Dying at home for people experiencing financial hardship and deprivation: How health and social care professionals recognise and reflect on patients' circumstances.
Cross-sector
deprivation
dying at home
end of life
financial insecurity
health
palliative care
poverty
social care
Journal
Palliative care and social practice
ISSN: 2632-3524
Titre abrégé: Palliat Care Soc Pract
Pays: United States
ID NLM: 101754997
Informations de publication
Date de publication:
2023
2023
Historique:
received:
14
09
2022
accepted:
27
02
2023
medline:
8
4
2023
entrez:
7
4
2023
pubmed:
8
4
2023
Statut:
epublish
Résumé
International palliative care policy often views home as the most desirable location for end-of-life care. However, people living in more deprived areas can worry about dying in poor material circumstances and report more benefits from hospital admission at the end of life. There is increasing recognition of inequities in the experience of palliative care, particularly for people living in more deprived areas. Promoting an equity agenda in palliative care means building healthcare professionals' capacity to respond to the social determinants of health when working with patients near the end of their life. The purpose of this article is to present data which reveal how some health and social care professionals view home dying for people experiencing financial hardship and deprivation. This work was framed by social constructionist epistemology. Semi-structured qualitative interviews ( Thematic analysis was used to analyse the interview data. Our findings suggest that healthcare staff relied on physical clues in the home environment to identify if people were experiencing financial hardship, found discussions around poverty challenging and lacked awareness of how inequities intersect at the end of life. Health professionals undertook 'placing' work to try and make the home environment a suitable space for dying, but some barriers were seen as insurmountable. There was recognition that increased partnership working and education could improve patient experiences. We argue further research is needed to capture the perspectives of individuals with direct lived experience of end-of-life care and financial hardship.
Sections du résumé
Background
UNASSIGNED
International palliative care policy often views home as the most desirable location for end-of-life care. However, people living in more deprived areas can worry about dying in poor material circumstances and report more benefits from hospital admission at the end of life. There is increasing recognition of inequities in the experience of palliative care, particularly for people living in more deprived areas. Promoting an equity agenda in palliative care means building healthcare professionals' capacity to respond to the social determinants of health when working with patients near the end of their life.
Objectives
UNASSIGNED
The purpose of this article is to present data which reveal how some health and social care professionals view home dying for people experiencing financial hardship and deprivation.
Design
UNASSIGNED
This work was framed by social constructionist epistemology.
Methods
UNASSIGNED
Semi-structured qualitative interviews (
Analysis
UNASSIGNED
Thematic analysis was used to analyse the interview data.
Discussion
UNASSIGNED
Our findings suggest that healthcare staff relied on physical clues in the home environment to identify if people were experiencing financial hardship, found discussions around poverty challenging and lacked awareness of how inequities intersect at the end of life. Health professionals undertook 'placing' work to try and make the home environment a suitable space for dying, but some barriers were seen as insurmountable. There was recognition that increased partnership working and education could improve patient experiences. We argue further research is needed to capture the perspectives of individuals with direct lived experience of end-of-life care and financial hardship.
Identifiants
pubmed: 37025502
doi: 10.1177/26323524231164162
pii: 10.1177_26323524231164162
pmc: PMC10071150
doi:
Types de publication
Journal Article
Langues
eng
Pagination
26323524231164162Informations de copyright
© The Author(s), 2023.
Déclaration de conflit d'intérêts
The authors declare that there is no conflict of interest.
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