Towards more comprehensive nationwide familial aggregation studies in Denmark: The Danish Civil Registration System versus the lite Danish Multi-Generation Register.
Civil Registration System
Denmark
Epidemiology
Multi-Generation Register
church books
cohort studies
familial aggregation studies
parish registers
population register
Journal
Scandinavian journal of public health
ISSN: 1651-1905
Titre abrégé: Scand J Public Health
Pays: Sweden
ID NLM: 100883503
Informations de publication
Date de publication:
10 Apr 2023
10 Apr 2023
Historique:
entrez:
10
4
2023
pubmed:
11
4
2023
medline:
11
4
2023
Statut:
aheadofprint
Résumé
Linking information on family members in the Danish Civil Registration System (CRS) with information in Danish national registers provides unique possibilities for research on familial aggregation of diseases, health patterns, social factors and demography. However, the CRS is limited in the number of generations that it can identify. To allow more complete familial linkages, we introduce the lite Danish Multi-Generation Register (lite MGR) and the future full Danish MGR that is currently being developed. We generated the lite MGR by linking the current version of the CRS with historical versions stored by the Danish National Archives in the early 1970s, which contain familial links not saved in the current CRS. We describe and compare the completeness of familial links in the lite MGR and the current version of the CRS. We also describe planned procedures for generating the full MGR by linking the current CRS with scanned archived records from Parish Registers. Among people born in Denmark in 1960 or later, the current CRS contains information on both parents. However, it has limited parental information for people born earlier. Among the 732,232 people born in Denmark during 1950-1959, 444,084 (60.65%) had information on both parents in the CRS. In the lite MGR, it was 560,594 (76.56%).
Identifiants
pubmed: 37036022
doi: 10.1177/14034948221147096
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM