Perception and management of cancer predisposition in pediatric cancer centers: A European-wide questionnaire-based survey.
cancer genetics
germ cell tumor
pediatric hematology/oncology
Journal
Pediatric blood & cancer
ISSN: 1545-5017
Titre abrégé: Pediatr Blood Cancer
Pays: United States
ID NLM: 101186624
Informations de publication
Date de publication:
05 2023
05 2023
Historique:
revised:
10
01
2023
received:
16
08
2022
accepted:
11
01
2023
pubmed:
3
3
2023
medline:
25
3
2023
entrez:
2
3
2023
Statut:
ppublish
Résumé
The European Union-funded COST Action (LEukaemia GENe Discovery by data sharing, mining, and collaboration) LEGEND was an international and multidisciplinary collaboration between clinicians and researchers that covered a range of aspects of genetic predisposition in childhood leukemia. Within this framework, we explored the perception and handling of genetic predisposition in the daily practice of European treatment centers. Herein, we present the results of our questionnaire-based survey. We found that the overall awareness is quite high, and respondents remarked that identification and treatment of the most common predisposition syndromes were present. Nevertheless, high demand for continuous education and routinely updated resources remains.
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
e30229Investigateurs
Muge Sayitoğlu
(M)
Ozden Hatirnaz Ng
(OH)
Nihat Bugra Agaoglu
(NB)
Yucel Erbilgin
(Y)
Gizem Senturk
(G)
Khusan Khodzhoev
(K)
Tugce Sudutan
(T)
Sule Altıner
(S)
Gul Nihal Ozdemir
(GN)
Ugur Demirsoy
(U)
Ceren Damla Yilmaz
(CD)
Jelena Ruml
(J)
Koray Yalcin
(K)
Ezgi Gökpinar Ili
(EG)
Ivana Pantic
(I)
Milica Vukovic
(M)
Wojciech Mlynarski
(W)
Agata Pastorczak
(A)
Jutte van der Werff Ten Bosch
(JVWT)
Brigitte Schlegelberger
(B)
Lucie Slamova
(L)
Jan Loeffen
(J)
Africa Garcia-Orad
(A)
Markus Metzler
(M)
Bettina Reismüller
(B)
Informations de copyright
© 2023 Wiley Periodicals LLC.
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