What Happens When you Ask for Feedback? Anticipating and Addressing Challenges Can Be Effective for Eliciting Parents' Views About Their Critically Ill Child's Retrieval to Paediatric Intensive Care.

intensive care paediatrics retrieval service service user feedback

Journal

Journal of patient experience
ISSN: 2374-3735
Titre abrégé: J Patient Exp
Pays: United States
ID NLM: 101688338

Informations de publication

Date de publication:
2023
Historique:
entrez: 6 2 2023
pubmed: 7 2 2023
medline: 7 2 2023
Statut: epublish

Résumé

User feedback is an important element of health-service evaluation and can be used to improve services but can be difficult to obtain, particularly in acute care situations. As part of a national study, we explored stakeholders' perspectives on paediatric critical care retrieval processes through questionnaires and interviews. Obtaining feedback in a highly charged, stressful and busy paediatric intensive care unit (PICU) environment is fraught with difficulties so we aimed to optimise each stage of data collection by being both proactive and reactive. Patient and public involvement occurred throughout and engagement with sites and supporting local research staff to approach and recruit families were prioritised. High-quality study materials were developed to reduce local staff burden and promote and maintain study awareness. We describe strategies used and what worked/did not work. We suggest approaches for optimising elicitation of parents' experiences in difficult circumstances, highlighting the importance of engagement and commitment of PICU staff.

Identifiants

pubmed: 36741824
doi: 10.1177/23743735221143949
pii: 10.1177_23743735221143949
pmc: PMC9893356
doi:

Types de publication

Journal Article

Langues

eng

Pagination

23743735221143949

Informations de copyright

© The Author(s) 2023.

Références

Acad Pediatr. 2019 May - Jun;19(4):446-453
pubmed: 30056223
J Med Ethics. 2010 Jun;36(6):363-6
pubmed: 20439334
N Engl J Med. 2014 Jan 9;370(2):107-18
pubmed: 24401049
Lancet. 2016 Apr 23;387(10029):1732-42
pubmed: 26946925
Pediatr Clin North Am. 2008 Jun;55(3):605-16, x
pubmed: 18501757
BMJ Open. 2018 Mar 23;8(3):e020452
pubmed: 29572398
Intensive Crit Care Nurs. 2009 Apr;25(2):72-9
pubmed: 19019677
Nurs Adm Q. 2009 Jan-Mar;33(1):26-31
pubmed: 19092520
Soc Sci Med. 2004 Jan;58(2):391-400
pubmed: 14604624
Pediatr Crit Care Med. 2019 Apr;20(4):e199-e207
pubmed: 30720671
Arch Dis Child. 2012 Feb;97(2):145-9
pubmed: 21771765
Int J Qual Health Care. 2020 Apr 27;32(2):140-148
pubmed: 32159765
Arch Dis Child. 2018 Mar;103(3):272-279
pubmed: 28903950
J Clin Nurs. 2018 Mar;27(5-6):e1152-e1160
pubmed: 29193568
Death Stud. 2019;43(1):62-69
pubmed: 29474116
Intensive Crit Care Nurs. 2003 Apr;19(2):103-8
pubmed: 12706736

Auteurs

Victoria Barber (V)

Centre for Outcomes and Experience Research in Children's Health, Illness and Disability (ORCHID), Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.

Ruth Evans (R)

Centre for Outcomes and Experience Research in Children's Health, Illness and Disability (ORCHID), Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.

Padmanabhan Ramnarayan (P)

Children's Acute Transport Service (CATS), Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
Paediatric Critical Care, Imperial College, London, UK.

Jo Wray (J)

Centre for Outcomes and Experience Research in Children's Health, Illness and Disability (ORCHID), Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
NIHR Great Ormond Street Hospital Biomedical Research Centre, London, UK.

Classifications MeSH