Nurses' and Families' perceptions and practices and factors influencing the implementation of family-centred care for hospitalised children and their families.
barriers
facilitators
family-centred care
family-centred care perception
family-centred care practice
hospitalised children
Journal
Journal of clinical nursing
ISSN: 1365-2702
Titre abrégé: J Clin Nurs
Pays: England
ID NLM: 9207302
Informations de publication
Date de publication:
Sep 2023
Sep 2023
Historique:
revised:
03
04
2023
received:
12
11
2022
accepted:
12
04
2023
medline:
21
8
2023
pubmed:
25
4
2023
entrez:
25
04
2023
Statut:
ppublish
Résumé
To explore the perceptions of family-centred care among nurses and the family members of hospitalised children and investigate the facilitators of and barriers to the implementation of family-centred care in Malawi. In Malawi, approximately 34% of children have long-term illnesses that require hospitalisation. Family-centred care ensures that the delivery of healthcare is grounded in partnerships between healthcare providers, patients and their families, which can improve the psychological well-being of families. However, there is lack a good understanding of how families and nurses perceive this concept, its facilitators and the barriers. This was an exploratory qualitative study. Data were analysed deductively and inductively using the five-step qualitative content analysis method. Twenty-nine nurses and 31 families were recruited. Data were collected through in-depth, semi-structured and face-to-face individual interviews. The study was reported using the COREQ checklist. Both nurses and families of hospitalised children recognised the importance of nurse-family partnerships in family-centred care. Four themes emerged as follows: Perceptions of family-centred care, elements of family-centred care, facilitators of family-centred care and barriers to family-centred care. Specific information to families and the religious beliefs of families were identified as important facilitator and barrier to family-centred care, respectively. The implementation of family-centred care is promising in Malawi, as it is positively perceived by nurses and families, and its implementation is consistent with the Institute for Patient and Family-Centred Care Framework. Our findings present the best practices, gaps and challenges in the context of a low-income country regrading implementation of family-centred care. Education programmes on family-centred care are crucial for sustaining the current gains.
Sections du résumé
AIMS AND OBJECTIVES
OBJECTIVE
To explore the perceptions of family-centred care among nurses and the family members of hospitalised children and investigate the facilitators of and barriers to the implementation of family-centred care in Malawi.
BACKGROUND
BACKGROUND
In Malawi, approximately 34% of children have long-term illnesses that require hospitalisation. Family-centred care ensures that the delivery of healthcare is grounded in partnerships between healthcare providers, patients and their families, which can improve the psychological well-being of families. However, there is lack a good understanding of how families and nurses perceive this concept, its facilitators and the barriers.
DESIGN
METHODS
This was an exploratory qualitative study. Data were analysed deductively and inductively using the five-step qualitative content analysis method.
METHODS
METHODS
Twenty-nine nurses and 31 families were recruited. Data were collected through in-depth, semi-structured and face-to-face individual interviews. The study was reported using the COREQ checklist.
RESULTS
RESULTS
Both nurses and families of hospitalised children recognised the importance of nurse-family partnerships in family-centred care. Four themes emerged as follows: Perceptions of family-centred care, elements of family-centred care, facilitators of family-centred care and barriers to family-centred care. Specific information to families and the religious beliefs of families were identified as important facilitator and barrier to family-centred care, respectively.
CONCLUSION
CONCLUSIONS
The implementation of family-centred care is promising in Malawi, as it is positively perceived by nurses and families, and its implementation is consistent with the Institute for Patient and Family-Centred Care Framework.
RELEVANCE TO CLINICAL PRACTICE
CONCLUSIONS
Our findings present the best practices, gaps and challenges in the context of a low-income country regrading implementation of family-centred care. Education programmes on family-centred care are crucial for sustaining the current gains.
Types de publication
Journal Article
Langues
eng
Pagination
6662-6676Informations de copyright
© 2023 John Wiley & Sons Ltd.
