Towards more comprehensive nationwide familial aggregation studies in Denmark: The Danish Civil Registration System versus the lite Danish Multi-Generation Register.

Civil Registration System Denmark Epidemiology Multi-Generation Register church books cohort studies familial aggregation studies parish registers population register

Journal

Scandinavian journal of public health
ISSN: 1651-1905
Titre abrégé: Scand J Public Health
Pays: Sweden
ID NLM: 100883503

Informations de publication

Date de publication:
10 Apr 2023
Historique:
entrez: 10 4 2023
pubmed: 11 4 2023
medline: 11 4 2023
Statut: aheadofprint

Résumé

Linking information on family members in the Danish Civil Registration System (CRS) with information in Danish national registers provides unique possibilities for research on familial aggregation of diseases, health patterns, social factors and demography. However, the CRS is limited in the number of generations that it can identify. To allow more complete familial linkages, we introduce the lite Danish Multi-Generation Register (lite MGR) and the future full Danish MGR that is currently being developed. We generated the lite MGR by linking the current version of the CRS with historical versions stored by the Danish National Archives in the early 1970s, which contain familial links not saved in the current CRS. We describe and compare the completeness of familial links in the lite MGR and the current version of the CRS. We also describe planned procedures for generating the full MGR by linking the current CRS with scanned archived records from Parish Registers. Among people born in Denmark in 1960 or later, the current CRS contains information on both parents. However, it has limited parental information for people born earlier. Among the 732,232 people born in Denmark during 1950-1959, 444,084 (60.65%) had information on both parents in the CRS. In the lite MGR, it was 560,594 (76.56%).

Identifiants

pubmed: 37036022
doi: 10.1177/14034948221147096
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

14034948221147096

Auteurs

Jeppe Klok Due (JK)

Danish National Archives, Denmark.

Marianne Giørtz Pedersen (MG)

National Centre for Register-Based Research, Aarhus BSS, Aarhus University, Denmark.
Centre for Integrated Register-based Research, CIRRAU, Aarhus University, Denmark.

Sussie Antonsen (S)

National Centre for Register-Based Research, Aarhus BSS, Aarhus University, Denmark.

Joen Rommedahl (J)

Danish National Archives, Denmark.

Esben Agerbo (E)

National Centre for Register-Based Research, Aarhus BSS, Aarhus University, Denmark.
Centre for Integrated Register-based Research, CIRRAU, Aarhus University, Denmark.

Preben Bo Mortensen (PB)

National Centre for Register-Based Research, Aarhus BSS, Aarhus University, Denmark.
Centre for Integrated Register-based Research, CIRRAU, Aarhus University, Denmark.

Henrik Toft Sørensen (HT)

Department of Clinical Epidemiology, Aarhus University Hospital and Aarhus University, Denmark.

Jonas Færch Lotz (JF)

Department of Computer Science, University of Copenhagen, Denmark.

Laura Cabello Piqueras (LC)

Department of Computer Science, University of Copenhagen, Denmark.

Constanza Fierro (C)

Department of Computer Science, University of Copenhagen, Denmark.

Antonia Karamolegkou (A)

Department of Computer Science, University of Copenhagen, Denmark.

Christian Igel (C)

Department of Computer Science, University of Copenhagen, Denmark.

Phillip Rust (P)

Department of Computer Science, University of Copenhagen, Denmark.

Anders Søgaard (A)

Department of Computer Science, University of Copenhagen, Denmark.

Carsten Bøcker Pedersen (CB)

National Centre for Register-Based Research, Aarhus BSS, Aarhus University, Denmark.
Centre for Integrated Register-based Research, CIRRAU, Aarhus University, Denmark.

Classifications MeSH