Improving social justice in observational studies: protocol for the development of a global and Indigenous STROBE-equity reporting guideline.


Journal

International journal for equity in health
ISSN: 1475-9276
Titre abrégé: Int J Equity Health
Pays: England
ID NLM: 101147692

Informations de publication

Date de publication:
30 03 2023
Historique:
received: 03 11 2022
accepted: 27 02 2023
medline: 31 3 2023
entrez: 29 3 2023
pubmed: 30 3 2023
Statut: epublish

Résumé

Addressing persistent and pervasive health inequities is a global moral imperative, which has been highlighted and magnified by the societal and health impacts of the COVID-19 pandemic. Observational studies can aid our understanding of the impact of health and structural oppression based on the intersection of gender, race, ethnicity, age and other factors, as they frequently collect this data. However, the Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) guideline, does not provide guidance related to reporting of health equity. The goal of this project is to develop a STROBE-Equity reporting guideline extension. We assembled a diverse team across multiple domains, including gender, age, ethnicity, Indigenous background, disciplines, geographies, lived experience of health inequity and decision-making organizations. Using an inclusive, integrated knowledge translation approach, we will implement a five-phase plan which will include: (1) assessing the reporting of health equity in published observational studies, (2) seeking wide international feedback on items to improve reporting of health equity, (3) establishing consensus amongst knowledge users and researchers, (4) evaluating in partnership with Indigenous contributors the relevance to Indigenous peoples who have globally experienced the oppressive legacy of colonization, and (5) widely disseminating and seeking endorsement from relevant knowledge users. We will seek input from external collaborators using social media, mailing lists and other communication channels. Achieving global imperatives such as the Sustainable Development Goals (e.g., SDG 10 Reduced inequalities, SDG 3 Good health and wellbeing) requires advancing health equity in research. The implementation of the STROBE-Equity guidelines will enable a better awareness and understanding of health inequities through better reporting. We will broadly disseminate the reporting guideline with tools to enable adoption and use by journal editors, authors, and funding agencies, using diverse strategies tailored to specific audiences.

Sections du résumé

BACKGROUND
Addressing persistent and pervasive health inequities is a global moral imperative, which has been highlighted and magnified by the societal and health impacts of the COVID-19 pandemic. Observational studies can aid our understanding of the impact of health and structural oppression based on the intersection of gender, race, ethnicity, age and other factors, as they frequently collect this data. However, the Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) guideline, does not provide guidance related to reporting of health equity. The goal of this project is to develop a STROBE-Equity reporting guideline extension.
METHODS
We assembled a diverse team across multiple domains, including gender, age, ethnicity, Indigenous background, disciplines, geographies, lived experience of health inequity and decision-making organizations. Using an inclusive, integrated knowledge translation approach, we will implement a five-phase plan which will include: (1) assessing the reporting of health equity in published observational studies, (2) seeking wide international feedback on items to improve reporting of health equity, (3) establishing consensus amongst knowledge users and researchers, (4) evaluating in partnership with Indigenous contributors the relevance to Indigenous peoples who have globally experienced the oppressive legacy of colonization, and (5) widely disseminating and seeking endorsement from relevant knowledge users. We will seek input from external collaborators using social media, mailing lists and other communication channels.
DISCUSSION
Achieving global imperatives such as the Sustainable Development Goals (e.g., SDG 10 Reduced inequalities, SDG 3 Good health and wellbeing) requires advancing health equity in research. The implementation of the STROBE-Equity guidelines will enable a better awareness and understanding of health inequities through better reporting. We will broadly disseminate the reporting guideline with tools to enable adoption and use by journal editors, authors, and funding agencies, using diverse strategies tailored to specific audiences.

Identifiants

pubmed: 36991403
doi: 10.1186/s12939-023-01854-1
pii: 10.1186/s12939-023-01854-1
pmc: PMC10060140
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

55

Subventions

Organisme : CIHR
ID : 173269
Pays : Canada

Informations de copyright

© 2023. The Author(s).

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Auteurs

Sarah Funnell (S)

Department of Family Medicine, Queen's University, Kingston, Canada.
Department of Family Medicine, Faculty of Medicine, University of Ottawa, Ottawa, Canada.

Janet Jull (J)

School of Rehabilitation Therapy, Faculty of Health Sciences, Queen's University, Kingston, Canada.

Lawrence Mbuagbaw (L)

Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Canada.

