Perception of quality of care using patient reported experience measures (PREMs) in a cohort of adults with HIV: A cross-sectional study.
Journal
Medicine
ISSN: 1536-5964
Titre abrégé: Medicine (Baltimore)
Pays: United States
ID NLM: 2985248R
Informations de publication
Date de publication:
07 Apr 2023
07 Apr 2023
Historique:
medline:
11
4
2023
entrez:
7
4
2023
pubmed:
8
4
2023
Statut:
ppublish
Résumé
Human immunodeficiency virus (HIV) infection is considered a chronic disease. Antiretroviral therapy has allowed persons with HIV (PLWHIV) to achieve the 90-90-90 objectives proposed by the World Health Organization for 2020; but an additional challenge is getting an adequate health-related quality of life. A determining factor in the health-related quality of life of PLWHIV is the health care they perceive to receive. In this sense, we aimed to assess the perception of the outpatient care provided and to identify possible areas for improvement in a single-center, cross-sectional study at the HIV unit of Hospital Clínic, Barcelona. We sought patient reported experience measures by an anonymous e-survey with 11 statements based on a 1 to 6 Likert scale, and a final question measuring user satisfaction and loyalty through the Net Promoter Score (NPS). All PLWHIV with at least a clinical visit between January 1, 2020 and October 14, 2021 were invited. Of 5493 PLWHIV e-mailed, 1633 (30%) responded to the survey. The overall evaluation of clinical care was very favorable. The evaluation of the physical environment and facilities and the time spent in the waiting room received the lowest scores. According to the Net Promoter Score test results, 66% of respondents were willing to recommend this service, and 11% were not. Thus, monitoring patient reported experience measures in PLWHIV actively receiving outpatient care in our hospital allowed to identify the users' perception on quality of the care received, to determine the rate of satisfaction with the care, and to identify areas for improvement.
Identifiants
pubmed: 37026943
doi: 10.1097/MD.0000000000033442
pii: 00005792-202304070-00044
pmc: PMC10082315
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
e33442Informations de copyright
Copyright © 2023 the Author(s). Published by Wolters Kluwer Health, Inc.
Déclaration de conflit d'intérêts
The authors have no conflicts of interest to disclose.
Références
Schipper H. Quality of life studies: definitions and conceptual issues. En: Spilker B, ed. Qualityof Life and Pharmacoeconomics in Clinical Trials. 2nd ed. Philadelphia: Lippincott-Raven; 1996:11–23.
Alonso J. La Medida de la Calidad de Vida Relacionada con la Salud en la Investigación y la Práctica Clínica. Gac Sanit. 2000;14:163–7.
Porter ME. What is value in health care? New Engl J Med. 2010;363:2477–81.
Haraldstad K, Wahl A, Andenæs R, et al. A systematic review of quality of life research in medicine and health sciences. Qual Life Res. 2019;28:2641–50.
Black N. Patient reported outcome measures could help transform healthcare. BMJ. 2013;346:f1671–f167.
Doyle C, Lennox L, Bell D. A systematic review of evidence on the links between patient experience and clinical safety and effectiveness. BMJ Open. 2013;3:e001570.
Samji H, Cescon A, Hogg RS, et al. Closing the gap: increases in life expectancy among treated HIV-positive individuals in the United States and Canada. PLoS One. 2013;8:e81355.
Danforth K, Granich R, Wiedeman D, et al. Global mortality and morbidity of HIV/AIDS. In: Holmes KK, Bertozzi S, Bloom BR, Jha P, eds. MID. 3rd ed. W (DC): TIB for R and D/ TWB 2017 N 3. C 2. P 30212096. No Title, n.d.
Wandeler G, Johnson LF, Egger M. Trends in life expectancy of HIV-positive adults on antiretroviral therapy across the globe: comparisons with general population. Curr Opin HIV AIDS. 2016;11:492–500.
Deeks SG, Lewin SR, Havlir DV. The end of AIDS: HIV infection as a chronic disease. Lancet. 2013;382:1525–33.
90-90-90 An Ambitious Treatment Target to Help End the AIDS Epidemic. Available at: https://files.unaids.org/en/media/unaids/contentassets/documents/unaidspublication/2014/90-90-90_en.pdf [access date March 26, 2023].
Lazarus JV, Safreed-Harmon K, Barton SE, et al. Beyond viral suppression of HIV - the new quality of life frontier. BMC Med. 2016;14:94.
Akinosoglou K, Antonopoulou S, Katsarolis I, et al. Patient-reported outcomes in HIV clinical trials evaluating antiretroviral treatment: a systematic review. AIDS Care. 2021;33:1118–26.
Bristowe K, Murtagh FEM, Clift P, et al. The development and cognitive testing of the positive outcomes HIV PROM: a brief novel patient-reported outcome measure for adults living with HIV. Health Qual Life Outcomes. 2020;18:214.
Bristowe K, Clift P, James R, et al. Towards person-centred care for people living with HIV: what core outcomes matter, and how might we assess them? A cross-national multi-centre qualitative study with key stakeholders. HIV Med. 2019;20:542–54.
Lazarus JV, Safreed-Harmon K, Kamarulzaman A, et al. Consensus statement on the role of health systems in advancing the long-term wellbeing of people living with HIV. Nat Commun. 2021;12:4450.
Kall M, Fresán U, Guy D, et al. Quality of life in people living with HIV in Romania and Spain. BMC Infect Dis. 2021;21(Suppl 2):898.
Burgui C, Guy D, Fresán U, et al. Patient satisfaction with HIV care service in Spain: results from a cross-sectional patient survey. AIDS Care. 2022:1–7.
Marrone G, Mellgren A, Eriksson LE, et al. High concordance between selfreported adherence, treatment outcome and satisfaction with care using a nine-item health questionnaire in infcareHIV. PLoS One. 2016;11:e01569161–12.
Von Wichmann MA, Locutura J, Blanco JR, et al. Indicadores de calidad asistencial de GESIDA para la atención de personas infectadaspor el VIH/sida. Enferm Infecc Microbiol Clin. 2010;28:6–88.
Oldham J. Integrated care. J Psychiatr Pract. 2013;19:343.
Escarrabill J, Almazán C, Barrionuevo-Rosas L, et al. Elements clau que influeixen en l’experiència del pacient: patients reported experience measurements (PREM). Barcelona: Agència de Qualitat i Avaluació Sanitàries de Catalunya; 2020. Available at: http://hdl.handle.net/11351/5048 .
Reichheld FF. The one number you need to grow. Harv Bus Rev. 2003;81:46–54, 124.
Jimenez A, de Hollanda A, Palou E, et al. Psychosocial, lifestyle, and body weight impact of COVID-19-related lockdown in a sample of participants with current or past history of obesity in Spain. Obes Surg. 2021;31:2115–24.
Informe “Barómetro de la Sanidad Privada 2020”. Available at: https://www.fundacionidis.com/sala-prensa/notas-de-prensa/informe-barometro-de-la-sanidad-privada-2020 [access date March 26, 2023].
Raventós S. El Net Promoter Score es la forma más eficiente de medir la experiencia del paciente. Available at: http://sanidadprivada.publicacionmedica.com/noticia/el-net-promoter-score-es-la-forma-mas-eficiente-de-medir-la-experiencia-del-paciente [access date March 26, 2023].
Coulter A, Locock L, Ziebland S, et al. Collecting data on patient experience is not enough: they must be used to improve care. BMJ. 2014;348:g22251–g2225.