnaire.


Journal

The Journal of rheumatology
ISSN: 0315-162X
Titre abrégé: J Rheumatol
Pays: Canada
ID NLM: 7501984

Informations de publication

Date de publication:
05 2023
Historique:
accepted: 09 11 2022
medline: 3 5 2023
pubmed: 2 12 2022
entrez: 1 12 2022
Statut: ppublish

Résumé

To develop, validate, and test the performance of patient-reported outcomes (PROs) in a short patient questionnaire (< 5 minutes in length) in order to assess the multidimensional aspects of orofacial symptoms related to juvenile idiopathic arthritis (JIA) among patients aged ≥ 10 years. The study was conducted by an interdisciplinary task force from the Temporomandibular Joint Juvenile Arthritis Working Group. The project consisted of a multiphased approach including the following: (1) conceptual phase with online international survey of 167 healthcare workers, (2) item generation and drafting of preliminary questionnaire(s) (ie, face validity), (3) cognitive script interview and probing (ie, content validity; 16 patients with JIA), (4) assessment of construct validity (ie, convergence and divergence; 53 patients with JIA), (5) test of reliability, and (6) test of clinical performance and psychometric characteristics (95 patients with JIA). In total, 7 PROs were included in the final patient questionnaire: (1) pain frequency, (2) pain intensity, (3) pain location, (4) jaw function, (5) specific questions related to symptoms and dysfunction, (6) changes in face and jaw pain since last visit, and (7) changes in jaw function since last visit. In total, 80% of the patients were able to complete the questionnaire in less than 5 minutes. We have developed and validated a short patient questionnaire to assess the multidimensional aspects of JIA-related orofacial symptoms. The PROs included in our questionnaire show acceptable validity and reliability. The questionnaire is applicable to routine monitoring of subjects with JIA, as well as future research studies.

Identifiants

pubmed: 36455952
pii: jrheum.220667
doi: 10.3899/jrheum.220667
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

676-683

Informations de copyright

Copyright © 2023 by the Journal of Rheumatology.

Auteurs

Peter Stoustrup (P)

P. Stoustrup, DDS, PhD, Associate Professor, Section of Orthodontics, Department of Dentistry and Oral Health, Aarhus University, Aarhus, Denmark; pstoustrup@dent.au.dk.

Hanna Rahimi (H)

H. Rahimi, MD, Department of Paediatrics and Adolescent Medicine, Herlev and Gentofte Hospital, Copenhagen University Hospital, Herlev, Denmark.

Marinka Twilt (M)

M. Twilt, MD, MSCE, PhD, Associate Professor, Department of Pediatrics, Cumming School of Medicine, University of Calgary and Alberta Children's Hospital, Calgary, Alberta, Canada.

Y Ingrid Goh (YI)

Y.I. Goh, PhD, Division of Rheumatology, The Hospital for Sick Children, and Child Health Evaluative Sciences, SickKids Research Institute, Toronto, Ontario, Canada.

Thomas K Pedersen (TK)

T.K. Pedersen, PhD, Consultant Orthodontist, Professor, Department of Oral and Maxillofacial Surgery, Aarhus University Hospital, and Section of Orthodontics, Aarhus University, Denmark.

Troels Herlin (T)

T. Herlin, MD, DMSci, Professor, Paediatric Rheumatology Clinic, Paediatrics and Adolescent Medicine, Aarhus University Hospital, Aarhus, Denmark.

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