Vivian Welch (V)

Bruyère Research Institute, Bruyère Continuing Care and University of Ottawa, 85 Primrose, Ottawa, Ontario, Canada. vwelch@campbellcollaboration.org.
School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada. vwelch@campbellcollaboration.org.

Omar Dewidar (O)

Bruyère Research Institute, Bruyère Continuing Care and University of Ottawa, 85 Primrose, Ottawa, Ontario, Canada.

Xiaoqin Wang (X)

Michael G. DeGroote Institute for Pain Research and Care, McMaster University, Hamilton, Canada.

Miranda Lesperance (M)

School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada.

Elizabeth Ghogomu (E)

Bruyère Research Institute, Bruyère Continuing Care and University of Ottawa, 85 Primrose, Ottawa, Ontario, Canada.

Anita Rizvi (A)

School of Psychology, University of Ottawa, Ottawa, Canada.

Elie A Akl (EA)

Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Canada.
Department of Internal Medicine, American University of Beirut, Beirut, Lebanon.

Marc T Avey (MT)

Canadian Council on Animal Care, Ottawa, Canada.

Alba Antequera (A)

International Health Department, ISGlobal, Hospital Clínic - Universitat de Barcelona, Barcelona, Spain.

Zulfiqar A Bhutta (ZA)

Centre for Global Child Health, Hospital for Sick Children, Toronto, Canada.
Institute for Global Health & Development, The Aga Khan University, Karachi, Pakistan.

Catherine Chamberlain (C)

Indigenous Health Equity Unit, Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, Australia.
Judith Lumley Centre, School of Nursing and Midwifery, La Trobe University, Melbourne, Australia.

Peter Craig (P)

MRC/CSO Social and Public Health Sciences Unit, School of Health and Wellbeing, University of Glasgow, Glasgow, UK.

Luis Gabriel Cuervo (LG)

Unit of Health Services and Access, Department of Health Systems and Services, Pan American Health Organization (PAHO/WHO), Washington, DC, USA.
Doctoral School, Department of Paediatrics, Obstetrics & Gynaecology, and Preventive Medicine, Universitat Autònoma de Barcelona, Barcelona, Spain.

Alassane Dicko (A)

Malaria Research and Training Center, University of Sciences, Techniques, and Technologies of Bamako, Bamako, Mali.

Holly Ellingwood (H)

Department of Psychology, Department of Law, Carleton University, Ottawa, ON, Canada.

Cindy Feng (C)

Department of Community Health and Epidemiology, Dalhousie University, Halifax, Canada.

Damian Francis (D)

School of Health and Human Performance, Georgia College, Milledgville, USA.

Regina Greer-Smith (R)

Healthcare Research Associates, LLC/S.T.A.R. Initiative, Los Angeles, USA.

Billie-Jo Hardy (BJ)

Well Living House, Li Ka Shing Knowledge Institute, University of Toronto, Toronto, Ontario, Canada.
Waakebiness Institute for Indigenous Health, Dalla Lana School of Public Health, University of Toronto, Toronto, Canada.

Matire Harwood (M)

General Practice and Primary Healthcare, University of Auckland, Auckland, New Zealand.

Janet Hatcher-Roberts (J)

WHO Collaborating Centre for Knowledge Translation and Health Technology Assessment in Health Equity, Ottawa, Canada.

Tanya Horsley (T)

Royal College of Physicians and Surgeons of Canada, Ottawa, Canada.

Clara Juando-Prats (C)

Applied Health Research Center, St. Michael's Hospital, Toronto, Canada.
Dalla School of Public Health, University of Toronto, Toronto, Canada.

Mwenya Kasonde (M)

Liverpool School of Tropical Medicine, Liverpool, UK.

Michelle Kennedy (M)

School of Medicine and Public Health, The University of Newcastle, Callaghan, New South Wales, Australia.

Tamara Kredo (T)

Centre for Evidence Based Health Care, Department of Global Health, Stellenbosch University, Stellenbosch, South Africa.
Cochrane South Africa, South African Medical Research Council, Cape Town, South Africa.

Alison Krentel (A)

Bruyère Research Institute, Bruyère Continuing Care and University of Ottawa, 85 Primrose, Ottawa, Ontario, Canada.
School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada.

Elizabeth Kristjansson (E)

Interdisciplinary School of Health Sciences, Faculty of Health Sciences, University of Ottawa, Ottawa, Canada.

