Oral Health-Related Quality of Life in Different Subtypes of Ehlers-Danlos Syndrome.
EDS
Ehlers-Danlos Syndromes
OHIP-14
OHRQoL
oral health
oral health-related quality of life
rare disease
Journal
International journal of environmental research and public health
ISSN: 1660-4601
Titre abrégé: Int J Environ Res Public Health
Pays: Switzerland
ID NLM: 101238455
Informations de publication
Date de publication:
26 01 2023
26 01 2023
Historique:
received:
10
12
2022
revised:
18
01
2023
accepted:
24
01
2023
entrez:
11
2
2023
pubmed:
12
2
2023
medline:
15
2
2023
Statut:
epublish
Résumé
This study assessed differences in the oral health-related quality of life (OHRQoL) between subtypes of Ehlers-Danlos syndrome (EDS). For statistical analysis, participants were divided according to their subtype: classical EDS (cEDS), hypermobile EDS (hEDS), and vascular EDS (vEDS). All other subtypes were descriptively analyzed. Free-text questions and the German short form of the Oral Health Impact Profile (OHIP-14) were used. Finally, 295 questionnaires were included, representing 10 different EDS subtypes. The mean OHIP score of all participants was 19.6 points (standard derivation (SD) ± 12.3). The most predominant subtypes showed similar reduced OHRQoL, with 18.0 (cEDS, ±12.9), 19.5 (hEDS, ±12.0), and 15.2 (vEDS, ±11.6) OHIP points. For all other subtypes, the OHIP values varied. Participants waited an average of 21.8 years (±12.8) for their diagnosis. However, within the predominant subtypes, vEDS patients waited a noticeably shorter period of 13.3 years (±13.0;
Identifiants
pubmed: 36767586
pii: ijerph20032218
doi: 10.3390/ijerph20032218
pmc: PMC9916345
pii:
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
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