Références
Alabdulaziz, H., Moss, C., & Copnell, B. (2017). Paediatric nurses' perceptions and practices of family-centred care in Saudi hospitals: A mixed methods study. International Journal of Nursing Studies, 69, 66-77.
Al-Motlaq, M. A., & Shields, L. (2017). Family-centered care as a Western-centric model in developing countries. Holistic Nursing Practice, 31(5), 343-347.
Azungah, T. (2018). Qualitative research: Deductive and inductive approaches to data analysis. Qualitative Research Journal, 18(4), 383-400. https://doi.org/10.1108/QRJ-D-18-00035
Carlsson, I. M., Nygren, J. M., & Svedberg, P. (2018). Patient participation, a prerequisite for care: A grounded theory study of healthcare professionals' perceptions of what participation means in a paediatric care context. Nursing Open, 5(1), 45-52.
Chan, C. W. H., Choi, K. C., Chien, W. T., Cheng, K. K. F., Goggins, W., So, W. K. W., & Li, C. K. (2014). Health-related quality-of-life and psychological distress of young adult survi-vors of childhood cancer in Hong Kong. Psycho-Oncology, 23(2), 229-236.
Coyne, I. (2015). Families and health-care professionals' perspectives and expectations of family-centred care: Hidden expectations and unclear roles. Health Expectations, 18(5), 796-808.
Dall'Oglio, I., Mascolo, R., Gawronski, O., Tiozzo, E., Portanova, A., Ragni, A., Alvaro, R., Rocco, G., & Latour, J. M. (2018). A systematic review of instruments for assessing parent satisfaction with family-centred care in neonatal intensive care units. Acta Paediatrica, 107(3), 391-402. https://doi.org/10.1111/apa.14186
Foster, M. J., Whitehead, L., Maybee, P., & Cullens, V. (2013). The parents', hospitalized child's, and health care providers' perceptions and experiences of family centered care within a pediatric critical care setting: A metasynthesis of qualitative research. Journal of Family Nursing, 19(4), 431-468.
Gale, N. K., Heath, G., Cameron, E., Rashid, S., & Redwood, S. (2013). Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Medical Research Methodology, 13(1), 117.
Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105-112.
Hill, C., Knafl, K. A., & Santacroce, S. J. (2018). Family-centered care from the perspective of parents of children cared for in a pediatric intensive care unit: An integrative review. Journal of Pediatric Nursing, 41, 22-33.
Hoffman, M., Mofolo, I., Salima, C., Hoffman, I., Zadrozny, S., Martinson, F., & Van Der Horst, C. (2012). Utilization of family members to provide hospital care in Malawi: the role of Hospital Guardians. Malawi Medical Journal, 24(4), 74-78.
Hutchings, K., Michailova, S., & Harrison, E. C. (2013). Neither ghettoed nor cosmopolitan management. Management International Reviews, 53(6), 763-791.
Leese, J., Li, L. C., Nimmon, L., Townsend, A. F., & Backman, C. L. (2021). Moving beyond "until saturation was reached": Critically examining how saturation is used and reported in qualitative research. Arthritis Care & Research, 73(9), 1225-1227. https://doi.org/10.1002/acr.24600
Majamanda, M. D., Munkhondya, T. E. M., Simbota, M., & Chikalipo, M. (2015). Family centered care versus child centered care: The Malawi context. Health, 7, 741-746. https://doi.org/10.4236/health.2015.76088
Malawi Ministry of Health (2017). Quality Management Policy for the Health Sector. Ministry of Health.
Morozova, O., Levina, O., Uusküla, A., & Heimer, R. (2015). Comparison of subset selection methods in linear regression in the context of health-related quality of life and substance abuse in Russia. BMC Medical Research Methodology, 15, 71. https://doi.org/10.1186/s12874-015-0066-2
Nyirenda, M., & Mukwato, P. (2016). Job satisfaction and attitudes towards nursing care among nurses working at Mzuzu central Hospital in Mzuzu, Malawi. Malawi Medical Journal, 28(4), 159-166. https://doi.org/10.4314/mmj.v28i4.3
Phiri, P. G. M., Chan, C. W., & Wong, C. (2020). The scope of family-centred care practices, and the facilitators and barriers to implementation of family-centred care for hospitalised children and their families in developing countries: An integrative review. Journal of Pediatric Nursing, 55, 10-28.