Laurenz Langer (L)

Africa Centre for Evidence, University of Johannesburg, Johannesburg, South Africa.

Julian Little (J)

School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada.

Elizabeth Loder (E)

The BMJ, London, UK.

Olivia Magwood (O)

School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada.
Interdisciplinary School of Health Sciences, Faculty of Health Sciences, University of Ottawa, Ottawa, Canada.

Michael Johnson Mahande (MJ)

Department of Epidemiology & Biostatistics, Institute of Public Health, Kilimanjaro Christian Medical College, Moshi, Tanzania.

G J Melendez-Torres (GJ)

University of Exeter College of Medicine and Health, Exeter, UK.

Ainsley Moore (A)

Department of Family Medicine, McMaster University, Hamilton, Ontario, Canada.

Loveline Lum Niba (LL)

Department of Public Health, Faculty of Health Sciences, The University of Bamenda, Bamenda, Cameroon.

Stuart G Nicholls (SG)

Clinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Canada.

Miriam Nguilefem Nkangu (MN)

School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada.

Daeria O Lawson (DO)

Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Canada.

Ekwaro Obuku (E)

College of Health Sciences, Makerere University College of Health Sciences, Kampala, Uganda.

Patrick Okwen (P)

Department of Public Health, Faculty of Health Sciences, The University of Bamenda, Bamenda, Cameroon.

Tomas Pantoja (T)

Department of Family Medicine, School of Medicine, Pontifica Universidad Católica de Chile, Santiago, Chile.

Jennifer Petkovic (J)

Bruyère Research Institute, Bruyère Continuing Care and University of Ottawa, 85 Primrose, Ottawa, Ontario, Canada.
Clinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Canada.

Mark Petticrew (M)

Faculty of Public Health and Policy, London School of Hygiene and Tropical Medicine, London, UK.

Kevin Pottie (K)

School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada.
Department of Family Medicine, Epidemiology and Biostatistics, Western University, London, Ontario, Canada.

Tamara Rader (T)

Freelance Health Research Librarian, Ottawa, Canada.

Jacqueline Ramke (J)

International Centre for Eye Health, London School of Hygiene & Tropical Medicine, London, UK.
School of Optometry and Vision Science, University of Auckland, Auckland, New Zealand.

Alison Riddle (A)

School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada.

Larissa Shamseer (L)

Clinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Canada.

Melissa Sharp (M)

Health Research Board Centre for Primary Care Research, Department of General Practice, Royal College of Surgeons in Ireland, Dublin, Ireland.

Bev Shea (B)

Department of Family Medicine, McMaster University, Hamilton, Ontario, Canada.

Peter Tanuseputro (P)

Clinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Canada.

Peter Tugwell (P)

School of Epidemiology and Public Health, University of Ottawa, Ottawa, Canada.
Clinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Canada.
Department of Medicine , University of Ottawa, Ottawa, Ontario, Canada.

Janice Tufte (J)

Hassanah Consulting, Seattle, WA, 98122, USA.

Erik Von Elm (E)

Cochrane Switzerland, Centre for Primary Care and Public Health (Unisanté), University of Lausanne, Lausanne, Switzerland.

Hugh Sharma Waddington (HS)

London International Development Centre, London School of Hygiene & Tropical Medicine, London, UK.

Harry Wang (H)

Bruyère Research Institute, Bruyère Continuing Care and University of Ottawa, 85 Primrose, Ottawa, Ontario, Canada.
Department of Medicine , University of Ottawa, Ottawa, Ontario, Canada.

Laura Weeks (L)

Canadian Agency for Drugs and Technologies in Health, Ottawa, Ontario, Canada.

George Wells (G)

Department of Family Medicine, Faculty of Medicine, University of Ottawa, Ottawa, Canada.
University of Ottawa Heart Institute, Ottawa, Canada.

Howard White (H)

Campbell Collaboration, Oslow, Norway.

Charles Shey Wiysonge (CS)

Centre for Evidence Based Health Care, Department of Global Health, Stellenbosch University, Stellenbosch, South Africa.
Cochrane South Africa, South African Medical Research Council, Cape Town, South Africa.
HIV and other Infectious Diseases Research Unit, Durban, South Africa.

Luke Wolfenden (L)

Cochrane South Africa, South African Medical Research Council, Cape Town, South Africa.

Taryn Young (T)

Centre for Evidence Based Health Care, Department of Global Health, Stellenbosch University, Stellenbosch, South Africa.

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