Facebook Experiences of Users With Traumatic Brain Injury: A Think-Aloud Study.
cognitive communication
disability
rehabilitation
social media
traumatic brain injury
Journal
JMIR rehabilitation and assistive technologies
ISSN: 2369-2529
Titre abrégé: JMIR Rehabil Assist Technol
Pays: Canada
ID NLM: 101703412
Informations de publication
Date de publication:
16 Dec 2022
16 Dec 2022
Historique:
received:
30
05
2022
accepted:
31
10
2022
revised:
25
10
2022
entrez:
16
12
2022
pubmed:
17
12
2022
medline:
17
12
2022
Statut:
epublish
Résumé
A critical gap in our knowledge about social media is whether we can alleviate accessibility barriers and challenges for individuals with traumatic brain injury (TBI), to improve their social participation and health. To do this, we need real-time information about these barriers and challenges, to design appropriate aids. The aim of this study was to characterize the ways people with TBI accessed and used social media websites and understand unique challenges they faced. We invited 8 adults with moderate to severe TBI to log onto their own Facebook page and use it as they regularly would while thinking aloud. Their comments were recorded and transcribed for qualitative analysis. We first analyzed participants' utterances using a priori coding based on a framework proposed by Meshi et al to classify adults' motives for accessing social media. We next used an open coding method to understand the challenges that people with TBI faced while using Facebook. In other words, we analyzed participants' needs for using Facebook and then identified Facebook features that made it challenging for them to meet those needs. Participants used all categories of codes in the framework by Meshi et al and provided detailed feedback about the Facebook user interface. A priori coding revealed 2 dimensions that characterized participants' Facebook use: whether they were active or passive about posting and self-disclosure on Facebook and their familiarity and fluency in using Facebook. The open coding analysis revealed 6 types of challenges reported by participants with TBI, including difficulty with language production and interpretation, attention and information overload, perceptions of negativity and emotional contagion, insufficient guidance to use Facebook, concerns about web-based scams and frauds, and general accessibility concerns. Results showed that individuals with TBI used Facebook for the same reasons typical adults do, suggesting that it can help increase social communication and reduce isolation and loneliness. Participants also identified barriers, and we propose modifications that could improve access for individuals with brain injury. On the basis of identified functions and challenges, we conclude by proposing design ideas for social media support tools that can promote more active use of social media sites by adults with TBI.
Sections du résumé
BACKGROUND
BACKGROUND
A critical gap in our knowledge about social media is whether we can alleviate accessibility barriers and challenges for individuals with traumatic brain injury (TBI), to improve their social participation and health. To do this, we need real-time information about these barriers and challenges, to design appropriate aids.
OBJECTIVE
OBJECTIVE
The aim of this study was to characterize the ways people with TBI accessed and used social media websites and understand unique challenges they faced.
METHODS
METHODS
We invited 8 adults with moderate to severe TBI to log onto their own Facebook page and use it as they regularly would while thinking aloud. Their comments were recorded and transcribed for qualitative analysis. We first analyzed participants' utterances using a priori coding based on a framework proposed by Meshi et al to classify adults' motives for accessing social media. We next used an open coding method to understand the challenges that people with TBI faced while using Facebook. In other words, we analyzed participants' needs for using Facebook and then identified Facebook features that made it challenging for them to meet those needs.
RESULTS
RESULTS
Participants used all categories of codes in the framework by Meshi et al and provided detailed feedback about the Facebook user interface. A priori coding revealed 2 dimensions that characterized participants' Facebook use: whether they were active or passive about posting and self-disclosure on Facebook and their familiarity and fluency in using Facebook. The open coding analysis revealed 6 types of challenges reported by participants with TBI, including difficulty with language production and interpretation, attention and information overload, perceptions of negativity and emotional contagion, insufficient guidance to use Facebook, concerns about web-based scams and frauds, and general accessibility concerns.
CONCLUSIONS
CONCLUSIONS
Results showed that individuals with TBI used Facebook for the same reasons typical adults do, suggesting that it can help increase social communication and reduce isolation and loneliness. Participants also identified barriers, and we propose modifications that could improve access for individuals with brain injury. On the basis of identified functions and challenges, we conclude by proposing design ideas for social media support tools that can promote more active use of social media sites by adults with TBI.