Phiri, P. G. M., Chan, C. W., Wong, C. L., Choi, K. C., & Ng, M. S. (2022). Discrepancies between nurses' current and perceived necessary practices of family-centred care for hospitalised children and their families: A cross-sectional study. Journal of Pediatric Nursing, 62, e25-e31.
Phiri, P. G. M. C., Kafulafula, U., & Chorwe-Sungani, G. (2017). Registered nurses’ experiences pertaining to family involvement in the care of hospitalised children at a government tertiaryhospital in Malawi. Africa Journal of Nursing and Midwifery, 19(1), 31-143.
Prasopkittikun, T., Srichantaranit, A., & Chunyasing, S. (2020). Thai nurses' perceptions and practices of family-centered care: The implementation gap. International Journal of Nursing Sciences, 7(1), 74-80. https://doi.org/10.1016/j.ijnss.2019.09.013
Saunders, B., Saunders, B., Sim, J., Sim, J., Kingstone, T., & Kingstone, T. (2018). Saturation in qualitative research: Exploring its conceptualization and operationalization. Quality and Quantity, 52, 1893-1907.
Setia, M. S. (2016). Methodology series module 3: Cross-sectional studies. Indian Journal of Dermatology, 61(3), 261-264.
Shields, L. (2015). What is “family-centred care”? European Journal for Person Centered Healthcare, 3(2), 139-144.
Stahl, N. A., & King, J. R. (2020). Expanding approaches for research: Understanding and using trustworthiness in qualitative research. Journal of Developmental Education, 44(1), 26-29.
Stanley, C. C., van der Gronde, T., Westmoreland, K. D., Salima, A., Amuquandoh, A., Itimu, S., Manda, A., Mtete, I., Butia, M., Mpasa, A., Wachepa, S., Fox, P., Wasswa, P., Kazembe, P., El-Mallawany, N. K., & Gopal, S. (2018). Risk factors and reasons for treatment abandonment among children with lymphoma in Malawi. Supportive Care in Cancer, 26(3), 967-973.
Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349-357.
Uniacke, S., Browne, T. K., & Shields, L. (2018). How should we understand family-centred care? Journal of Child Health Care, 22(3), 460-469.
Vajravelu, S., & Solomon, P. (2013). Barriers and facilitators to family-centred paediatric physiotherapy practice in the home setting: A pilot study. Disability, CBR & Inclusive Development, 24(4), 107-115.
Vennedey, V., Hower, K. I., Hillen, H., Ansmann, L., Kuntz, L., & Stock, S. (2020). Patients' perspectives of facilitators and barriers to patient-centred care: Insights from qualitative patient interviews. BMJ Open, 10(5), e033449.
White, D. B., Angus, D. C., Shields, A.-M., Buddadhumaruk, P., Pidro, C., Paner, C., Chaitin, E., Chang, C. H., Pike, F., Weissfeld, L., Kahn, J. M., Darby, J. M., Kowinsky, A., Martin, S., Arnold, R. M., & PARTNER Investigators. (2018). A randomized trial of a family-support intervention in intensive care units. New England Journal of Medicine, 378(25), 2365-2375.
World Bank. (2018). List of World Economies, June 2018. https://datahelpdeskworldbank.org/knowledgebase/articles/378832-what-is-the-world-bank-atlas-method?
World Medical Association. (2013). Declaration of Helsinki: Ethical Principles for Medical Research Involving Human Subjects. Adopted by the 18 th WMA General Assembly, Helsinki, Finland, June 1964, and amended by the 59 th WMA General Assembly, Seoul, October 2013. www.wma.net/en/30publications/10policies/index.html
Zamawe, F. C. (2015). The implication of using NVivo software in qualitative data analysis: Evidence-based reflections. Malawi Medical Journal, 27(1), 13-15.