Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients' individual emotional and informational needs while reducing potential harms.
hematopoietic stem cell transplant
stakeholder engagement
website development
written peer support
Journal
Procedia computer science
ISSN: 1877-0509
Titre abrégé: Procedia Comput Sci
Pays: Netherlands
ID NLM: 101537771
Informations de publication
Date de publication:
2022
2022
Historique:
entrez:
26
12
2022
pubmed:
27
12
2022
medline:
27
12
2022
Statut:
ppublish
Résumé
Cancer patients often want information from "peers" with the same diagnosis or treatment. To increase access to this valuable resource, we developed a website to deliver written peer support to cancer patients undergoing stem cell transplant. Because little evidence describes how to optimize benefits or reduce potential harms of written peer support, we gathered multiple forms of stakeholder feedback to inform the website's ethical approach, personalization, design, function, and content: a Community Advisory Board; a longitudinal study of patients' written peer support needs and motivations; focus groups; semi-structured interviews; and usability testing. Findings provide a rich foundation for website development.
Identifiants
pubmed: 36567868
doi: 10.1016/j.procs.2022.09.098
pmc: PMC9788802
mid: NIHMS1825361
doi:
Types de publication
Journal Article
Langues
eng
Pagination
195-205Subventions
Organisme : NCI NIH HHS
ID : R01 CA223963
Pays : United States
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