Identifiants
pubmed: 36525296
pii: v9i4e39984
doi: 10.2196/39984
pmc: PMC9804090
doi:
Types de publication
Journal Article
Langues
eng
Pagination
e39984Subventions
Organisme : NICHD NIH HHS
ID : R01 HD071089
Pays : United States
Informations de copyright
©Reihaneh Ahmadi, Hajin Lim, Bilge Mutlu, Melissa Duff, Catalina Toma, Lyn Turkstra. Originally published in JMIR Rehabilitation and Assistive Technology (https://rehab.jmir.org), 16.12.2022.
Références
Int J Lang Commun Disord. 2019 Mar;54(2):221-233
pubmed: 29873159
Brain Inj. 2012;26(9):1118-26
pubmed: 22642382
JMIR Rehabil Assist Technol. 2021 Aug 27;8(3):e26586
pubmed: 34448727
Int J Med Inform. 2004 Nov;73(11-12):781-95
pubmed: 15491929
Am J Occup Ther. 1998 Jan;52(1):45-52
pubmed: 9426858
Neuropsychol Rehabil. 2016;26(1):1-35
pubmed: 25384260
J Int Neuropsychol Soc. 2013 Mar;19(3):231-46
pubmed: 23351330
J Neurotrauma. 2007 Sep;24(9):1417-24
pubmed: 17892404
Brain Inj. 2012;26(3):221-33
pubmed: 22372410
Brain Lang. 2008 Dec;107(3):229-45
pubmed: 18267340
Handb Clin Neurol. 2015;128:511-24
pubmed: 25701904
Brain Inj. 2001 Jun;15(6):469-87
pubmed: 11394967
Brain Inj. 2010;24(4):569-80
pubmed: 20235759
Cortex. 2010 Oct;46(9):1088-99
pubmed: 19828142
Trends Cogn Sci. 2015 Dec;19(12):771-782
pubmed: 26578288
Neurorehabil Neural Repair. 2017 Dec;31(12):1072-1082
pubmed: 29139337
Arch Phys Med Rehabil. 1997 Dec;78(12):1321-6
pubmed: 9421985
Soc Psychol Personal Sci. 2013 Sep 1;4(5):
pubmed: 24224070
Rehabil Psychol. 2014 Aug;59(3):298-305
pubmed: 25019312
Brain Inj. 2011;25(12):1155-62
pubmed: 21961574
J Head Trauma Rehabil. 2009 Nov-Dec;24(6):430-8
pubmed: 19940676
Brain Inj. 1995 Feb-Mar;9(2):141-50
pubmed: 7787834
Brain Inj. 2005 Apr;19(4):271-82
pubmed: 15832873
Neuropsychol Rehabil. 2010 Oct;20(5):739-59
pubmed: 20526955
Brain Inj. 2008 May;22(5):397-409
pubmed: 18415720
J Int Neuropsychol Soc. 2008 Mar;14(2):318-26
pubmed: 18282329
Brain Inj. 2017;31(10):1270-1278
pubmed: 28686063
Neuropsychology. 2004 Jul;18(3):572-579
pubmed: 15291735
Disabil Rehabil Assist Technol. 2007 Mar;2(2):85-95
pubmed: 19263543
Disabil Rehabil. 2021 Jul;43(14):1955-1964
pubmed: 31694430
J Head Trauma Rehabil. 2018 Jan/Feb;33(1):E9-E17
pubmed: 28422898
Disabil Rehabil. 2015;37(17):1511-21
pubmed: 25985717
J Head Trauma Rehabil. 2011 Jan-Feb;26(1):4-19
pubmed: 21209559
Am J Speech Lang Pathol. 2021 Jan 27;30(1):19-33
pubmed: 33332986
Arch Phys Med Rehabil. 2010 Nov;91(11):1650-1660.e17
pubmed: 21044708
Brain Inj. 2013;27(1):60-74
pubmed: 23252437
Neuropsychol Rev. 2020 Sep;30(3):345-361
pubmed: 32712759
Arch Clin Neuropsychol. 2004 Mar;19(2):203-14
pubmed: 15010086
Brain Inj. 2019;33(1):62-68
pubmed: 30325217
Neuropsychol Rehabil. 2018 Oct;28(7):1161-1178
pubmed: 27802787