Addressing health inequalities in diabetes through research: Recommendations from Diabetes UK's 2022 health inequalities in diabetes workshop.

diabetes health inequalities patient and public involvement research

Journal

Diabetic medicine : a journal of the British Diabetic Association
ISSN: 1464-5491
Titre abrégé: Diabet Med
Pays: England
ID NLM: 8500858

Informations de publication

Date de publication:
04 2023
Historique:
revised: 05 12 2022
received: 07 11 2022
accepted: 10 12 2022
pubmed: 13 12 2022
medline: 15 3 2023
entrez: 12 12 2022
Statut: ppublish

Résumé

To develop a position statement which identifies research priorities to address health inequalities in diabetes and provides recommendations to researchers and research funders on how best to conduct research in these areas. A two-day research workshop was conducted bringing together research experts in diabetes, research experts in health inequalities, healthcare professionals and people living with diabetes. The following key areas were identified as needing increased focus: How can we improve patient and public involvement and engagement to make diabetes research more inclusive of and relevant to diverse communities? How can we improve research design so that the people who could benefit most are represented? How can we use theories from implementation science to facilitate the uptake of research findings into routine practice to reach the populations with highest need? How can we collate and evaluate local innovation projects and disseminate best practice around tackling health inequalities in diabetes? How can we best collect and use data to address health inequalities in diabetes, including the harnessing of real-world and routinely collected data? How could research funders allocate funds to best address health inequalities in diabetes? How do we ensure the research community is representative of the general population? This position statement outlines recommendations to address the urgent need to tackle health inequalities in diabetes through research and calls on the diabetes research community to act upon these recommendations to ensure future research works to eliminate unfair and avoidable disparities in health.

Identifiants

pubmed: 36508339
doi: 10.1111/dme.15024
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

e15024

Subventions

Organisme : Diabetes UK
Pays : United Kingdom

Informations de copyright

© 2022 The Authors. Diabetic Medicine published by John Wiley & Sons Ltd on behalf of Diabetes UK.

