Antenatal consultation and deliberation: adapting to parental preferences.
Journal
Journal of perinatology : official journal of the California Perinatal Association
ISSN: 1476-5543
Titre abrégé: J Perinatol
Pays: United States
ID NLM: 8501884
Informations de publication
Date de publication:
07 2023
07 2023
Historique:
received:
25
09
2022
accepted:
10
01
2023
revised:
28
12
2022
medline:
10
7
2023
pubmed:
2
2
2023
entrez:
1
2
2023
Statut:
ppublish
Résumé
To analyze and compare perspectives on antenatal consultation and decision-making from participants with varying degrees of prematurity experience and clinician-experts. Open-ended interviews structured around topics previously identified by recognized clinician-experts were conducted with participants having different levels of prematurity experience. Analysis used mixed methods (thematic and mental models analysis). Secondary sub-group comparisons were performed, based on degree of experience. Non-clinician participants' (n = 80) perspectives differed regarding: amount and content of information desired, decision-making strategies, and who - parent or clinician - should direct consultations. Most wanted to retain decisional authority, all recognized their emotional limitations and many advocated for deliberation support. Participants worried parents' would regret choosing palliative care contrary to clinicians. Bereaved parents often saw issues differently. Parents approach risk and decision-making for extremely premature infants in a personal fashion. They need personalized support tailored to their unique circumstances, decision-making preferences, and emotions.
Identifiants
pubmed: 36725985
doi: 10.1038/s41372-023-01605-8
pii: 10.1038/s41372-023-01605-8
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
895-902Informations de copyright
© 2023. The Author(s), under exclusive licence to Springer Nature America, Inc.
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