A qualitative exploration into the presence of TB stigmatization across three districts in South Africa.

Active case finding HIV Stigma Health System strengthening Health seeking Behaviour Stigma Stigma interventions Tuberculosis stigma

Journal

BMC public health
ISSN: 1471-2458
Titre abrégé: BMC Public Health
Pays: England
ID NLM: 100968562

Informations de publication

Date de publication:
15 03 2023
Historique:
received: 30 07 2022
accepted: 08 03 2023
entrez: 16 3 2023
pubmed: 17 3 2023
medline: 21 3 2023
Statut: epublish

Résumé

Tuberculosis (TB) stigma is a barrier to active case finding and delivery of care in fighting the TB epidemic. As part of a project exploring different models for delivery of TB contact tracing, we conducted a qualitative analysis to explore the presence of TB stigma within communities across South Africa. We conducted 43 in-depth interviews with 31 people with TB and 12 household contacts as well as five focus group discussions with 40 ward-based team members and 11 community stakeholders across three South African districts. TB stigma is driven and facilitated by fear of disease coupled with an understanding of TB/HIV duality and manifests as anticipated and internalized stigma. Individuals are marked with TB stigma verbally through gossip and visually through symptomatic identification or when accessing care in either TB-specific areas in health clinics or though ward-based outreach teams. Individuals' unique understanding of stigma influences how they seek care. TB stigma contributes to suboptimal case finding and care at the community level in South Africa. Interventions to combat stigma, such as community and individual education campaigns on TB treatment and transmission as well as the training of health care workers on stigma and stigmatization are needed to prevent discrimination and protect patient confidentiality.

Sections du résumé

BACKGROUND
Tuberculosis (TB) stigma is a barrier to active case finding and delivery of care in fighting the TB epidemic. As part of a project exploring different models for delivery of TB contact tracing, we conducted a qualitative analysis to explore the presence of TB stigma within communities across South Africa.
METHODS
We conducted 43 in-depth interviews with 31 people with TB and 12 household contacts as well as five focus group discussions with 40 ward-based team members and 11 community stakeholders across three South African districts.
RESULTS
TB stigma is driven and facilitated by fear of disease coupled with an understanding of TB/HIV duality and manifests as anticipated and internalized stigma. Individuals are marked with TB stigma verbally through gossip and visually through symptomatic identification or when accessing care in either TB-specific areas in health clinics or though ward-based outreach teams. Individuals' unique understanding of stigma influences how they seek care.
CONCLUSION
TB stigma contributes to suboptimal case finding and care at the community level in South Africa. Interventions to combat stigma, such as community and individual education campaigns on TB treatment and transmission as well as the training of health care workers on stigma and stigmatization are needed to prevent discrimination and protect patient confidentiality.

Identifiants

pubmed: 36922792
doi: 10.1186/s12889-023-15407-2
pii: 10.1186/s12889-023-15407-2
pmc: PMC10017062
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

504

Subventions

Organisme : Medical Research Council
ID : MC_PC_16020
Pays : United Kingdom
Organisme : Medical Research Council
ID : MR/R010161/1
Pays : United Kingdom

Informations de copyright

© 2023. The Author(s).

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Auteurs

Daniel DeSanto (D)

Africa Health Research Institute, KwaZulu-Natal, South Africa. desanto.daniel@gmail.com.

Kavindhran Velen (K)

The Aurum Institute, Johannesburg, South Africa.

Richard Lessells (R)

Africa Health Research Institute, KwaZulu-Natal, South Africa.
London School of Hygiene & Tropical Medicine, TB Centre, London, UK.
KwaZulu-Natal Research Innovation & Sequencing Platform, School of Laboratory Medicine and Medical Sciences, University of KwaZulu-Natal, Durban, South Africa.

Sewele Makgopa (S)

The Aurum Institute, Johannesburg, South Africa.

Dumile Gumede (D)

Africa Health Research Institute, KwaZulu-Natal, South Africa.
Centre for General Education, Durban University of Technology, Durban, South Africa.

Katherine Fielding (K)

School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.
London School of Hygiene & Tropical Medicine, TB Centre, London, UK.

Alison D Grant (AD)

Africa Health Research Institute, KwaZulu-Natal, South Africa.
School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.
London School of Hygiene & Tropical Medicine, TB Centre, London, UK.
School of Laboratory Medicine and Medical Sciences, College of Health Sciences, University of KwaZulu-Natal, Durban, South Africa.

Salome Charalambous (S)

The Aurum Institute, Johannesburg, South Africa.
School of Public Health, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.

Candice M Chetty-Makkan (CM)

The Aurum Institute, Johannesburg, South Africa.
Health Economics and Epidemiology Research Office (HE2RO), Wits Health Consortium, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.

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