Références

Diabetes UK. Diabetes Statistics. Accessed October 19, 2022. https://www.diabetes.org.uk/professionals/position-statements-reports/statistics
National Cardiovascular Intelligence Network (NCVIN), NHS Diabetes Prevention Programme (NHS DPP). Non-Diabetic Hyperglycaemia. Public Health England; 2015.
Public Health England. Health profile for England: 2018. Health Profile for England: 2018. Public Health England; 2018. Accessed October 19, 2022. https://www.gov.uk/government/publications/health-profile-for-england-2018/chapter-5-inequalities-in-health#contribution-of-age-groups-and-causes-of-death-to-the-gap-in-life-expectancy
Khunti K, del Prato S, Mathieu C, Kahn SE, Gabbay RA, Buse JB. Covid-19, hyperglycemia, and new-onset diabetes. Diabetes Care. 2021;44(12):2645-2655. doi:10.2337/dc21-1318
NIHR. Improving inclusion of under-served groups in clinical research: Guidance from INCLUDE project. 2020. Accessed October 19, 2022. https://www.nihr.ac.uk/documents/improving-inclusion-of-under-served-groups-in-clinical-research-guidance-from-include-project/25435
Bodicoat DH, Routen AC, Willis A, et al. Promoting inclusion in clinical trials-a rapid review of the literature and recommendations for action. Trials. 2021;22(1):880. doi:10.1186/s13063-021-05849-7
Gill PS, Redwood S. Editorials: Under-representation of minority ethnic groups in research-call for action. Br J General Practice. 2013;63(612):342-343. doi:10.3399/bjgp13X668456
Wendler D, Kington R, Madans J, et al. Are racial and ethnic minorities less willing to participate in health research? PLoS Med. 2006;3(2):e19. doi:10.1371/journal.pmed.0030019
Dawson S, Campbell SM, Giles SJ, Morris RL, Cheraghi-Sohi S. Black and minority ethnic group involvement in health and social care research: A systematic review. Health Expect. 2018;21(1):3-22. doi:10.1111/hex.12597
Ekezie W, Routen A, Denegri S, Khunti K. Patient and public involvement for ethnic minority research: an urgent need for improvement. J R Soc Med. 2021;114(7):347-350. doi:10.1177/0141076821994274
Fisher JA, Kalbaugh CA. Challenging assumptions about minority participation in US clinical research. Am J Public Health. 2011;101(12):2217-2222. doi:10.2105/AJPH.2011.300279
Staniszewska S, Brett J, Simera I, et al. GRIPP2 reporting checklists: Tools to improve reporting of patient and public involvement in research. BMJ (Online). 2017;358:j3453. doi:10.1136/bmj.j3453
Khunti K, Kumar S, Brodie J. Diabetes UK and South Asian Health Foundation Recommendations on Diabetes Research Priorities for British South Asians; 2009. Accessed October 19, 2022. https://www.diabetes.org.uk/resources-s3/2017-11/south_asian_report.pdf
Rolfe DE, Ramsden VR, Banner D, Graham ID. Using qualitative health research methods to improve patient and public involvement and engagement in research. Res Involv Engagem. 2018;4(1):49. doi:10.1186/s40900-018-0129-8
WHG. Diabetes pilot champions good health in Walsall. Published July 18, 2022. Accessed October 19, 2022. https://www.whg.uk.com/diabetes-pilot-champions-good-health/
Witham MD, Anderson E, Carroll C, et al. Developing a roadmap to improve trial delivery for under-served groups: Results from a UK multi-stakeholder process. Trials. 2020;21(1):694. doi:10.1186/s13063-020-04613-7
Bauer MS, Damschroder L, Hagedorn H, Smith J, Kilbourne AM. An introduction to implementation science for the non-specialist. BMC Psychol. 2015;3(1):32. doi:10.1186/S40359-015-0089-9
May CR, Mair F, Finch T, et al. Development of a theory of implementation and integration: Normalization Process Theory. Implementation Science. 2009;4(1):29. doi:10.1186/1748-5908-4-29
May CR, Cummings A, Girling M, et al. Using Normalization Process Theory in feasibility studies and process evaluations of complex healthcare interventions: A systematic review. Implementation Science. 2018;13(1):80. doi:10.1186/s13012-018-0758-1
Accelerated Access Review: Final Report; 2016. Accessed October 19, 2022. https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/565072/AAR_final.pdf
Lean ME, Leslie WS, Barnes AC, et al. Primary care-led weight management for remission of type 2 diabetes (DiRECT): an open-label, cluster-randomised trial. The Lancet. 2018;391(10120):541-551. doi:10.1016/S0140-6736(17)33102-1
Astbury NM, Aveyard P, Nickless A, et al. Doctor Referral of Overweight People to Low Energy total diet replacement Treatment (DROPLET): Pragmatic randomised controlled trial. BMJ (Online). 2018;362:k3760. doi:10.1136/bmj.k3760
NHS England. The NHS Long Term Plan. 2019.
Valabhji J, Barron E, Bradley D, et al. Early outcomes from the English National Health Service Diabetes prevention programme. Diabetes Care. 2020;43(1):152-160. doi:10.2337/dc19-1425
Bakhai C, Gorton T, Barron E, et al. Early outcomes from the NHS Low Calorie Diet programme pilot. Diabet Med. 2022;39(S1):A23.
Involving People in Their Own Health and Care: Statutory Guidance for Clinical Commissioning Groups and NHS England. Accessed October 19, 2022. https://www.england.nhs.uk/wp-content/uploads/2017/04/ppp-involving-people-health-care-guidance.pdf
Khunti K, Routen A, Banerjee A, Pareek M. The need for improved collection and coding of ethnicity in health research. J Public Health (Oxf). 2021;43(2):e270-e272. doi:10.1093/pubmed/fdaa198
Keith J, Grimm F, Steventon A. How better use of data can help address key challenges facing the NHS. The Health Foundation. 2022;1-16. Accessed October 25, 2022. https://www.health.org.uk/publications/long-reads/how-better-use-of-data-can-help-address-key-challenges-facing-the-nhs
Mc Cord KA, Al-Shahi Salman R, Treweek S, et al. Routinely collected data for randomized trials: Promises, barriers, and implications. Trials. 2018;19(1):29. doi:10.1186/s13063-017-2394-5
Manna DR, Bruijnzeels MA, Mokkink HGA, Berg M. Ethnic specific recommendations in clinical practice guidelines: A first exploratory comparison between guidelines from the USA, Canada, the UK, and the Netherlands. Qual Saf Health Care. 2003;12(5):353-358. doi:10.1136/qhc.12.5.353
Office for National Statistics. Population estimates by ethnic group and religion, England and Wales: 2019. Published December 16, 2019. Accessed October 19, 2022. https://www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/populationestimates/articles/populationestimatesbyethnicgroupandreligionenglandandwales/2019
Higher Education Statistics Agency. Higher Education Staff Statistics: UK 2020/21. Published February 1, 2022. Accessed October 19, 2022. https://www.hesa.ac.uk/news/01-02-2022/sb261-higher-education-staff-statistics
Detailed Ethnicity Analysis of Funding Applicants and Awardees: 2014-15 to 2018-19. 2020. Accessed October 19, 2022. https://www.ukri.org/publications/detailed-analysis-of-ukri-funding-applicants-and-awardees-ethnicity-financial-years-2014-15-to-2018-19/
Crawford C, Greaves E. Socio-Economic, Ethnic and Gender Differences in HE Participation. 2015. Accessed October 19, 2022. https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/474273/BIS-15-85-socio-economic-ethnic-and-gender-differences.pdf
Bhopal K. Academics of colour in elite universities in the UK and the USA: the ‘unspoken system of exclusion.’ Studies in Higher Education Published online 2022. doi:10.1080/03075079.2021.2020746

