Barriers to uptake of Open-Source automated insulin delivery Systems: Analysis of socioeconomic factors and perceived challenges of adults with type 1 diabetes from the OPEN survey.


Journal

Diabetes research and clinical practice
ISSN: 1872-8227
Titre abrégé: Diabetes Res Clin Pract
Pays: Ireland
ID NLM: 8508335

Informations de publication

Date de publication:
Mar 2023
Historique:
received: 09 11 2022
revised: 13 12 2022
accepted: 21 12 2022
pubmed: 30 12 2022
medline: 16 3 2023
entrez: 29 12 2022
Statut: ppublish

Résumé

Social and technical trends are empowering people with diabetes to co-create or self-develop medical devices and treatments to address their unmet healthcare needs, for example, open-source automated insulin delivery (AID) systems. This study aims to investigate the perceived barriers towards adoption and maintaining of open-source AID systems. This is a multinational study based on a cross-sectional, retrospective web-based survey of non-users of open-source AID. Participants (n = 129) with type 1 diabetes from 31 countries were recruited online to elicit their perceived barriers towards building and maintaining of an open-source AID system. Sourcing the necessary components, lack of confidence in one's own technology knowledge and skills, perceived time and energy required to build a system, and fear of losing healthcare provider support appear to be major barriers towards the uptake of open-source AID. This study identified a range of structural and individual-level barriers to uptake of open-source AID. Some of these individual-level barriers may be overcome over time through the peer support of the DIY online community as well as greater acceptance of open-source innovation among healthcare professionals. The findings have important implications for understanding the possible wider diffusion of open-source diabetes technology solutions in the future.

Identifiants

pubmed: 36581143
pii: S0168-8227(22)01049-X
doi: 10.1016/j.diabres.2022.110235
pii:
doi:

Substances chimiques

Insulins 0
Insulin 0

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

110235

Informations de copyright

Copyright © 2022. Published by Elsevier B.V.

Déclaration de conflit d'intérêts

Declaration of Competing Interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.

Auteurs

Shane O'Donnell (S)

University College Dublin, School of Sociology, Belfield, Ireland; University of Copenhagen, Department of Psychology, Copenhagen, Denmark. Electronic address: shane.odonnell@ucd.ie.

Drew Cooper (D)

Charité - Universitätsmedizin Berlin, Institute of Medical Informatics, Berlin, Germany; Charité - Universitätsmedizin Berlin, Department of Paediatric Endocrinology and Diabetes, Berlin, Germany; Berlin Institute of Health at Charité - Universitätsmedizin Berlin, Berlin, Germany. Electronic address: drew.cooper@charite.de.

Yanbing Chen (Y)

University College Dublin, Michael Smurfit Graduate Business School, Dublin, Ireland. Electronic address: yanbing.chen@ucd.ie.

Hanne Ballhausen (H)

Charité - Universitätsmedizin Berlin, Department of Paediatric Endocrinology and Diabetes, Berlin, Germany; Berlin Institute of Health at Charité - Universitätsmedizin Berlin, Berlin, Germany; #dedoc° Diabetes Online Community, Dedoc Labs GmbH, Berlin, Germany. Electronic address: hanne@open-diabetes.eu.

Dana M Lewis (DM)

OpenAPS, Seattle, WA, United States. Electronic address: Dana@OpenAPS.org.

Timothée Froment (T)

University College Dublin, School of Sociology, Belfield, Ireland. Electronic address: timothee.froment@ucd.ie.

Katarzyna Anna Gajewska (K)

Diabetes Ireland, Dublin, Ireland. Electronic address: kate.gajewska@diabetes.ie.

Adrian Tappe (A)

AndroidAPS, Hamilton, New Zealand. Electronic address: adrian@tap.pe.

Timothy Skinner (T)

Australian Centre for Behavioural Research in Diabetes, Melbourne, Australia; Department of Psychology, University of Copenhagen, Copenhagen Denmark; La Trobe University, Bendigo, Australia. Electronic address: ts@psy.ku.dk.

Bryan Cleal (B)

Steno Diabetes Center Copenhagen, Herlev, Denmark. Electronic address: bcle0007@regionh.dk.

Katarina Braune (K)

Charité - Universitätsmedizin Berlin, Institute of Medical Informatics, Berlin, Germany; Charité - Universitätsmedizin Berlin, Department of Paediatric Endocrinology and Diabetes, Berlin, Germany; Berlin Institute of Health at Charité - Universitätsmedizin Berlin, Berlin, Germany. Electronic address: katarina.braune@charite.de.

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Classifications MeSH