Patient-Centered Access to IBD Care: A Qualitative Study.
access to care
barriers
inflammatory bowel disease
patient engagement
patient-oriented research
Journal
Crohn's & colitis 360
ISSN: 2631-827X
Titre abrégé: Crohns Colitis 360
Pays: England
ID NLM: 101752188
Informations de publication
Date de publication:
Jan 2023
Jan 2023
Historique:
received:
24
03
2022
entrez:
13
2
2023
pubmed:
14
2
2023
medline:
14
2
2023
Statut:
epublish
Résumé
Canada has the highest global age-adjusted incidence and prevalence rates of inflammatory bowel disease (IBD). Due to IBD patient volumes and limited resources, challenges to timely access to specialty care have emerged. To address this gap, the aim of this paper was to understand the experiences and perspectives of persons living with IBD with a focus on accessing health care. Using a qualitative descriptive approach, patients diagnosed with IBD (≥18 years of age) were purposively sampled from rural and urban gastroenterology clinics and communities across Canada. Co-facilitated by a researcher and patient research partner, 14 focus groups were recorded, transcribed, and coded for themes. Thematic analysis was used to ascertain the congruence or discordance of IBD specialty care access experiences. A total of 63 individuals participated in the study. The majority of participants were female (41/63, 65%) and from urban/suburban regions (33/63, 52%), with a mean age of 48.39 (range 16-77 years). The analysis generated three main themes: (1) need for patient to be partner, (2) adapting IBD care access to individual context, and (3) patient-defined care priorities should guide access to IBD care. The complexity of specialty care access for IBD patients cannot be underestimated. It is vital to possess a robust understanding of healthcare system structures, processes, and the impact of these factors on accessing care. Using a patient-centered exploration of barriers and facilitators, IBD specialty care access in Canada can be better understood and improved on provincial and national levels.
Sections du résumé
Background
UNASSIGNED
Canada has the highest global age-adjusted incidence and prevalence rates of inflammatory bowel disease (IBD). Due to IBD patient volumes and limited resources, challenges to timely access to specialty care have emerged. To address this gap, the aim of this paper was to understand the experiences and perspectives of persons living with IBD with a focus on accessing health care.
Methods
UNASSIGNED
Using a qualitative descriptive approach, patients diagnosed with IBD (≥18 years of age) were purposively sampled from rural and urban gastroenterology clinics and communities across Canada. Co-facilitated by a researcher and patient research partner, 14 focus groups were recorded, transcribed, and coded for themes. Thematic analysis was used to ascertain the congruence or discordance of IBD specialty care access experiences.
Results
UNASSIGNED
A total of 63 individuals participated in the study. The majority of participants were female (41/63, 65%) and from urban/suburban regions (33/63, 52%), with a mean age of 48.39 (range 16-77 years). The analysis generated three main themes: (1) need for patient to be partner, (2) adapting IBD care access to individual context, and (3) patient-defined care priorities should guide access to IBD care.
Conclusions
UNASSIGNED
The complexity of specialty care access for IBD patients cannot be underestimated. It is vital to possess a robust understanding of healthcare system structures, processes, and the impact of these factors on accessing care. Using a patient-centered exploration of barriers and facilitators, IBD specialty care access in Canada can be better understood and improved on provincial and national levels.
Identifiants
pubmed: 36777367
doi: 10.1093/crocol/otac045
pii: otac045
pmc: PMC9825304
doi:
Types de publication
Journal Article
Langues
eng
Pagination
otac045Informations de copyright
© The Author(s) 2022. Published by Oxford University Press on behalf of Crohn's & Colitis Foundation.
Références
J Can Assoc Gastroenterol. 2018 Mar 01;1(1):26-32
pubmed: 31294393
J Clin Nurs. 2020 Feb;29(3-4):305-319
pubmed: 31631440
Nat Rev Gastroenterol Hepatol. 2015 Apr;12(4):205-17
pubmed: 25732745
Gastroenterology. 2011 Jul;141(1):90-7
pubmed: 21458455
Nat Rev Gastroenterol Hepatol. 2016 Jan;13(1):13-27
pubmed: 26627550
BMJ Open. 2020 Nov 12;10(11):e041789
pubmed: 33184085
J Can Assoc Gastroenterol. 2018 Oct 15;3(1):44-53
pubmed: 34169226
Am J Gastroenterol. 2006 Jul;101(7):1559-68
pubmed: 16863561
J Clin Nurs. 2017 Nov;26(21-22):3677-3687
pubmed: 28122403
Nat Rev Gastroenterol Hepatol. 2015 Dec;12(12):720-7
pubmed: 26323879
BMJ. 2003 Nov 22;327(7425):1219-21
pubmed: 14630762
Am J Gastroenterol. 2000 Aug;95(8):1955-60
pubmed: 10950042
Rural Remote Health. 2021 Apr;21(2):6358
pubmed: 33820422
Can J Gastroenterol. 2012 Nov;26(11):811-7
pubmed: 23166905
Br Dent J. 2008 Mar 22;204(6):291-5
pubmed: 18356873
Am J Gastroenterol. 2013 Nov;108(11):1744-53; quiz 1754
pubmed: 23978953
PLoS One. 2018 May 17;13(5):e0197351
pubmed: 29772017
Nat Rev Gastroenterol Hepatol. 2018 Jan;15(1):39-49
pubmed: 29018271
Inflamm Bowel Dis. 2009 Feb;15(2):182-9
pubmed: 18668678
Gastroenterology. 2014 Oct;147(4):803-813.e7; quiz e14-5
pubmed: 24951840
J Crohns Colitis. 2013 Oct;7(9):e386-95
pubmed: 23541150
Res Nurs Health. 2000 Aug;23(4):334-40
pubmed: 10940958
Can J Gastroenterol Hepatol. 2014 May;28(5):275-85
pubmed: 24839622
J Can Assoc Gastroenterol. 2021 Nov 05;4(Suppl 2):S10-S19
pubmed: 34755034
Inflamm Bowel Dis. 2008 Nov;14(11):1575-84
pubmed: 18512245
BMC Med Res Methodol. 2009 Jul 16;9:52
pubmed: 19607668
Digestion. 2009;80(2):129-39
pubmed: 19657191
Res Nurs Health. 2010 Feb;33(1):77-84
pubmed: 20014004
J Can Assoc Gastroenterol. 2021 Oct 26;4(Suppl 2):S61-S67
pubmed: 34755041
Gastroenterology. 2019 Apr;156(5):1345-1353.e4
pubmed: 30639677
Intern Med J. 2020 Oct;50(10):1216-1225
pubmed: 31707751
Lancet Gastroenterol Hepatol. 2018 Sep;3(9):644-653
pubmed: 30102183
Int J Equity Health. 2013 Mar 11;12:18
pubmed: 23496984
PLoS One. 2018 Jan 23;13(1):e0190980
pubmed: 29360881
Inflamm Bowel Dis. 2012 Aug;18(8):1540-9
pubmed: 21936030
World J Gastroenterol. 2012 Nov 21;18(43):6240-9
pubmed: 23180944
Inflamm Bowel Dis. 2015 Apr;21(4):777-82
pubmed: 25738376