Auteurs

Jodie Chan (J)

Diabetes UK, Wells Lawrence House, London, UK.

David Blane (D)

General Practice and Primary Care, School of Health and Wellbeing, University of Glasgow, Glasgow, UK.

Pratik Choudhary (P)

Department of Diabetes, School of Life Course Sciences, King's College London, London, UK.

Tahseen A Chowdhury (TA)

The Royal London Hospital, London, UK.

Aaliya Goyal (A)

Black Country Integrated Care Board, Wolverhampton, UK.

Wasim Hanif (W)

University Hospital Birmingham, Birmingham, UK.

Joyce Jacca (J)

North Lewisham Primary Care Network, London, UK.

Rohini Mathur (R)

Centre for Primary Care, Wolfson Institute for Population Health, Queen Mary University of London, London, UK.

Shivani Misra (S)

Division of Metabolism, Digestion & Reproduction, Faculty of Medicine, Imperial College London, London, UK.
Department of Diabetes, Endocrinology & Metabolism, Imperial College Healthcare NHS Trust, London, UK.

Nana Ocran (N)

Diabetes Research Steering Group Member, London, UK.

Martin K Rutter (MK)

Division of Endocrinology, Diabetes and Gastroenterology, Faculty of Biology, Medicine and Health, School of Medical Sciences, University of Manchester, Manchester, UK.
Manchester Diabetes Centre, Central Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, Manchester, UK.

Ruth Studley (R)

Office for National Statistics, Newport, UK.

Shaun Treweek (S)

Health Services Research Unit, University of Aberdeen, Aberdeen, UK.

Jonathan Valabhji (J)

Division of Metabolism, Digestion & Reproduction, Faculty of Medicine, Imperial College London, London, UK.
NHS England, London, UK.

Kamlesh Khunti (K)

Diabetes Research Centre, University of Leicester, Leicester, UK.

Articles similaires

[Redispensing of expensive oral anticancer medicines: a practical application].

Lisanne N van Merendonk, Kübra Akgöl, Bastiaan Nuijen
1.00
Humans Antineoplastic Agents Administration, Oral Drug Costs Counterfeit Drugs

Smoking Cessation and Incident Cardiovascular Disease.

Jun Hwan Cho, Seung Yong Shin, Hoseob Kim et al.
1.00
Humans Male Smoking Cessation Cardiovascular Diseases Female
Humans United States Aged Cross-Sectional Studies Medicare Part C
1.00
Humans Yoga Low Back Pain Female Male

Classifications MeSH